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karen335

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Everything posted by karen335

  1. Natalie, I am currently getting Taxol/Carbo every three weeks. I was getting it once per week for 8 weeks. My right foot was a little numb, but that was it. Now that I am on a more aggressive treatment, my toes and fingers did get really numb after my first treatment 7-23. It has now been two weeks and it has subsided quite a bit. My lips even got numb for a couple of days. I did mention it to my onc and she said we can monitor it. It all depends on if your mom can tolerate the feeling of the numbness. I wish you mom the best, I'm sure her doctor will find the treatment that best works for her and is tolerable. God Bless and praying for a cure Karen ************* Dx 3-03, 3a-b??? 8 weeks taxol/carbo 4-03 to 5-21-03, 33 treatments radiation 4-03 to 4-15-03 carbo/taxol every 3 wks Start 7-23
  2. karen335

    Prayers Please

    Andrea, Prayers have been sent for your mom. She will have a clean scan and get rid of her cough. God Bless Karen **************************** Dx 3-03, NSCLC 3a-b ???? 33 Radiation & 8 wkly chemo 4-03 to 5-03 taxol/carbo. Now taxol/carbo every 3 wks started 7-23
  3. Peg and Bill, You are in my prayers. A special prayer has been sent to our precious Lord for you. God is good. God bless you and your family Karen ************ Dx 3-13 NSCLC 3-A ????, surgery not an option taxol/carbo and radiation, currently on carbo/taxol every three weeks Procrit & Neulasta
  4. Dear Pama, I just went through 38 treatments of radiation and 6 weekly treatments of chemo, Taxol/Carboplatin. These treatments started the first of April and finished the end of May. My doctor gave me almost a two month break. Has anyone else's doctor waited that long in between treatments? Please let me know. In July I started a new cycle of chemo, Taxol/Carboplatin, every three weeks (stronger doses). The tumor is in the right lung and was 17cm long (huge), it shrunk to 8cm according to the CT in June. The tumor is blocking the bronc tubes, that is why I cannot have it removed. I will find out tomorrow how much more it has shrunk, from my blood tests. I had a PET scan in June and praise God, the only place the cancer was, was in the lung. It sounds like the doctor's caught this early. What type of chemo are they going to be giving your sister? You hang in there and everything will be alright. I'll be praying for you and your sister. It is not your cancer, do not claim it. God is good and he will answer our prayers, all we have to do is ask in Jesus name. He loves us and will take care of us. Keep the faith. God bless and lots of hugs Karen NSCLC, Dx 3-03, 3A ????? Miracles do happen in God's name
  5. Michelle, A special prayer has been sent for your Bob. The Lord says if we ask in Jesus name, our prayers will be answered. He is good and keeps his promise. Keep the faith and believe. God Bless Karen
  6. Pama, I have said a special prayer for your sister. Good is good, he promises to answer our prayers. In order for us to e-mail you, we need your e-mail address. If you update your profile we can get it from there. Hang in there. God Bless you and your sister Karen
  7. Nancy, You are a survivor, please don't leave us. You have truly been blessed from our one and only up above. God Bless Karen
  8. Norme & Buddie, I have said a special prayer for this treatment to work for your Buddie. God answers our prayers if we ask through Jesus Christ. God Bless Karen
  9. Shelly, I just had to answer your post. This is not God's disease, it is man's which was created here on earth. We need to beleive in God that he will heal all of our sicknesses. All we have to do is ask in Jesus name and it will be done. Please don't give up hope on his miracles. Sometimes it takes a little longer that we have patience for, but he does answer our prayers. Please keep your faith and all will be answered. I lost my mom when she was only 61 to Diabetes, not LC. I was not close to my mom, we lived too far away from each other and were never close, even during my childhood. It's a long story. Please get as close to your mom as you can and say the things you want her to hear and tell her how you feel about her. I wish I had. Please don't give up on God or your mom. They both love you. I will be praying for you and your mom. Remember you are strong and we are all survivors. God Bless and lots of hugs from California Karen DX'd 3-03 - IIIA-B NSCLC - Surgery not an option 38 treatments radiation 4-01-03 to 5-15-03 8 wkly treatments Carbo/Taxol 4-15-03 to 5-25-03 Started Carbo/Taxol 7-16-03 every 3 wks for ??? rounds
  10. John. You must do a lot of research. Thank you for informing us of all these new trials and research. Please keep up the good work. We are so blessed to have so many people on this forum that truly care. Thank you and God Bless Karen
  11. Don & Lucie, You are such an inspiration for all of us. My prayers to you both. The Lord listens and takes care of his children. God Bless both of you. Karen
  12. Christymike, Prayers have been sent for your father to our precious Lord in Jesus name. God Bless you and your family Karen
  13. Sarah, Special prayers for your husband have been sent to our precious Lord in Jesus name. God Bless Karen
  14. Sharyn, My prayers go out to your father. God is good and answers our prayers. Karen
  15. Connie, I am sure your mom is watching from heaven over you and your grandaughter. She is beaming with pride and saying I love you. Lots of Hugs and God Bless Karen
  16. Hi All, Thank you Rocco, Judy B and Ry for your information. I really am still confused. Let me give you and update. On Tuesday, I went to my radiation onc for my 6 wk follow-up. He said I should not have surgery because the tumor was on my bronc tubes in the middle of my chest. According to xrays and CT, it is gone from there. The tumor is now only in my right upper lung encasing my bronc tubes It has shrunk about 60%. Per my onc, (appt. on 6-9) I need to have enough room around tumor to be able to do surgery, cannot touch anthing around tumor, cut into tumor (don't want ca cells to spread) It much be a clean removal. The onc I saw on 6-9 at UCLA, said I should see the surgeon there, I have an appt. with him on 6-30. Wouldn't you think that if there is no option for surgery, why would they have me see surgeon. The onc at City of Hope last week made it sound like there is no hope. Really depressing. Said I am not candidate for surgery. Suggested Taxotere. I had a good response to Carbo/Taxol, why not put me back on it to continue shrinkage? I am having a PET done today at 2:00, begged doc for it, said I didn't need. Did all of you have a PET? They said at UCLA, I should have had it done before treatments. Your input is soooo important to me. Thank you everyone. God Bless and we are survivors. Big Hugs Karen
  17. Shannon, I send a special prayer for you and your family. May God Bless and watch over you. Blessings Karen
  18. Ada, My prayers and thoughts are with you. You look beautiful, the Lord is good and takes care of us. Stay strong. God Bless Lots of Soft Hugs Karen *********** Diag 3-13-03, NSC IIIa-b Radiation 38 treatments, 3-25-03 to 5-15-03 Carbo/Taxol 8 treatments, 4-01-03 to 5-20-03
  19. Shelly, I am sure glad Rick was able to get us back up and running. Thank You (((((Rick))))) very much. Miss talking and seeing everyone's responses. I was e-mailing Connie B. and she was so kind and said the site was being updated and should be up pretty soon. Thank You (((((Connie B.))))), you are awsome. God Bless & Lots of Hugs )) Karen
  20. Hi Renet, Welcome, you will find there are great people that are in this forum. I joined in May and everyone I have talked to has been really helpful about almost anything you ask. As far as tea, I have been told that OJIBWA tea is supposed to be good for cancer. You should ask your doctor first about it before you take anything, it could make a difference on how your chemo reacts to different supplements and vitamins. What type of Chemo are you receiving and what is the stage. If it is too personal and you would rather not say, that's ok, I apologize. We will beat this. We are here to support and share experiences and new information. Lots of Hugs (((((((((Renet))))))))) Karen Dx, 3-03, NSC Bronc, IIIa-b Chemo 4-01-03 to 5-20-03 Carbo & Taxol Radiation 3-25 to 5-15-03 2nd Opinion UCLA 6-9-03, third opinion 6-27-03 City of Hope Onc says more Chemo to start Mid July?????? (Not sure what kind) No PET yet, only one CT, shows tumor shrunk 60%
  21. Shannon, I have sent a special prayer for you. Our father hears all of our prayers, all we have to do is ask in his name. He is watching over you and Mike on your journey to Tulsa. God Bless you both Karen
  22. Rocco or anyone else who has been told this same info. I saw that you had Taxol & Carboplatin & Radiation. Did you have all of these treatments at the same time? Then you had surgery afterwards? The LC I have has encased my bronc tubes. The doctors at UCLA said I was given too much radiation to be able to have surgery now, they said I was too toxic. Have you ever heard of this? Apparently my pulmonist, the radiologist and the oncologist did not communicate. According to oncologist before she treated me, her goal was to shrink my tumor and then remove the rest surgically. My chemo was once per week for 8 weeks and my radiation was once per day for 38 treatments. Do you know the amount of radiation given to you, my tumor dose was 41cGy then boosted to 69cGy. My last Traetment for chemo was 5-20-03 and radiation was 5-15-03. My oncologist said I can wait til mid July to start treatments again. Is this normal? I am really confused and very upset about the way all of this has been handled. I am IIIa-b. What stage is yours and are you cured now, praise God if you are. Do you know of anyone elese who has experienced this? I did get authorization from my insurance to go to the City of Hope in Duarte, CA for another opinion. I have an appointment on Tuesday , June 24th with an oncologist. I hope I can meet with the Thorasic Surgeon to discuss treatments. If you would let me know I would be greatly appreciative.
  23. karen335

    Great CT Scan

    Dave, We are all blessed and miracles do happen. All we have to do is ask. I am really happy for you, YAHOOOO!!!!!!!!!! Bless you Dave Karen
  24. Hi all, Please read the article that MSNBC wrote about Taxol. If you go to website MSNBC.com, go to search and type lung cancer, then select #42. You can read about how the drug company mfg. for this highy used treatment for LC did not want generic drugs manufactured because it would cut into their profits. If this is the case how many more drugs are being mfg'd that we don't know about for LC and how do we find out about them. We need a CURE. They say this is a common cancer, then why can't they find the CURE. We need to act on this as quickly as possible. We need to let our voices be heard. Does anyone have any ideas?.......I am willing to help as much as I can. We just need to put our heads together and come up with a plan. Please post your ideas and thoughts, this is so important as we all know. I am in Southern California. God Bless to all and let's come out "FIGHTING" Karen NSCLC 3/03 IIIa 8 treatments Taxol/Carbo and 38 treatments Rad tumor shrunk - doctor wants surgery UCLA - PET 7/03
  25. Annie, My prayers are with you and your husband. God Bless Karen
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