Jump to content

lyleanme

Members
  • Posts

    15
  • Joined

  • Last visited

Everything posted by lyleanme

  1. Thank you all! You guys are so great! Don't know what I would have done without you thro' all of this! I was just wondering how much of it was "normal"...the day before I was released from the hospital we had a bad wind storm come thro', I was in my hospital room alone and stood up to straighten out my sheets. I heard a noise behind me and turned just in time to see the window fly open towards me...they aren't supposed to open! I automatically threw up both arms to block it and i'm glad I did! The windows are about 6ft X 4 ft and very heavy! Anyway, it almost knocked me down but I managed to push it shut and shove a heavy chair up against it. When the window blew open it swept all the papers off the table and the bulletin board and slammed the room door shut! The nurses came running in and fixed everything and called maintainance to fix the window. I was in some severe pain after that but went home the next day anyway. Maybe this pain is normal...I only know it hurts sometimes. Don't have anything to to compare it to so I have to assume it's supposed to be this way.
  2. I was wondering how long you all had pain from surgery? I had my "top" left lung removed July 10th, some days I hardly notice it unless I cough or sneeze but for the last several days it has been quite painful, hard to sit up for long, feels "tight", hard time, at times, standing up straight Also, does the chemo effect any of this? I just had my 2nd round of Taxol/Carboplatin Tuesday, I have numbness, tingling, stomach upset, habds and feet hurt, exhaustion and sometimes "chemobrain"
  3. I am really excited to finally be having surgery! I have had this pain and weakness in my left side for months now and I just want it to go away! I'm really not worried about the surgery, it's the things after surgery that have me concerned. But i'll deal with that when it gets here. Thank you all for listening and being so supportive! I appreciate it and don't know what I would have done without you this past month!
  4. Does everyone go thro' all the emotional stuff? One minute i'm fine with the whole thing, then i'm crying, then i'm angry, then denial, crying, scared, positive, etc...etc...I think this whole thing would be a lot easier without all the emotional things! I guess most of it is from not knowing what's going to happen!I mean, if your gallbladder is "bad" you have to have it taken out, end of story...but this surgery next week is just the beginning! Guess I need to go talk to someone about it. My roommate came by yesterday, first time in a week! She said she hasn't been here because she is scared. She sais she has always seen me as this really strong, independant person who never needed anyone or anything and now I have cancer and she said it has turned her whole world upside down. I guess I can understand that, doesn't make it any easier tho'.
  5. just got a call from Dr. Iwerks office...now my surgery is changed to July 10th! this is so frustrating! But it was for a good reason! i'm not irritated with the Dr...just the situation.
  6. My Dr. called yesterday, surgery is scheduled for July 7th. Dr. Iwerks will do the surgery, glad to hear you had him too, personally I like him. He has a sense of humor but he's also very serious when he needs to be...This is scary for me, I have had 3 surgeries in the past (hysterectomy, appendics, and gallbladder) and I know this one's gonna hurt! and I don't like pain meds,but I will be SO relieved to finally get it done! They done some hormone testing and found that it is not a carcinoid tumor...So, I told my kids that when I start chemo we can have some fun with my hair, i'll let them cut it! That was brave of me! I think they'll give me a mohawk and spike it before they cut it off completely...Anyway, i'm trying to find ways to make this not as scary for them, it's a challenge, isn't it? My son is 19 but functions at a 5 year old level so he has lots of questions...he got our Mayo Clinic book out and wanted me to show him what lungs were and how they work. Now he is asking me about everyone, if they are going to die and why they will die and when...Their father don't want our daughter if anything should happen so i'm trying to find a place for her to go, she';s 17 and developmentally delayed, I have 1 sister in texas but she is 63 and not in the best health herself, it is all such a challenge! But I know we will all be OK. I plan for the worst and hope for the best...that way i'm not surprised! [/b][/i]
  7. I'm from Aberdeen. My Dr. is a cancer patient himself, So i'm hoping he knows exactly what is best. As far as my SSi, medicaid goes I actually applied over a year ago for PTSD, anxiety and depression, I had to hire an attorney about 6 months ago, i'm not sure she is doing her job tho'. When I was first diagnosed with cancer I called and told her but they didn't seem to concerned so I called the SS office about a week later with the new information and they knew nothing about it but took down the new info and said they would notify the people who are reviewing my file. If I get medicaid I will find a way to go to rochester if it looks like I have to, right now i'm having a hard time finding reliable care for my 2 handicapped children. Hopefully that won't be the case if I do need to go out of town. And you are right about things being a little slower around here but sometimes that's a good thing.
  8. Hi. When I was first diagnosed with the blood clots in October they put me on Lovenox when I was in the hospital and I injected myself 2x a day for about a week then they put me on Coumadin. One Dr recently told me that blood clots in the lungs can be a warning of tumors yet to come...This is all so confusing at times! I had myself all ready for the surgery, or so I thought, now I don't know what i'm dealing with! Not knowing is so much worse than knowing for me anyway. I was actually relieved when the surgeon told me he was going to operate! But tomorrow is Monday, i'll call my Dr. first thing in the morning and find out what we have to do next. Two months ago the Dr told me that one of the tumors in my lung was the size of his fist! That was the one that was pressing against my heart, i'm sure it has grown since then! I just want them out...or gone!...Sorry, i'm being a bit negative, I shouldn;t let it get me down, i'm just tired iof all of this. I think i'd feel better if they'd just start my SSI, not as many worries then.
  9. Today I had my stress test, the Dr.'s office called and left a message that surgery has been postponed...what next! I'm kind of relieved but now I have something else to worry about!
  10. Believe me...i'm confused too! Three Dr.'s, 3 opinions! The ONLY thing I know for sure is that I have 2 tumors in my left lung (I think) My sister went thro' the same thing here when she had liver cancer, they kept telling her it was her gallbladder!...I finally told her Dr. I wanted to take her to the Mayo Clinic and within 3 hours they had the diagnosis and treatment plan in place! Unfortunately I don't have the resources for that now. And I have no insurance or medicaid...I'm lucky these Dr.'s have agreed to see me! I had a really hard time finding a Dr. here in town and the PCP I have now won't see me unless I have $50 for the office call. Believe me...sometimes that isn't easy! Anyway, I think it is best, in my situation, to just let them do the surgery Monday if that is what it takes to get to the bottom of this! I have been dealing with it since Jan., I want them to do something!
  11. Just got back from another Dr. visit with my local Dr...He has cancer too, today he told me "don't believe you have it until you wake up from your surgery". I talked with him about all of my symptoms and he said it sounds like a carcinoid tumor. Something to do with hormones, weight gain, etc...Anyway, tomorrow I have blood work done and I meet with anesthesia, the next day I have a stress test and an EKG then Monday this will all be over! My X is working out of town right now but I think he comes back today, i'm going to try to talk him into helping out a little. but I don't have much faith in him! Oh well...my niece is going to stay here with the kids when i'm gone and my neighbor (friend) said she will help with them too. I thank God for them!
  12. First of all I want to thank all of you for the support...I was so lucky to have found all of you! I'm crying right now...mostly due to relief that I have someone to talk to about all of this! I tried to talk to a couple of friends but they are scared I think and just don't know what to say!...Anyway, to answer all of the questions. I live in Aberdeen, I have 2 children who I adopted as infants, they are 17 and 19 now. Both children are handicapped, they have Fetal Alcohol Syndrome, my son functions at about a 6 year old level and my daughter at about 15 years. They are great kids and are struggling to understand what's going on...all they know of cancer is that you get it and you die. but I think I have convinced them it don't have to be that way. Their father and I are divorced but I think they will be OK with him if it comes to that which I don't think it will. As far as the "jitters" go...Oh Boy! Ya, i've sure had that! But I have to "keep it together" for the kids. I have had some sleeplessness too but that's OK, gives me time to "re-group". My Dr. has a very good reputation in our area and he is willing to talk and he is very patient with all of my questions. I have faith in his ability. I also had blood clots in my lungs in October and am on Coumadin (blood thinner) and I was concerned about what effect that would have on the surgery and he took the time to explain all of that to me. He didn't mention VATS surgery to me, I don't know what it is but maybe they can't do it due to the placement of one of the tumors...it is very close to my heart. As of yet we don't know the type of cancer but the Dr seemed very interested in my symptoms...tired, weight gain , hot flashes, sweating, etc...So far my Dr.'s have said the rib pain and the sholder and arm pain and weakness are from the tumors putting pressure on certain nerve endings which causes pain to radiate to other parts of the body. I know when my sister had liver cancer it caused her left sholder to hurt!...Again, thank you all so very much for your support! I appreciate it so much!
  13. I'm 49, female and I have 10 tattoos all over my body and I can tell you that the only one that really, really hurt was the one on my left sholder. I was diagnosed with lung cancer a week ago and I am having surgery on the 26th of this month. As soon as I heal up I am going to go get another tattoo...but not on my back! Haven't decided yet what I want but it will be a special one! If you get something you truly like and it has meaning for you I don't think you'll ever regret it. I have found that the ones I like the most are the ones I have drawn for me...not flash.
  14. I was so happy to find this board! ...I'm 49, female, and live in South Dakota. I started having problems in Jan., I had pain in my bottom, right rib and went to the ER...they x-rayed it and found a tumor in my left lung.The pain in my rib has pretty much gone away, now I have pain and weakness in my left sholder and elbow. Had CT's, bone scans, MRI, 2 biopsies. The first biopsy there was to much bleeding so the second was a needle guided biopsy, Dr. said I didn't have cancer but we had to watch the tumor close. About 2 weeks later he called again and wanted me to have another scan done. A week later he called and said it is cancer. He set up the appointment with my surgeon who I met with today. I go into the hospital on the 26th of this month. I had 1 sister die of lung cancer and 1 sister die of liver cancer about a year apart.
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.