jenn3

My sister at age 44 died exactly 4 months to the day of her diagnosis. She was stage 1V when diagnosed and never had a symptom prior. Had a seizure at work out of the blue, rushed to hospital, cat scan revealzed brain tumor from lung cancer. It has been a bad year; my mother in law also diagnosed the same month with lung cancer as well (non-smoker) survived 7 months. So some do go quick. This disease is horrible!!!!! Jennifer

Lori I read your post and i am truly sorry. My sister just passed (1 month ago yesterday) and i know exactly what you are going through. The hospice nurses all told us that the last thing to go is their hearing. My sister was basically unconcious at the end, no longer eating, drinking, on liquid meds, but they told us to talk to her and tell her how much we love her and they told us sometimes they need to hear that it is okay to go that you and everyone will be all right. I truly believe it. Praying for all of you Jennifer

I just wanted to write and thank each and every one of you for writing me. Everyone on this message board seems to be so truly caring and you all seem to be such great comforting people. I know many of you have been through exactly what i am going through missing my sister. I feel like i am still in shock. It just doesn't feel real. I wonder if it stays like this or reality just hasn't set in yet. Jennifer

My sister at age 45 passed this past wednesday at 10:35 p.m. She had nslc that spread to her brain. She never had any symptoms of lung cancer and the brain tumor is what got her. She had brain surgery and radiation and the tumor just kept coming back. It was very aggressive. She went from a normal fun loving, independent person to someone who couldn't speak, walk or do anything for herself. It was so sad. I live in another state and all week everyone kept telling her to wait for me. My flight was for friday and she was doing bad so i changed it and went on wednesday and a few hours after i got there she passed while i was the only one in the room with her. I feel like it is a bad dream. I cannot believe that i will never see or speak to her again. She was my only sister. I hope she is in a better place because she suffered so much and no one should have to suffer like she did. Jennifer

Just again want to say thanks to all of you who replied to me. What a great support group here. It is great to see that some of you are doing so well and treatments are working!! It gives everyone hope knowing that sometimes this dreadful disease can be beat!!! Jennifer

Randy Thanks for the link to the clinical trail website. What a great website. I think it is to late for anything unfortunately. I got a call from my sister's boyfriend this morning, she is not doing well these past two days; sleeping most of the time, not talking. It is not looking good. I am supposed to go visit next week. jenn

I just want to thank everyone who replied to my post. I honestly had tears in my eyes reading all your replies. I could not believe how many of you replied and how quickly. You all seem to be such a great bunch of people here. Thank you again for listening. You all have been through some very tough times yourselves. Grace, My sister did have whole brain radiation and unfortunately it didn't seem to do much. Jennifer

I'm not sure where to start. I have been pretty much a lurker on this site since my 44 year old sister was diagnosed March 26th, 06. It was the worst day of my life. I got a phone call that my sister had a seizure (which she never had one in her life) and was in the hospital. I rushed over there and they did a cat scan and we were laughing while waiting for the results. Never in a million years did we think the emergency rm dr. would come in and tell us "i'm very sorry, but you have a large mass in your brain!!!!". We froze in shock and my sister, my husband and myself were all speechless. Then the dr went on to say that it probably came from either breast cancer or lung cancer and he said do you smoke and she said yes and they did a chest x-ray which confirmed lung cancer. Everything after that was basically a blurr of tests, drs, etc..., which she was then diagnosed with stage 1v lung cancer and a 3-4 cm brain tumor. We had her transferred to sloan kettering in manhattan here she underwent brain surgery and they thought they got most to all of the tumor and she was going to receive stero-tactic radiation as a follow-up, and within a week after the surgery the tumor was growing and she was no longer a candidate for the stereo-tactic (sp?) and would need whole brain radiation. At this point her symptoms were getting worse. She was having alot of weakness on her right side and a hard time getting her words out. After her last radiation she seemed a little better and they thought she may qualify for the stereo-tactic radiation, but within a week after they thought that she was getting worse again and they said that if the tumor was growing again she would not be able to get it. Needless to say, she started having more seizures and symptoms getting much worse (hardly able to walk or use right arm), had another mri - tumor growing, excessive swelling (and already on 24 mg of decatron), dr. said that the tumor is so agressive and chemo will not help, that it is time to call in hospice. She then had another seizure, we had another mri and another opinion from another dr. and they are saying the same thing. So now she is at home with hospice and getting worse everyday. She cannot walk, feed herself, speak and they say approximately 2 months left to live. This has been the most horrific experience that my family is going through. How someone can be fine one day and this happen the next day. Just needed to vent - thanks for listening.