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ztweb

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Everything posted by ztweb

  1. OH my gosh. I was NOT expecting to see this. I haven't been posting/reading as much as in the past, but I didn't realize it had progressed this far. Blessings to this family. What horrific news. Jen
  2. ztweb

    Denver??????

    As many of you know, I have no experience with NSCLC...so this story is so interesting to me... The sister of my neighbor and good friend was diagnosed with pneumonia in November, and through a CT in January was diagnosed with "cancer" of some kind. She had to do a "blow" test (which I know nothing about) followed by a PET. The PET lit up at the tumor and then at two of the lymph nodes. They have been dealing with this for months now, and even this week, with the biopsy on Monday morning, the doc didn't call her until after hours on Wednesday night...and gave her the number of a surgeon she should call (didn't call himself)...he told her that he didn't know if the lymph nodes were cancer or not, but that it would be a good idea to call the surgeon. So...today, FINALLY she was able to get ahold of the surgeon, who knew NOTHING of her story, and hadn't been updated by that original doc. Urgh.....this is taking forever. Have any of you saught treatment around the Denver area? Do you have any recommendations? We were so, so fortunate at Mayo, and I think I might be spoiled at their treatment, organization, and overlapping care. Upon hearing this story, I thought right away that she should get a second opinion. I want to be sure she has a doc who is prepared to fight this beast, rather than one who is content to say, "Oh booger, you have lung cancer...doesn't look good. That is too bad." We all know there are docs out there who don't fight extra hard, and we also know we have to be advocates for our own health care. Please...any recommendations or ideas? This family is a wonderful, wonderful family, who like many of us do NOT deserve to have to deal with this horrid disease. As always, blessings to you all... Jen
  3. Oh Carrie. I am so sorry. I cannot believe how quickly this has come. It just isn't fair. How is your family? Do you feel comfortable with this? Is there any way she would look at a Mayo or something else? I know you have always trusted and believed in your doc, and I don't suggest that you shouldn't...it is more out of desperation that I ask. Again, please let me know if there is anything I can do. Does your Beta group know? They should. Theirs and our prayers will be going up for you and your family. Blessings, Jen
  4. Ugh. This makes me sick. I am so, so sorry to read your post. Please know that you have our many, many prayers for peace and God's miracle of healing. You are right...stick with your faith! Jen
  5. ztweb

    She's here

    Congrats to you! I am so glad to hear all is well! Enjoy that little lady, and look deep in those eyes to see your mom...she will be there! Blessings to you! Jen
  6. Dad had the collapsed lung too. This posed a few problems when he got sick, but in general it was just something they watched, and eventually it ballooned back out again! Yeah! Good luck! Jen
  7. Yes. That is why my dad went to Mayo (in our opinion the A TEAM) for his second opinion, and then proceeded to get all his care there. I think after all the chemo, radiation, PCI, follow ups for 2 years, he has paid maybe $100 total...they do have supplemental care though...either way very good coverage. Jen
  8. Dad had it all in a row on the weekdays, and it wasn't too bad. He had PCI. He didn't like being strapped to the table, and I will say that the mask was hanging in his bedroom for a very long time...come to think of it, I don't know where it went! Interesting! He lost all of his hair, and it had a VERY hard time coming back. His head got very, very tanned. He didn't have too much trouble with swallowing...but it was harder with dry things or bread products that he felt "swelled" after he chewed them. He would try to eat a "little" "alot" of the time. The biggest thing we thought was staying hydrated. We always said how it was as if he was getting a sunburn from the inside out...so he needed to keep the fluids. He wsan't a huge boost fan, but he took it. He ate a TON of watermelon, and drank juices that weren't acidy. Good luck! Jen
  9. Christine, Yes, my dad had this. He was frozen from the inside out almost all through treatment. Even when it went into warmer weather (today it is 18 below zero here!) he always wore a sweater and we would laugh about his stocking cap in June! My dad would try to get warm from the inside too. Lots of warm tea, rice bags heated in the microwave and such. We often did this for him before bed, and then would put it between the sheets to make crawling into bed not so uncomfortable. Good luck! Jen
  10. Barbara, I am so sorry that things are so hard. It just isn't fair that we have to go through this. You have every right to be scared. Cancer robs from us the normalcy that we had lived our lives with. We didn't know it was normal, until cancer reared it's ugly head and let us know. We are here for you. I pray that scar tissue is what it is. Blessings, Jen
  11. Oh my gosh. Your plate is so, so full right now. Please try to find help as you have so much to worry about and to pray about at this time. You have my prayers. Please know you can always come here to vent...that is what we are for! Jen
  12. OH this is so heavy in my heart. Eternal rest be granted unto her oh Lord, and may Your perpetual light shine upon her always. May she rest in peace. Blessings, Jen
  13. Welcome aboard. I am sorry you need to be here, but you have come to a wonderful place. There are so many loving souls here to help us along the way! Good luck with chemo...water, water, water! That is my recommendation...and try to keep something in that tummy! Blessings, Jen
  14. Welcome aboard. Sorry you need to be here, but you have come to a wonderful place. Please know you have my prayers. Jen
  15. Vernon, Keep that chin up, as you will find so many who have lived and lived and lived! My dad is one of those...we are two years in, with no current sign of disease, when his original diagnosis was 2 - 6 months! I am a prayer, so I believe in that...I will say one for you too! Jen
  16. Welcome aboard. I am sorry you need to be here, but you need to know you have come to a great place for hope, peace, and information. Blessings, Jen
  17. This was a beautiful post by Bill. I was ALWAYS so struck by his use of the English language, and the dance he could create with his words. He is missed. Teri, may you find peace. Blessings, Jen
  18. I cannot tell you loud enough that you need to get a second opinion. I truly believe that some docs go by stats and have little hope, and I do believe there is a ton of hope out there. It breaks my heart to think of you losing it. You are responding well to treatment, and that is a HUGE bonus! My dad did the same and he keeps on going! Bless you always, Jen
  19. OH Ned, you crack me up! Glad we can all keep our humor about this booger! Jen
  20. Interesting post. I know nothing, but will be interested in following the thread. Jen
  21. ztweb

    Prayers for a friend

    Oh Nick. I can't believe this. I am so sorry to read it. Please know that your friend has my prayers, as do you for peace. Blessings, Jen
  22. Welcome aboard, although I wish you didn't have to come and find us. You have come to a wonderful place, filled with wonderful, wonderful people. My blessings to you. Jen
  23. ztweb

    Nothingness

    Someday you may realize that even that crapping dog may have been the sign! There are so many here who have been fortunate enough to get those signs, while others are still searching. Be open to it. It might still come. Blessings, Jen
  24. Yep, I too will add that SCLC is either limited or advanced stage. I do believe they will change the staging, and I also might add that SCLC is curable. We have people on the site who have reached this status! Blessings, Jen
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