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misstrish70

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  1. Hello all and thanks for taking the time to read this. Can't promise it will always be coherent but I will do my best. **Edit: I never did actually introduce myself. My name is Trish. I'm a 36 yr old wife and mom of 2 amazing sons (15 & 12) and daughter of a really wonderful woman. My husband and I have our own business and we live in the suburbs of Oklahoma City.** Last Wednesday, my mom (52 yrs old) went to the ER with "mild stroke-like" symptoms. For the first 48 hours that she was in the hospital... that is all we were told. They were running tests (CT scans, MRI's etc) but basically giving us very little info. Friday were are told that we are seeing a neurosurgeon so that he can explain something (possibly lesions) found on the MRI. Perhaps we are just ignorant, but we thought "lesions" was a very broad term and the idea/possibility of cancer had not been mentioned by anyone at this point. The neurosurgeon comes in with his team and they begin to explain how he can use something called a "Gamma Knife" for the tumors in her brain. Now, it was just my mom and myself in the room when they said this and we both just froze. My mom repeated "Tumors?? LIke cancer??" and they doctor, very matter-of-fact said "Yes, cancer... didnt anyone tell you?" Well, no... no one told us anything. Over the next 24 hours we learned that my beautiful 52 year old mom has Stage 4 Lung Cancer that has metasticized (multiple 3-4 lesions) to her brain. They then ordered full adbomenal and chest CT scans. We were to go the the doctors office today for those results and to be referred to an oncologist. Went in and AGAIN nothing. He didnt have test results and said "well, I called yesterday and they werent ready....". He then sets us up with an oncologist (same last name as his). I cannot even find this doctor in our yellow pages. He wouldn't answer any of our questions... just basically kept saying that the oncologist would explain everything. Now, I realize this isnt his specialty but where is his compassion? My mother is terrified and needs these doctors to take charge and offer her some hope or at least a plan! Maybe I am just looking for someone to be angry with, I don't know. But, it seems that when a diagnosis of this gravity is given that emotional support should be available asap. Should we immediately look elsewhere for her care? Are Cancer Centers better for "whole person" care? We are new to the OKlahoma City area and I don't even know which doctors have the better reputations. I want to do all I can to help my mom... she is my best friend and just a really cool lady. She deserves so much better than what is being dealt to her. I apologize if this doesn't make sense... as of this weekend... nothing really does to me anymore. Thanks in advance for any help or advice. Trish
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