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Marianne

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    Family, Gardening and dog
  1. Congratulations!!! I go for my 3 month PET on Friday the 13th!!! I'm not superstitious, but for some reason that day always bothers me. Guess, I did not but 2 and 2 together when I agreed to this appt date. I was just too happy to have 3 months off. I could sure use some good thoughts and prayers. Thank you.....
  2. Hi, I'm just new here, so this answer to your post is a little late. I had rt. upper lobe removed and part of ribs in Oct. 2004, and I'm still having pain. I have almost constant pain in my rt. shoulder blade - that is where the pain first occured when I was diagnosed with NSCLC. When I ask about why I still have the pain I always get because they had to cut through a lot of muscle and nerves and I will probably always have some pain. And I probably have scar tissue also. Mine feels swollen also and rt. breast feels very heavy. I understand they had to do a lot of "patching" inside so I wouldn't "collapse". One of the Dr. assistants who watched my operation, told me he had never seen anything like what my surgeon had to do to keep me together after removing ribs. I feel like I have on 1/2 a lead vest or something. But, I'm alive and in remission, so I try not to complain too much, although having a nagging pain all the time is a "pain in the you know what". Take care.....
  3. Wow... so many nice replys to my very first post here. I was told I would meet lots of nice people that would be so helpful and supportive. When I have the extra time I will go back and read all the signature lines. Today I spent at the hospital with my husband who was getting radiation seed implants in his prostate. It has been a long day and we are both tuckered out. He is doing well right now thankfully. To the two Michiganders who asked where I live in Michigan, I am in Southwest Lower Michigan, 10 miles from the great University of Notre Dame and the Indiana State border. Where in Mi do you both live? Maybe we are neighbors Thanks to all for the very warm welcome......
  4. Hi....just found this site. I have NSCLC. I was diagnosed in Aug. of 2004. I had been complaining of pain in my shoulder blade for awhile and nothing showed up on x-ray. So, he had a CT scan done. Friday night at 5 pm he calls me at home and says "you have lung cancer"...as most (or probably) all of you know those are the most heart wrenching words anybody can hear. I had a needle biopsy that confirmed andiocarcinoma in my upper right lung. After having every test in the world (or so it seemed), I had surgery on October 20, 2004. My right upper lobe was removed along with parts of ribs that the cancer had eroded in to. I have a huge scar running all the way down my back and around to the front under my right breast. I guess I was doing okay for two days (I don't remember a thing), when they called my family to come in. My lung had collapsed and I had pneumonia. I was not doing well on ventilator I am told, so they eventually had to do a tracheostomy. I was in the ICU for 45 days and spent 2 weeks in rehab. My surgeon said he got it all and no need for chemo. I did not have a very good Onc., because no one from his office contacted me. What did I know about cancer? I just went by what my surgeon said. So, when I went for 6 month CT scan, it had mets to my adrenal gland. I now had stage IV. Had I gone to my Onc. I would probably had received chemo before it got that far. To make a long story short, I got a second Oncologist that is very well known in our area and he has taken excellent care of me. I had chemo once every 3 weeks for 6 cycles. This past July I had a PET and I am currently in remission. Thank God. I go back for another PET next month. I like talking to others who have been through this, and help where I can, and get much needed advice when I need it. Take care and God bless you all.
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