Darrell
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Posts posted by Darrell
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Praying hard for you and your family.
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I am terribly sorry to hear about your Dad. Just know that I for one, am thinking of you. There are many others here who have been through what you are going through and understand.
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I think about him every day.... I wish I could have met him.
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My daughter cries in front of me. It's made me fight harder seeing her suffer. You be yourself. Tell him you love him. There are so many things going through his mind and knowing he has your love will help tremendously.
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Mark,
I went to the Cancer Treatment Centers of America 2 months ago. Insofar as SCLC was concerned, it was prominent based on the total number of patients who had lung cancer. Regardless of what 'brand' of cancer you may have, they treat each one as if it's thier specialty.
Give them a try. I wasn't disappointed at all. To be honest with you, the best thing that I brought home with me was the names and numbers of others who have this disease. I keep in touch with them and we are all planning on meeting back there for staging. Go there, tell them your plight and they will certainly make you feel great.
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What started as a rainy day had turned into a broken clouded sunset that yeilded no rain. I was happy for I've heard over and over that rain was attracted to this event as bees are to spring honey. All kinds of people are here. Young and old. Healthy and diseased. All with one goal in mind.... stop this terrible disease that has touched everyone here at the park as well as mostly everyone in this town, state and country.
I'm one of them. I was diagnosed in January with cancer. I'm 44 years old, but I feel young in my disease life. I look at those who have had remission for a number of years with envy, respect and a goal I want to attain. I call myself at 15 percenter. Only 15 percent of the people who have my disease live past 5 years. Some say that's not good odds, but I think that 15% is a huge number of people and I'm one of them.
The Relay for Life event has what it calls the survivors lap. This lap is for the fortunate ones who
are winning or have won their own battle with cancer. Those who are here to support and
participate in the event line the street that circles the park. There are a number of very nice automobiles that proceed the walkers. The Grand Marshalls, VIPs as well as volunteers drive these cars not only to highlight their acheivements but to give some of the survivors an alternative to walking around the lake. Having hip replacement surgery 4 weeks ago, I needed a little coaching but I accepted the advice of my friends and took a ride in a beautiful volkswagon beatle which happened to be driven by an even more beautiful person named Ginger. Ginger quickly made me feel at home and
never said anything about the acne problems my chemotherapy was doing to my face.
She started her car and we were off. As this was my first time in the relay, I didn't know what to expect from this point going forward. What happened was and still is, beyond words that I can describe here. Both sides of the street were full of people,
clapping as we went by. Clapping for me! Clapping for the man who is riding in the volkswagon, on his first relay, cheering him on as he went by. I can't believe these wonderful people are cheering for me! I kept asking myself what had I done to deserve
this? Why are they cheering for me? Do they have any idea that their cheering has motivated me to fight harder? I hope so.
My chemotherapy session begins on Monday. This is my 5th round of the treatment. I will be rising out of bed and heading to Dr. Samaha's office with the sound of thousands of people cheering me on. Whatever happens on this road of fighting cancer,
I feel as if I had already won my battle. Thank you Parkersburg.
Darrell Barnes
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I love great news!!!!! Way to go!!!!!!!! Keep fighting!
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Way to go on the 2 years!!! Awesome!!!
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Tears in my eyes.
I am so very sorry.
Darrell
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Hi Jessica!
I have SCLC as well as mets on my left hip and spine. I know EXACTLY how she's feeling.
Keep her fighting. Don't let her give up the fight. Keep her eating and wanting to fight. She can do this!
PM me if you want to talk.
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I went to Zion Illinois this week for my 3 month staging. Since I've only been diagnosed a few months, this is my first go-round with staging.
I spoke to a nutritionist while I was there. Here is what they recommend for Lung Cancer patients (take whatever you need out of this. I'm just sharing what they told me):
DECREASE Consumption of:
Saturated Fat - Cononut, palm, palm kernel, butter, beef, lard, etc.
Animal protein: source of saturated fat, hormones, pesticides, antibiotics
Dairy: Use low fat or nonfat sources.
Alcohol
INCREASE consumption of:
Carotenoids: 1+ serving daily (carrots, sweet potato, cantaloupe, apricots, spinach, etc). Powerful antioxidants
Pineapple: 1 serving daily. Decreases inflamation. Bromelein in pineapple has anti-metastatic potential in animal studies
EPA: Omega 3-Fatty Acids. 2+ meals/week (seafood: halibut, cod, tuna, mackerel, sardines packed in olive oil, salmon)
Legemus/Soy: Not my favorite here ... 3+ servings/week
Green Tea: 1+ cup daily - Good source of phytochemicals
Cold Pressed Organic Oils: No more than 1-2 tablespoons per day.
I saw a doctor of naturopathic medicine. Here is a breakdown of what they told me to get ...
melatonin - 1x 20mg at night
green tea extract - 2x 550mg daily
vitamin b6 - 1x 100mg
l-glutamine - 2x 10grams
immunomax - 2x daily
EPA max - 2x 360mg
calcium citrate + vitamin D - 1 tablet daily
Whatever you want to use is fine with me. Again, I'm here to just toss my hat in to the ring with more knowledge.
I had an incredibly good time at CTCA. I was not treated like a number. I highly recommend going there. Please PM me if you want to know more.
Glad to be home!!!!
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Welcome Leslie!
I'm so sorry to hear about your sister. Please let us know how she is doing. I used to live in Shoals so I know southern Indiana hospitality.
God bless!
Darrell
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I am so very sorry of the news you received. So far away from home to receive news like that. My heart is with you both.
I will pray that things will change for the better.
Much love,
Darrell
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Fantastic!!!
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Welcome!! Very glad you found us. Look for others who have the same thing. There are tons of friends here who will be more than willing to help you.
Darrell
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Newbie
in SCLC GROUP
Hi Pat!
My gf Kim will be going to CTCA with me. She is an RN who worked on the cancer floor at the hospital I stayed at. She has been the complete inspiration to me. She's also my driving force.
I will let you know how the trip goes and what they come up with. I am praying, wishing and just plain ready for some good news. I feel it coming.
Darrell
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I promise that I will fight as hard as I can.
I also promise to make you proud of me.
If this cancer has done anything good to me, it's made me realize how many people love me. I am so incredibly lucky. I took it for granted when I was healthy. I knew I treated people right, but I never knew to what extent until there was no more room in my hospital room for more cards, flowers or what-nots. I think about that every day.
You all have made me realize that I'm not in this by myself. I helps to cut down on the million different ideas that I hear everyday from diets to physical therapy.
Thank you all again.
Darrell
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Newbie
in SCLC GROUP
Hi!
My name is Darrell. I'm 44 and live in Parkersburg Wv. I was diagnosed with small cell lung cancer Jan 22, 2006. The cancer has spread to my left hip and lumbar spine. It hasn't spread to my other lung however.
I've had 2 rounds of chemo and am ready to start my 3rd round next Monday Mar 13. I'm heading to the Cancer Treatment Centers of America in Zion Ill on March 20th to check out Tomotherapy among other things they offer.
I've had such an emotional roller coaster this past month and a half. The doc doesn't want me to have anymore radiation due to a bowell infection. I'm discouraged about that because it hurts for me to walk.
If anyone has hip cancer like mine, can you plesae contact me? let me know how you are doing? what did they do to help you? How long did it take? etc.?
I just can't imagine that I'm going to have to live with this pain for the rest of my life.
Thank you so very much.
Darrell
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Thank you so very much for responding. I just put this on last night and already have 9 people writing me back. You really do care and it shows. You really do understand and I'm very lucky that you do.
I'll drop a post to the small cell forum with my questions.
Thank you again for making me happy and a giving me a sense of strength.
Darrell
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Hello!
My name is Darrell. I'm 44yo and have been diagnosed with small cell carcinoma lung cancer. It has spread to my left hip and lumbar spine. I was diagnosed about a month and a half ago. I live in Parkersburg, WV.
So many new, shocking, scary and life changing things have happened in such a short time.
I'd love to talk to someone who has the same symptoms or close to it.
thank you so much for being here.
Darrell
Help! Even the doctors don't know...
in SCLC GROUP
Posted
When I was admitted to the hospital and they took a peice of my cancer out of me for analysis, they sent it off site just like you. It took them 2 weeks to respond as to what kind of cancer it was. In the meantime, I was ready to jump out of the hospital bed, find a bottle of sisplatin and vp16 and shove the stuff in my arm.
I know your frustrations. Stay on them. Don't let them for one minute think that the status quo is acceptable to you and your family. They have to be certain as to what kind of chemo to give because of the consequences of giving him the wrong kind. But that shouldn't stop them from getting on the phone and calling up the other locations to find out what type of cancer this is.
I pray for you BIG TIME! I know how exactly how you feel. I was hoping I would have been the only person to have gone through that. Please write if you want to talk more.
HUGS
Darrell