Jump to content

awpoint

Members
  • Posts

    47
  • Joined

  • Last visited

  1. Gettin the receipes together! Did you have a deadline? Anne
  2. Hi Cheryl, Sure hope you are feeling better. On picking another date--Oct 17 is out for us. We are having a big birthday party that day. How about Halloween, call it a Halloween party! Some can wear their PCI head dress!! Anne
  3. awpoint

    nausea

    My husband always has unusual reactions. He slept constantly while on Decadon for PCI. Wouldn't eat, wouldn't drink etc. When he finally got off the Decadron he was nauseated for the longest time. He finally got down to the over the counter motion sickness pill. It had the fewest side effects. He took it by the clock. Finally one day the nausea was gone! I hope your Mother will be feeling better soon. Care giving is a very hard job. You must take care of yourself. If you don't ----then who will take care of your Mother. Anne
  4. awpoint

    Medical Records

    Kim, this is so unfair. We trust the Doctor to take care of us and they do something like this. I have a new routine. After every visit, I go and pick up the x-ray, ct, etc. At the next appointment I take the film back and after visit pick up the new one. If any thing comes up between visits I have the film. Then I go to Medical Records and request the reports. They usually mail these. I only wish I had done this from the beginning. You JUST have to have all the records. Doing it this way I am not covered up all at once with everything. The New Normal! Anne
  5. I am so disapointed that the party did not jel. Could we meet for lunch one day? We are retired so just about any day will work for us. Anne
  6. We sure will try to come! I will mark the calendar now. Our daughter is due for a visit along about then so will depend on that. A lotta ifs! It may be that she could come too. Anne
  7. Yes. My husband has had horrible side effects or what ever you want to call them from the PCI. It has been just over a year since PCI ended and finally he is getting better. It seems the only thing mentioned as a problem is memory loss. I wish we had known how bad the physical side effects were. Don't give up on your Dad. It may take a long time. Do get all the physical therapy you can, that is very important. After PCI my husband was in a wheel chair, unable to take care of basic needs, then a walker,-- now walking, showering and even driving on his own. We saw a neurologist finally--he said "he will get better but it will take a while." I really wasn't sure he would get better--but he did!!! Anne
  8. For us it was the opposite. My Husband was very ill. I did not realize it but I was over whelmed. Our Daughter just moved in with us. She did a much better job of the forceing food and drink. He was on so many meds. Before meals, after meals, 3 times a day, 2 times a day, 4 times a day, some to be taken only 1 hour after the other etc. She sat up one nite and made a schedule. Med at 7, eat at 8, Meds at 9, eat at 10, etc. It saved my sanity. I looked at all the meds and the instructions and did not know what to do first. She put big signs all over the kitchen. Eat, drink, meds etc. It sure made things easier. She drove us to all appointments. Radiation every day. etc. She would just put a load of clothes in. Run errands, shop for groceries, etc. I am the Mother and it was not easy to let my daughter take over like that but I don't think we could have done with out her. So just show up with supper one nite. Put a load of clothes in the washer. Make a grocery list. Go to the library and get some books on tape. I think the scrap book idea is great. Just listen when she feels like talking. Allowing your son in law some time by himself. It was certainly hard on our daughter too. She and her husband live in Canada. She took time off from her job. My wonderful son in law would not have it any other way. Be sure and eat your wheaties, It is going to be a hard job. But you are the Mother and you can do it. Mothers can do everything. It has been a very hard 18 months, but he is doing really great now. Anne
  9. We did take a small tape recorder to Onc office. It is too hard to remember every thing they say. Not one Doctor ever objected. It is even recommened in some of the "How to prepare for Dr visit advice" My main reason for doing this is that we have 4 children and they all wanted to know every thing. One would go with us to Dr and the others could listen to the tape. Maybe you could borrow one if you don't have one. I certainly hope your congressman can help you. If he will he can certainly get things done. May be even see that you get a different doctor. I am praying that things will get better for you. Anne
  10. Good Heavens Cat--I wish you had my daughter there--She can get it done! But she can't come so follow all Becky's advice. I am so sorry you are having to fight this by yourself. Try one of Beckys bubble baths and then start over. Praying for strength for you in this terrible situation. Anne
  11. Andrea, GREAT idea. When the media notices that we are all with the same group it could very well be the beginning of our fame. Maybe we could all use the same name for our booth. You come up with the neatest ideas. Anne
  12. Hi Dean, Its pretty awsome. I had to dry a few tears. They will give you a Survivors Tshirt to wear. Be prepared to figure out a way to put it on with no dressing room!!!! You will look pretty cool on your scooter, just wish we could be there to cheer you on. Anne
  13. So Happy that everything turned out GOOD for you. We have heard so much good about Dr Denham, he is on our A list if we change. Anne
  14. awpoint

    An Update.

    Gosh Dean, I sure hate that you are feeling so bad. I am glad that the Roses put on a good show for you. We are praying for strength and well being for you. Anne
  15. Thanks Betty, that was a very interesting site. Anne
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.