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tbender

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Posts posted by tbender

  1. My wife has had a feeding tube since last Aug. She got it due to a total gastrectomy not cancer. However it will help her as we go through this. First off your dad could still eat food by mouth as long as he can tolerate it, the tube feeding is a suppliment to normal eating in most cases that I am fimilar with. The biggest problem that I have noticed so far is keeping it unclogged and Keeping it in place. MY wife's seems to leak around the tube because the balloon does not stay inflated all the time. Usually requires a trip to the dr to reinflate. When the balloon deflates the tube has a tendency to move in and out freely. We have had a few incidents where the tube came completely out and had to be reinserted. Caused her a lot of pain, but once it was back in she was fine. Wish you the best of luck and my prayers are with you.

    Troy

  2. Brought my wife home from the hospital late last night. She originally had a kidney infection and that is what she was admitted for not c-diff like I thought. She got c-diff while being treated for the kidney infection(cleared up). She is going to be taking oral vanco for the next 10 days for the C-diff. Monday starts the therapy sessions, I still don't have to much info on that, the hospital ward nurses messed up the appointment and I could not be there when she actually went for the simulation. That is a whole different story. Just wanted to thank everyone and will now go to the caregivers section of the message boards.

    Troy

  3. C-diff being treated with oral vanco. She went for the Rad therapy simulation, also scheduled for a mri of the brain. Got my fingers crossed that it is good. She is in better spirits after the simulation, said that the Rad Onc talked with her about the number/time thing. Will keep you posted

  4. C-diff being treated with oral vanco. She went for the Rad therapy simulation, also scheduled for a mri of the brain. Got my fingers crossed that it is good. She is in better spirits after the simulation, said that the Rad Onc talked with her about the number/time thing. Will keep you posted

  5. Talked with the nutritionist and she said that she would look at my wife's nutritional status and then may recommend that she be on the feeding tube as often as 20 hrs/day. She wants to monitor her through all of this, as she is a breast cancer survivor and understands some of what we are going through. The C-diff infection was cleared up with cipro. It came back over the weekend....Still waiting to hear what the treatment will be for that.

    Good to hear that there are so many survivors and the length of time for a lot of them is encouraging.

    My wife is still struggleing with the initial survival time of 18 mths. I keep telling her about the stories that I have seen where people survive longer and it seems to help for a little. I will continue to tell her about them and when she gets home from the hospital she can get on here and see it for herself and hopefully it will help.

  6. Cindi O'h

    My wife is being treated at a Navy Medical center(being retired Navy this is one of the nice things don't have to worry about the cost of treatment). The down side to this is that if we want another opinion then we will have to pay out of pocket for everything and I can't afford that...So we will take what we can at this point. Yes we do have plenty of family in the area, MIL/FIL/SIL/BIL and daughter all live on the same street as us. Plus another SIL in the area. My family is all in Pa. However I talk with them quite a bit. The talking seems to help me for now, and I look foreword to useing this site as much as possible. I have read that rad therapy causes the throat to swell and therefore makes it difficult for food and fluid intake. Makes me wonder how she will take all the other meds that she is on. The fact that she already has a feeding tube means that the nutrional issues will be followed more closely and should help some. So far the care that she is recieving seems to be ok.

  7. Cindi O'h

    Thanks for the reply. More info on my wife.. Her health started to decline in '92 uclerated stomach. she had 3 procedures to try and fix this, none worked. In 1999 she had her stomach removed do to ulcers and has been battleing with malnutrition ever since. Aug 05 she had a feeding tube put in and started recieving nightly feeds through this. Things were looking up. Last month started to feel like she was getting a chest cold, visited the doctors and did the chest x-ray, 2 days later was ordered to get a pet scan. 2 days later was admitted to the hospital for malnutrion and dehydration then came the news about the cancer.... Since she battles malnutional problems constantly she is not a good canidate for surgery at this time. She has a 5cm tumor lower left lobe of the lung and the pet scan also illuminated the lymphnodes in the middle of the chest. We were told that it is the Squamous cell type of lung cancer, and rad therapy w/sm dose of chemo is the best option at this time. She is scheduled for some more ct scans/bloodwork this wk and then start the therapy. Not sure if this is what you are asking. But it is all I know at this time. If there are other things I should know please tell me so I can find them out.

    Thanks

  8. My wife was dx this wk with stage IIIA NSCLC and is due to begin Rad therapy. I am not to sure of what to expect. Any advise or help will be appreciated. I will look through the many posts as I am sure someone has already posted this.

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