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beckyg

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  1. Here is the picture for those who may not have seen it. Taken in September 2003. Curtis
  2. This is Curtis writing, of course, but I knoe Becky's password. So let me start by quoting her first post here: My name is Becky. I am 30 years old and have never smoked. I was diagnosed with NSCLC in January (2003) after complaining of a cough that would not go away. They orginally thought it was stage II, even after multiple scans, and I was scheduled for a lobectomy on Valentine's Day. When they had me out on the operating table, the biopsied my mediatinal lymph nodes and found cancer there. The plan at this point had been to just sew me up and send me to a medical oncologist. However, the
  3. I wanted to post one more time with Becky's login to show off that beautiful picture. We are doing okay. The memorial service was beautiful, including Becky getting to roll her eyes one more time as my father overdid it on his eulogy. The highlight was a slideshow that one of our cousins made of old family photos, which was projected onto the screen throughout. Is there a way to post files? It was in powerpoint, and I am sure that many would like to see it. Many great stories were told, like the first time she cooked for me I vomited for 36 hours. Or the time Katie locked Becky into her bedro
  4. I heard back from the research nurse at Mary Crowley late yesterday afternoon and he said that Iressa was not a problem for this trial--the only requirement is that I have to have been off Iressa (and all cancer treatments for at least a month. I asked him about the changing requirements that Cheryl mentioned, and he said that he knew there was a proposal for changing entrance requirements but he didn't think that it would allow samples to be taken fro inside the lung, but he would check on that. Becky
  5. I just e-mailed them about that. I didn't mention Iressa in my communications with them yet, so Cheryl's comment about Iressa was news to me. I hope it isn't a problem, but I fear it will be. I am off to talk to the oncologist about chemosensitivity testing before I go have my bronxchoscopy on Friday. It just makes so much sense to me and I am tired of taking chemo that doesn't do me any good. I'll let you know what he says. Becky
  6. I am looking into this one too. I contacted th Mary Crowley Medical Cetner in Dallas about the GVAX trial. I was inelgibible for it, but thy proposed this one to me, and it looks like it may be a fit. I am in the process of gathering records for a consultation there with them. Becky
  7. Curtis and I are planning to be be there. We have family in town so we should have a place to stay, btu I am really looking forward to meeting some of you people. Becky
  8. Guest: I agree that it is disturbing how little progress has been made with all the money that has been spent. I know i have a strong bias, but I am really unwilling to agree with you about putting all the eggs in the prevention basket. I never smoked. I was 30 years old when I was diagnosed. Nobody would ever have considered me "high risk" for cancer, especially lung cancer. So my only hope is cancer research. I think the problems with cancer research are the ones brought up in the article--too much effort is focused on very small improvement; not much is being done looking at the big
  9. Heather, The article made me think the same thing. I am on a mission this afternoon to find out more about cehmosnsitivity testing. I hadn't been very interested befreo because I have had so many chemo drugs now--it didn't seem worthwhile to pay for someone to tell me that none of those would work on my tumor since I already know that. But if one of those labs will test my tumor and find a combination of 5 drugs that will work--that would absolutely be worth it. Becky
  10. Curtis picked up Fortune magazine yesterday at Wal-Mart--the cover article is something like "Why we are losing the war on cancer, and how to win." In some ways it is a pretty depressing article--it basically says that apart from a few kinds if cancers (mostly childhood cancers and leukemias) most of the improvement in survivial rates across the board for cancer in the last 30 years has come from improved detection. In 1970, about 50% of people diagnosed with cancer lived 5 years. Now that number is up to 63%, with most of the difference being people diagnosed earlier than they used to be.
  11. Clarification--he never said that it is rare for people to get fibrosis, but that if it were fibrosis, the steroids shoudln't make much difference. I notice a big difference in my breathing between 10 mg a day and 20 mg a day of Prednisone, which he said points to inflammation (pneumonitis) rather than scarring (fibrosis).
  12. I took yet another trip to Houston yesterday, this time just to see my pulmonologist--the only one of the many doctors I have seen in the big city that I care to see again. I saw him in January after I had to go to oxygen 24/7. He set me up with a nebulizer in and attempt to get off the Prednisone--he ordered liquid steriods for the nebulizer, and said that I should be able to drop the prednisone and still get more steroid help directly to my lungs, rather that coursing throughiut my body. SO that worked great, for about 2 weeks. I cut the prednisone down; the breathing was improving--I s
  13. I have written my diagnosis story more than once on this board--I think it is on the Welcome section somewhere. But in the last year I have thought a lot about symptoms that i had been having for several years that are now explained by the lung cancer. I had bronchitis at least twice a year every year--doctors treated it and told me I had seasonal allergies. I live in a pine forest--it seemed reasonable. I have been shorter of breath than the people around me for at least four years. I wrote it off to the weight I gained in graduate school and to not exercising like I should. I have a se
  14. Angie, I like the idea of thinking of the oxygen as another prescription drug. I have been on and off oxygen since July. More time off the oxygen in those months than off--so also keep in mind that as his bronchitis clears up, he may not need the oxygen anymore. But even if he does, you learn to live with it. I can't walk as quickly as I used to, and there are days when I get really frustrated with that tube following me all over the house and the noisy cart I have to drag around at work (Just once I would like to sneak up on someone again!), but without the oxygen, I wouldn't be at work
  15. Oh, how often I have seen this story in real life.
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