Remembering Dave
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Posts posted by Remembering Dave
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My thoughts and condolences go out to you and your family. It is so unfair for him to have lost his battle at such a young age. My prayers will be with you and your family.
David C
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I had some 98% pure Aloe cream I slathered on my noggin everyday during my PCI and never had a problem. Try getting some Aloe........really good, pure aloe cream and see if that helps.
David C
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Hey Greg, so glad to hear you are out and back in fighting mode. We are all here for you. Looking forward to seeing the article, to get any article published is doing a great job, in my opinion.
David C
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Deb, we all know how you feel. Don't worry about it, just do what you can.
Asthma is no fun, period. I have had Asthma all my life...............and smoked for 20 years and now.........well.........
Hang in there, get the astma checked out and let us know whats going on.
David C
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I am so, so very sorry for your loss. My prayers will be with you.
David C
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Greg!!!!!!!!! Man, that sucks. I sure hope they don't subject you to hospital Turkey, that would really suck. Hey man, my prayers are with you. Hang in there and get some real turkey.
David C
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Cathy, I cannot imagine what Thanksgiving would be like after losing a loved one. Please know that there will be many prayers said for you and your family.
David C
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he IS a goofball!!!!
Karen C.
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My eyeballs hurt.
David C
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ATM,
My father had an abdominal aneurysm. They run in families, so depending on your age, you need to have that checked out whenever you have a physical exam. They tell you to start checking it around 50, and I'm 45, so I'm starting soon. Anyway, I hope your grandmother recovers fine from that. I think there is a new surgical procedure that is less invasive than my Dad's surgery. He was in the hospital for three weeks.
This cancer could have started anywhere. There are other cancers that like to spread to the lungs. I'm sure they biopsied what they got, but she also needs a full body CT scan and bone scan. I would think the doctors are ordering that, but make sure they do.
Keep us posted. I hope she is a healthy and strong person, and that if it is cancer it's manageable. I think 78 is young! My Dad is now 74 and he seems like a young man to me.
God Bless,
Karen C. (Dave C.'s wife)
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Kathi, AWESOME NEWS!!!!!!!!!!!! Go celebrate!!!!! Greg is right, Push for a PET Scan. I did not get one until after I finished my PCI but had to push my Onc. for it. I will be being scanned every 6 weeks, from what my Onc said. God Bless you all.
David C
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Hey - Dave had the same awful headache after his first day of PCI. It turns out, after just one treatment, he was having brain swelling from the radiation and to start taking the steroid Decadron to alleviate the swelling. Decadron is often used to alleviate swelling associated with brain tumors, so if anyone tells you that, don't be alarmed.
I have a friend who's father just got diagnosed with Stage IV NSCLC which had mets to the brain and he's on Decadron.
I would tell your radiologist immediately.
Good luck, and hang in there,
Karen C.
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Wenna,
I'm glad you're doing the PCI. I have to tell you, it kicked Dave's butt worse than the chemo or the chest radiation, but a 10% better chance of escaping recurrence is like a gold mine, if you ask me.
Glad you're dealing with the hair loss OK. Folks that say they don't want the PCI because of the potential permanent hair loss just flips me out. OK, I'd rather be dead than be bald for the rest of my life? Not sure about that one . . . but I have to tell you, Dave's hair had just started to show signs of sprouting when he started the PCI. It's been almost two months since he finished PCI and he's still as smooth on his noggin as ever.
He also had some weird short term memory loss toward the end and maybe still has a touch of that. He also just felt weird - bad - but I think that subsided, too.
Hang in there!
God Bless,
Karen C.
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Hi, this is Karen, Dave's wife.
We're pretty sure he has a virus. He had his blood completely tested last week since he felt so bad, his counts were OK, and nothing else showed up, so the nurses told him it must be a virus. Well, yesterday, Sunday, one week later, he had a temp of 100.5 (which is really high for him) and still feels bad - like the flu but not as bad a full blown flu. I have to think it is just a virus, and a "normal" person (one who hasn't had chemo and radiation recently) would kick it in a day.
Hi, Greg - yep he had a flu shot, maybe a month ago, but he also had a pneumonia shot at his oncologist's advice, and I think that was just last Friday. Hmmm.
Another thought on the hot lymph node in his pelvic area. He had posted about this, but a couple of weeks ago he had that procedure where the interventional radiologist punctured a large vein in his groin and ran a wire up to his portacath, which had slipped out of place, and lassoed it back in place. I'd bet a winning lottery ticket that the lymph nodes down there are just responding to that trauma/healing process. Would love to hear input from anyone with experience with something like this.
We're seeing his pulmonary doc in about an hour about the fluid around his lung and heart. I hope he concurs with the oncologist - that is just some pleural effusion from the radiation and will go away with time.
Just my two cents as a semi-observant spouse (only semi-observant because I'm juggling working full time, a two hour daily commute and a toddler who needs surgery soon herself!)
Best to all,
Karen C.
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Greg, thank you so much for your words of wisdom. You may be right that this is just a result of all the hellish treatments we have been through. I was feeling pretty good last week and went back to work part time. Saturday I ran a few errands and Karen thinks I just overdid it but I really did not do that much. Maybe I did and this is the result, hard to tell. Again, thanks for the support and by the way.....great picture, those are good looking kids.
David C
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Well I have good news and bad news. Actually not sure which is which at this point. For the good news/bad news The Pet Scan still shows activity in the mid lung, could beresidual tumor or scar tissue, it showed something in the spine-T-12 which could be arthritis or degenerative, And a lymph node in the pelvis is a little hot. Since this is the first PET Scan I have had We will have to wait until I get another one done to compare against this one.
Now for the Bad news--I feel like absolute crap. I had the PET Scan done on Monday. And felt like crap that day but I just figured it was because I had not eaten anything from 7:30 in the morning until 4:00 in the afternoon but actually I realize I started feeling bad on Sunday. I went to the Doc on Tuesday and they did a work up on my blood but nothing showed wrong. I have never felt like this, even during chemo and radiation and believe it or not even when I was on the Oh so dreaded steroids. I am just so week and sore and numb. I cannot ever remember feeling this way. The nurse said I might have some kind of virus which is making me feel this way. Has anyone else felt this way after all treatments have been over and done with for a few months?? If it was not for the relatively good PET Scan results I would be convinced that, well you can guess what else might cause this pain. God Bless you all. I do read the posts and you are all in my prayers.
David C
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Ginny,
well, it might be a little before my time (I'm almost 45) but I do know the song! Probably also helps that Dave is an ex-professional trumpet player.
I'm trying to convince Dave we need to replace the carpet in our living room since the puppy (puppy who is six months old and weighs at least 50 pounds!) soaked it with his pee pee - with hardwood flooring. Last summer, before getting Faith and before Dave got sick, we pulled up the carpet in another room and installed prefinished hardwood flooring ourselves, we also tore up the water damaged hardwood in our kitchen and replaced it with ceramic tile - ourselves. I told him we should do this soon and hire someone to install the new flooring. He doesn't like the idea and I think the idea of hiring someone to do something he used to be able to do quite well is the problem. I'm also trying to convince him to let me hire cleaning help 'cause it just ain't happening with me . . .
Anyway, I do love your attitude, it's helping! Perspective is everything!
Take care!
Karen C.
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Ginny,
I know what you mean on all accounts. For one thing, in between holding down a full time job (which, for the first time in my life, I have gone through all my sick and vacation time for the year so any more time off is w/o pay, in fact, I was sick a few weeks ago and had to take a day off w/o pay), a two hour round trip commute, taking care of a two year old, trying to keep up the house (that just ain't happening) and keeping up with Dave and his treatment as best I can, I'm pretty darn tired all the time. Not much time for the computer once I'm home.
Another thing: yep, I get people telling me how well I'm holding up, probably especially in light of the fact that I've had clinical depression before. Even Dave has been amazed, I think, until earlier this week when a bad case of PMS plus probable onset of menopause hit me, I told him I felt like I was losing it and I meant it.
But I try to act like we have a future and as far as we're concerned we do. When he got diagnosed all I could think about was selling our beautiful place out in the country on the Mattaponi River and moving in to suburialand for an easier life for Faith and I. Now I'm nagging him about the addition I want to the house and upgrading to a newer travel trailer! How about that for optimism? I've told him he has no choice - I NEED HIM around for quite a long time more - so does Faith, so he's got to slay this beast!
My random thoughts, I think I know how you feel, though. And I love how you call your hubbie The Duke. Or is that his name?
Take care,
Karen C.
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Hello, all, this is Karen C. A friend I work with is out of work all week, at the hospital with her 70-something year old Dad, who was rushed to the hospital Monday morning. Her mother called and said her father would not wake up. She rushed to their house and the rescue squad was there. They thought he'd had a stroke. Turns out he has NSLC with three mets in the brain, and the brain tumors were causing the stroke symptoms. He's in the midst of testing, staging, etc.
I told my friend about this board so when she's back at a computer hopefully she'll come on and at least lurk. There's many of you on here as caregivers/supporters of your parents who have LC and I think she would get lots of information and support here.
It made me sick to hear of his diagnoses. I think I'd rather he'd had a stroke, but I told her, and I believe this, that LC, even with mets to the brain, is NOT a death sentence. There's lots they can do to treat him. And it sounds like they already have a good game plan in place. AND, his oncologist is in the same practice as Dave's, so he's probably in great hands.
I HATE THIS DISEASE!
God Bless to everyone,
Karen C.
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C&J that is wonderful news. Sorry took so long to reply. I also have the Plueral Effusion stuff and hopefully it will clear up itself. I hope you two celebrated the good news.
David C
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YIPEE!!!!!!!!!!!!!!!!!!! It worked. I re-registered and once I got my confirmation email I was able to log in using my new name and CHAT appeared!!!!!!!!!!
David C
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Wondeerful news Bob. What a wonderful article you wrote. Here is to many more years. God Bless.
David C
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Awesome news!!!! God Bless.
David C
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Sounds like a pretty good visit. Tell her to keep up the good work. My prayers are with you.
David C
SCLC - Has anyone experineced a dry cough & numbness in
in SCLC GROUP
Posted
You sound as if you are par for the course as far as reactions to all the treatments. I am still tired!!! It does get better. I can tell everyday thyat I am getting stronger and stronger. I still have my bad days but those are getting fewr as time goes on. Don't try and shovel too much snow up there.
David C