Andrea, we're all overwhelmed. This is the most stressful thing I've ever been through, and I've lost a lot of people in my life---but this is my husband, the love of my life!
I didn't sleep much the first few months; sleep has never been easy for me and this sure didn't help. Nights after test were the hardest; my mind was just going in circles. We were lucky that the docs never made us wait more than a few days for results, and sometimes would call the same day as the test!
My doctor gave me tarazadone to help me sleep. It really works!! It's not a sleeping pill and doesn't make you feel drugged in the morning. It helps you stay asleep and get the good deep sleep you need. I can still wake up in the night if Tim needs me, but I can go back to sleep. Before I would wake up and sit at the computer or wander around the house for hours. Tim tells everyone about it because I was such a bad sleeper before.
It sure does change your attitude when you have a little sleep under your belt. I wish I had found tarazadone years ago!!
It also helps me to be proactive-comming here, researching on the computer, making sure I can go to all the doctor appointments. It makes me feel that I'm doing my little share while Tim fights the good fight.
Annie