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dcorey33

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Posts posted by dcorey33

    Frank

    in GENERAL

    Posted

    Great grandson??? That's amazing.. Not many people get to see their great grandchilren. Enjoy, he is a true gift from above and realy cute too :D

    dani

    My worst fear

    in LC SURVIVORS

    Posted

    Thank you so much for all fo the prayers ans advice. I think the only time I really think about it is at night when I can not sleep and I look over at my husband and he is just staring at me (because he can't sleep either). Neither one of us ha really talked about it. It is like we are avoiding it. This coming holiday is going to be interesting, because we have not told any family. His family is coming into town and I am wondering how we are going to explain my apperance to them. I have dropped 40 pounds since they saw me and that was a heathy weight.For the past few months I have not been able to keep food in me for any lenth of time (one of the symtoms of carcinoid syndrome). It is kind of sad when you can wear your 11 year old daughters jeans, because yours don't fit LOL... It is not for lack of trying. My husband is set agaist not telling his family untill we have concrete news. I agree as long as they don't have to see me. I just don't want to lie to them at all either. Other than that my days are so full of everyday activities I don't have time to think about the cancer except for when I am in hthe Dr.s office LOL..

    dani

    My worst fear

    in LC SURVIVORS

    Posted

    I got my scans done this week :? and it looks like the cancer might have spread to my pancreas :? They are sending me to get a P.E.T. scan next, to get a better image. Not sure when that will be scedualed, being the holidays are next week and all. I am hoping it is nothing and just a meaningless shadow. I have so many feeling running through my mind right now. My husband says it is going to be nothing, but it is kind of hard to have his optimisum all the time. I am really scared :cry::cry:

    Danica

    My worst fear

    in LC SURVIVORS

    Posted

    I don't know when I will get the results, but I will let all of you know. This is going to be a busy week for me. I have a head CT on Mon.(I passed out a few times last week at work and it is just a precaution) and the scans on Teusday and Wed. I also work full time so I will have to make up the time somewhere as well LOL...

    Thank you for your thoughts and prayers.

    Don M- I hope yours is gone as well.

    I like to see the positive in everything, even if it turns out to be not so great news. It always could be worse.

    Here is to hope :wink:

    dani

    My worst fear

    in LC SURVIVORS

    Posted

    I recently found out about an oncologist in San Francisco who is supose to be an up in coming carcinoid specialist. He joined Kaiser last year (my health plan). My reg. Dr. has emailed him to get opinion and to see if he will see me. It is over 50 miles from where I live, but I told her I was not going to see the same oncology Dept. again because of the way I was treated. I am luck in the fact that I have a great Dr. who is willing to help me.

    Like I said I am still holding on to that 25% chance that it has not spread. Life goes on and this is just my new normal.

    Thank you

    dani

    My worst fear

    in LC SURVIVORS

    Posted

    After my lung surgery back in May the oncologist I saw said I was cured. Now after months of mysterious symptoms, they are now saying that maybe the carcinoid has spread. I knew after all the reading I did there was a 75% chance of it reoccuring somewhere else, because of it's size when it came out and because it was atypical. I have always held on to that 25% chance it had not. Nothing confirmed yet. I go in for an octreotide scan this next week. The one test I told them I needed in the first place and back then they said it was not needed. As my Dr. put it he (the oncologist) pulled an oops. So I am facing my worst fear all over again.

    I am actually really calm. I think in part that I knew that this was a possability. I just was not expecting it to come so soon. I am hoping that it is nothing, even though they are prety sure. I am just a little nervious and wanted to get it out somewhere. Only my husband, best friend and my mom know. My husband and I have decited not to tell our daughter and other family untill we know something, but I needed to get it out.

    Thanks for listening.

    I will update as soon as I know something.

    dani

    What If (by Ron Atchison)

    in GENERAL

    Posted

    Yes..and I believe there is more beyond this life. This is just a a place to learn and grow. There has to be more and there has to be a reason we go through these trials. It can not be for nothing. Thats what I believe anyway.

    dani

    CALLING ALL LC SURVIVORS!!!

    in LC SURVIVORS

    Posted

    Thank you Don....

    I think the most overwhelming thing for me is they have had no answers for me. Even if it did come back positive, ther would be a course of action and I could move on and deal with it. Right now it is like shooting in the dark they don't have answers. It puts your whole life on hold, because you are sick all the time.

    I know there is a reason I am being put through all of this. There must be somthing I needed to learn or need to learn yet. I just want it all to be over.

    Still trying to keep positive about everything.

    dani

    CALLING ALL LC SURVIVORS!!!

    in LC SURVIVORS

    Posted

    I don't post offten. Mostly because I have been very sick and have had no energy to be on the computer. I recently underwent more surgery not related to my lung surgery. It has been 5 months since they took out the tumor in my lung. So far so good in that respect. I think I will be having a CT in Dec. Right now I am back at work and taking care of my family. Right now I am being tested for MS (it runs in my family). I hope the CT comes back negitive, although it would explain alot.

    This year has been kind of a nightmare for me and my family. Just one health crisis after another. I am hoping that I can end the year better than it started. I want to be strong again. I work at it hard every day. Some days are better than others, but I do the best I can.

    I did not mean to get wordy I guess I had alot to say and no where to say it.

    dani

    Pregnancey after lung surgery

    in LC SURVIVORS

    Posted

    OK first it is not official.. I don't post offten. I went through lung surgery back in May of this year where thery removed the lower right lobe of my right lung. Since then I have been battling many health issues. Now I think I may be pregnant and I am really scared. I am 35 and have an 11 year old daughter. My husband is not so thrilled with the thought being he just got me back. I will of course be going in this afternoon to my Dr. for a blood test, but wanted some feed back for support.

    Thank you in advance :)

    dani

    Survivors Fears

    in LC SURVIVORS

    Posted

    Reading all of your posts, really hits me. I am 4 weeks out of surgery (right lower lobe removed). I am feeling all of what you are explaining (as far as fears go). I have been doing a pretty good job at keeping it under control. I have a young daughter and my husband and I have really tried to play it down for her sake. However, sometimes I look at her and I have to leave the room. I am really good at keeping things locked up tight. I am some what of a control freak. I guess what I am trying to say (very poorly at that :oops:) is I can not explain my fears in a coherent way, and I know it is driving my poor husband crazy. I am at a loss...

    dani

    5 miles on easy hiking trail 4 weeks after surgery

    in GENERAL

    Posted

    Thank you all for you kind words and encouragement. I mainly did that to see if I would be able to Disneyland this next week. We have not been able to take a vacation since my daughter was 4. She is 11 now. So Sunday we are headed down to So. CA for a week and we were hoping to do the park on the 4th. The three of us have been through so much in the past years, with my medical problems, surgeries and my husbands surgeries. My daughter has kind of lost out on what most kids take for granted. She is a good kid and has never complained about the fact that she doesn't get some of the nicer things her friends have or have been.

    I am really excited to give her something she really deserves it. It is going to kind of be on the cheep, but I don't think it will matter to her :)

    dani

    5 miles on easy hiking trail 4 weeks after surgery

    in GENERAL

    Posted

    Thanks :oops: It really felt good, but I think I over did it LOL. I am feeling it today, in a good way. My muscles really have not been challenged for a while like that. I did sleep hard last night I don't think I woke up once. :D

    I love the support I get here :lol: All of you are wonderful people with such big hearts.

    dani

    5 miles on easy hiking trail 4 weeks after surgery

    in GENERAL

    Posted

    Evening all,

    I had to tell someone. My husband and I did 5 miles on one on the easy hiking trail around here today. Tomorrow will be 4 weeks exactly after having the lower lobe of my right lung taken out. I am really spent and the last mile tonight was grueling, but I did it.

    I think I will be able to take my friends up on their challenge of climbing Half Dome this Sept. :lol: I think with a little work and training I really can do this.

    I don't know call me crazy :roll: I have never been one to turn down a challenge

    dani

    Hi...I'm new

    in INTRODUCE YOURSELF!

    Posted

    I am sorry for your diagnosis and the losses in your family. I hope your surgery goes well.

    I have only been hear a short time, but the support you will find is amazing. Everyone hear is wonderful.

    dani

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