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shadazed

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Everything posted by shadazed

  1. thanks everyone for the information and helping hand don't know what I would do without the information and support from this site ...you all are a god sent shari
  2. Mom starts radiation this week again ..hope all will be well . dr says will be sick and nauseaus mom already down to 109 now and looking very pale and fragile really nervous if she starts to feel nauseas eating will not be on the top of her lists we have to practically force her to eat or drink her supplement meals now ...man everything about this is so scary ....we are all so brave and strong for dealing with this awful illness and the patients themselves I deam as true heros for enduring this no matter what the end result seems to be... shari
  3. So sorry to hear about your mom ... I have been dealing with my mother who is well is a pallative patient ...and I agree I think it is hard when the only decisions they make for treatment is uping the morphine...My mother is now on 60 ml plus a 10 ml every morning at 8:00 pm and then 10 ml every hour to 2 depending on pain and then the same as 8:00 pm at night ...Now her day cosits of waking to take meds ...sleep take meds try and eat before she sleeps again....wake up take pills ....sleep ....mom use to have a little energy but I think the meds knock her down so much it is just to hard to fight the reaction to stay awake and takes all her energy ...so we tell her just rest....ironic eh!! Well my prayers and thoughts are with you going through this myself I know the hurt, confussion, pain and agony it all causes...Man this disease royally SUCKS!!!!!! shari
  4. Like all the rest my deepest sympathy for you and your famiy...Peace be with you and yours.... Shari
  5. skin pigmentation lately on my mom seems to be either a yellowish or grey tinge is this a normal occurrence or should we start being concerned about her liver? shari
  6. thanks for the reply...hopefully this will stop the bleeding as well ..nauseau and sickness mom can't afford she has already dropped no less then 60 pounds since july...she looks so fraile hope for the best... shari
  7. Has anyone dealt with radiation on a tumor that has been bleeding out or causing blood clots? Mom has a tumor in the adrenal gland causing bleeding and they are going to do radiation...looking for any answers good or bad if anyone has had this experience... Shari
  8. Thank you everyone for the kind words and information ... Made it through christmas Thank God...took mom home from the hospital the week prior ...now under 24 hour care..new tumor (maybe different strand of cancer who knows) in the adrenal gland caused blood clots and now on coagulants...was to have radiation starting monday went to have tatooing today and set up the room and all for next week ...get a call after home now radiation is on hold and need to go and have tatooing redone...new catscan...last one done on dec 3 showed tumor in the adrenal gland to be 4.9 cm from original 1 mm from sept to dec...causing clots...anyway today they call to inform us the catscan they did today has caused more damage or something (did not go into over the phone...just new priognosis not good ) bleeding out from this tumor and stuff ..so new tatooing and another week of sure hell and the tumor allowing to cause more damage ....Been very upsetting time my aunt mom's sister who has been battling breast cancer passed away on Dec 29 -05 ...funeral was yesterday...so much hurt and turmoil ...we know she is in a much better place no pain and at peace her cancer spread to her brain....we will miss her dearly ....I know this is devastating my mom they were very close and each others support through everything so now mom's is coming to the realization this is a fight she may not win and trying to change her attitude and prespective is now the hardest to deal with and today did not help at all... Thanks for listening and letting me air my frustrations appreciate all the well wishes and prayers and my love and prayers go out to all who are suffering and putting to rest the devastation this disease really causes for the entire family and supportive groups it affects...God Bless Shari
  9. Sorry everyone just new to this and getting the hang of how it all works ...So many new things and experience throughout all of this.... Well we are off to Kingston ...In Canada for another round of radiation...pallative measures only after discussing things with all doctors and nurse today... Things change so quickly with this disease one day things look good and tne next can be ohh so bad.. Well thank you everyone for your replys and helping hand...I know I sure can use that alot these days Shari
  10. Thanks for the reply this sure is mind bogoling . Spoke to the doctors today and her homecare nurse.. Radiation is being used as a pain control pallative messure only not expecting shrinkage but if occurs excellent , they are just trying to ease her suffering . INformed her she will be sick ..not looking forward to that mom is not 111 pounds down form 150 since about september really don't want her to loose appetite and not eat again been down that road ..and trying to get them to listen when your not the parent is not always easy...I am sure lots of you know exactly what I am talking about...But that is what we endure for love and their well being ...thanks for listening and lending a helping hand
  11. So sorry to hear about your mom...Life can be so cruel and unjust at times...I am sure your mom will be there to invite the newest addition into her family she has waited this long . I hope everything goes well for you tomorrow as well, what a beautiful christmas present...cherish the moments as you already know all to well Will be praying for you and your family with great blessings and happy endings shari
  12. Just last week my mom took a turn for the worst severe pain and agony ..Hospitaized, doctor stated that a tumor in her aderenal gland had grown rapidly and was taking over also formed blood clots...Now under 24 hour care and was told only increasing morphine for pain (palative doctor) nothing else to be done..blood thinners very mild dose due to reaction making in her blood counts. New doctor today Oncologist states he is going to perform radiation on the gland.. when just last week was told by the palative doctor can not perform radiation on glands... I am so confused do not know what to think or who to trust with my mother care two different decisions all together ..My mom was advised the radiation would make her very ill and was only for pallative pain purposes..she beleives will shrink her tumors and she will be better good for her in that sense... She still has the blood clots and is on the thinners does that effect anything with radiation? Please if anyone has been through this or knows let me know ...I love roller coasters but this is one ride that is so scary and wish would end soon but unfortunelty I am afraid how this ride willl end and turn out.....
  13. My mother 54 who is my best freind in the whole world and my most strongest support system was diagnosed in april with non small cell lung cancer -numerous test later decided removal of left lung -pre surgury test determined tumor in her heart ... -now suddenly stage 4 cancer with no treatment options...july -august 10 days of radiation to her heart and lung one time only high risk deal...tumors shrunk..thank god -chemotherapy not an option to high of risk and was advised death would be immediate if chance it -doing great for a few months was given to Thanksgiving as a time line Oct ..we live in Canada -surpassed expectations...mom says she is not sick and doctors are wrong.... -Dec ...mom having severe pain admited to hospital this week...tumor in adrenal gland 4x 8 cm ...causing clots in blood ... -started heperin only tow doses now blood to thin...giving different injections in arm to re regulate her blood...injections and blood test will be daily now.... -more test ...bone clear thank god ...brain clear thank god ...tumor in left and right lungs now and also in her left atrium heart valve.... -doctor wanting to admit her for palative care.. -taking mom home tomorrow for round the clock care...daily blood test and injections... -How do you know when the end is near is this the beginning of the end or just another cycle ... -doctors only seem to be concerned with pain management ...on 30 mg of morphine 2x daily and breakthroughs of 10 mg every hour is needed ...usually need.... -Please any insite or past experience woud be greaty needed ....I need to know if christmas will be possible with my mom ...everyone else just beats around the bush I want the truth.....anyone...thanks
  14. my mother 54 was diagnosed with lung cancer in april ..in july while being prep for surgery they found a cancer tumor in her heart as well...she has had a round of radiation which releived pain and symptoms and shrunk the tumors...in september they found a tumor in her adrenal gland and her right lung ...all and all she has been doing very well...no chemotherapy not an option...this week we had to admit my mom for pain which came on suddenly they state that the tumor in her adrenal gland has grown quite a bit and has caused clots in her blood ...they started her on heperin but found that it thined her blood way to much she is now on coagulants...tryng to set things up to take my mom home but am really wondering about these clots are they serious none where found in her lungs...doctors keep talking about pain control since she is stage 4 but I need to know how serious are the clots can anyone help?
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