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NancyJ

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Everything posted by NancyJ

  1. Suviving in CT. NSCLC-1a. Its been 5 years since my surgery and amlooking forward to many more years.
  2. I posted this under the finance/insurance forum; www.healthinsuranceinfo.net This website was put together by Georgetown University Institute for Health Care Research. The site contains guides for getting and keeping health insurance by state. Just click on Texas. It should provide you with all the info so you can protect your rights. I used it to learn about my insurance options ....including Connecticut's high risk pool....it was very good. Hope this helps.
  3. I'm happy everything went well. I had surgery 2 years ago and also had some numbness under the breast. I was told it was because the nerves were cut. It diminishes over time ...for me about 1 year. As for the other areas of numbness, I haven't a clue. Anesthesia does cause irregularity. Hope this helps....and that you have a quick recovery. Nancy
  4. Recent studies suggest that chemo after surgery is the way to go with early stage lc. I certainly would have it if my cancer had beeen discovered today (vs. 3/01). Here's one of the articles that appeared following ASCO's meeting. http://www.cancerpage.com/news/article.asp?id=5958
  5. I was wondering how much celebrex you took per day....200mg? 400mg? The Cox-2 inhibitors look very promising and I'm thinking of talking to my onc. about them but want to have some idea on the dosage. Thanks, Nancy
  6. Hi Gina.. After my surgery, I was told that my PCP would follow me but his idea of a follow up was a chest X-ray every six months or so. Since the cancer can recur, I sought out an oncologist who sends me for CT scans. And am I glad I did! Another tiny nodule appeared on my March CT scan...and it will be removed if it grows (so far it's been stable in the May scan). It would not have been seen on an X-ray! So... I highly recommend that you find an oncologist. Nancy DX 3/01; Stage 1a; adeno; no chemo or radiation
  7. You can now donate to lung cancer research via the Lung Cancer Online Foundation. You can find out the details at: www:lungcanceronline.org
  8. Sorry that's www.lungcanceronline.org
  9. Just thought I'd let everyone know that I participated in the Thomas G. Labrecque Classic (the first annual) last weekend in NYC. I did the 1.7 mile health walk (as opposed to the 4 mile run). The entry fee was $25 with most $, if not all, going to Memorial Sloan-Kettering's Lung Cancer research efforts. Must have bee 7-10,000 there. I think that that turn out is great especially for the first year. Both MSKCC and Alcase had tents. My friends and I plan on getting a larger group for the walk next year! Also I met Karen Parles and she indicated that a foundation for lung cancer research is being formed and to keep an eye on her website. Her website is www.lungcanceronline.com and is really good. So things are moving along on the research front!!
  10. www.healthinsuranceinfo.net This website was put together by Georgetown University Institute for Health Care Research. The site contains guides for getting and keeping health insurance by state.
  11. Screening is an absolute must, especially for those at risk for LC. My own story supports this. (But I know of people at risk for LC who did not sign up for the free screening via low dose spiral CT scans in NYC. And I don't know why.) I am another Stage 1a LC survivor. My nodule (~1 cm) was picked up on a chest x-ray that my then MD ordered as part of my physical. My surgery to remove the lower right lobe was on March 21, 2001 (DX=adeno). Follow-up CT scans have caused great anxiety. The first, six months after my surgery, showed enlarged lymph nodes in the mediastinum and a new 3-4 mm nodule in the right, upper lobe. A PET scan indicated that the lymph nodes were not cancerous, but could not determine the status of the nodule because it was so small. The results of the next three CT scans were good: the lymph nodes had become alot smaller (normal) and the nodule remained stable. The most recent CT scan in the beginning of this month, however, indicated a new 4 mm nodule had formed, a finding that my oncologist termed "worrisome." After consulting with my local surgeon and with one at Memorial Sloan Kettering (I want to stay ahead in any decision making! Read: very nervous), I have decided to wait and get another CT scan in May. If the nodule grows, I'll have surgery again (ugh); if it doesn't (lets hope for this outcome), I'll wait another 3 months...and get yet another CT scan. (So Dave, I can appreciate the anxiety you're having now. Unfortunately, the fear of recurrence will be with us all for awhile.) This is a long-winded way of saying that screening does work!! I was lucky that the first nodule was found early, that my MD had all smokers have a chest x-ray as part of the annual physical and that the CT scans have picked up potential problems early! (Too many LC survivors only have chest x-rays as part of their follow-up!) And Dave, I also agree with you when you say you "feel unworthy of even being associated with lung cancer." I haven't had any chemo or radiation so I can't fully appreciate what others are going through. I guess I feel a little guilty....and I am also a little reluctant to respond to many of the posts although I am rooting...and praying for... everyone of us here.
  12. Screening is an absolute must, especially for those at risk for LC. My own story supports this. (But I know of people at risk for LC who did not sign up for the free screening via low dose spiral CT scans in NYC. And I don't know why.) I am another Stage 1a LC survivor. My nodule (~1 cm) was picked up on a chest x-ray that my then MD ordered as part of my physical. My surgery to remove the lower right lobe was on March 21, 2001 (DX=adeno). Follow-up CT scans have caused great anxiety. The first, six months after my surgery, showed enlarged lymph nodes in the mediastinum and a new 3-4 mm nodule in the right, upper lobe. A PET scan indicated that the lymph nodes were not cancerous, but could not determine the status of the nodule because it was so small. The results of the next three CT scans were good: the lymph nodes had become alot smaller (normal) and the nodule remained stable. The most recent CT scan in the beginning of this month, however, indicated a new 4 mm nodule had formed, a finding that my oncologist termed "worrisome." After consulting with my local surgeon and with one at Memorial Sloan Kettering (I want to stay ahead in any decision making! Read: very nervous), I have decided to wait and get another CT scan in May. If the nodule grows, I'll have surgery again (ugh); if it doesn't (lets hope for this outcome), I'll wait another 3 months...and get yet another CT scan. (So Dave, I can appreciate the anxiety you're having now. Unfortunately, the fear of recurrence will be with us all for awhile.) This is a long-winded way of saying that screening does work!! I was lucky that the first nodule was found early, that my MD had all smokers have a chest x-ray as part of the annual physical and that the CT scans have picked up potential problems early! (Too many LC survivors only have chest x-rays as part of their follow-up!) And Dave, I also agree with you when you say you "feel unworthy of even being associated with lung cancer." I haven't had any chemo or radiation so I can't fully appreciate what others are going through. I guess I feel a little guilty....and I am also a little reluctant to respond to many of the posts although I am rooting...and praying for... everyone of us here.
  13. Judy Great news!!!! Nancy
  14. Welcome to this board. I found that my tinnitus slowly lessened to the point that I now rarely have it. Hope yours completely disappears! Nancy
  15. Hi Jodi Margie Levine who wrote "Surviving Cancer" (a great book) is a survivor of mesothelioma. She has a web site (www.margielevine.com) where you can contact her. She may be able to give you somee guidance. Good Luck!
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