raneyf
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Posts posted by raneyf
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Sorry to hear this news Trish. Hang in there.
Raney
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I'm sorry to hear you guys are having such a hard time. I'm glad he's feeling better though. Take care,
Raney
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I'd say a big "Thanks Mom!" for sure. It always feels good to be doing something against the stupid cancer. Take care,
Raney
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Just a thought that you might want to apply for Social Security disability if you haven't already. That may help you guys some. I qualified with no problem.
Raney
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I'm so sorry for your loss. Tony was an inspiration and you exemplified a loving caregiver.
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I haven't had one yet, it's scheduled for 10/15. That will be about 6-7 weeks. My doctor said 6 weeks was about normal.
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I'm interested in a vaccine trial at Mary Crowley for Stage 4 patients. I'm looking into it, but haven't called yet. Maybe it's worth calling about? Sorry about the progression. Of course there's also the dca thing I suppose.
Raney
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Hi, nice to meet you. I was diagnosed officially on October 14th, although in hospital on Oct 13 with a pretty good idea of what was going on. Kind of strange since I'm 31 also. Glad to hear of your wife's recent stable scans - hopefully many more to come. Have a great party - my sister's getting married 10/20, so I'll save our celebrating until then!
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I'm glad you had a great summer and will have some time off.
Take care,
Raney
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Stable is great! Have a fun birthday dinner and party. Happy 35th!
Raney
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Congratulations Bucky! Here's to another 5 years.
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I know what you mean - I feel like it's been 10 years since I was diagnosed, but then I look at the baby and can't believe he's 1! I'll be praying the Tarceva's working. It's got to work for one of us.
Raney
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My first day off decadron I had a horrible headache and started throwing up. They had me come to the ER for a quick scan and then gave me more decadron. I'm still tapering off of that, down to 1/2 mg per day. It was really no fun, so you might want to call the doc. Once I got the decadron and some Zofran and Morphine, I was o.k. and released that same day. I hope you feel better.
Raney
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Sorry Lilly, Not the news I was hoping for. I don't know about Alimta, but I hope you're one of the people it's easy on.
Raney
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I was on 600mg ibuprofen every 4 hours, +20mg of the long acting oxy 2x per day, with the 5mg breakthrough pain tabs of oxy used sometimes too. It was from bone pain in my left hip and spine.
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The radiation would be for her spine or other bone mets that are causing pain. It wouldn't be to cure, but to alleviate the pain. It worked 100% for me. I don't have to take any pain meds now, so it's worth asking about.
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I don't have any great suggestions - I'm assuming he's not anemic. I've heard people say a "little" exercise helps sometimes, but I don't know if that's feasible. Maybe just a walk around the house or something. Are they trying to take him off the steroids and tapering him? Maybe that's contributing? Is he eating well? Just brainstorming, sorry not more helpful.
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Has anyone offered her radiation for the bone mets? That helped me 100%.
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I am grateful that I started chemo today and I think it's working. Is it possible I feel better already? I think I do and I'm going with it!
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Glad to hear from you. I've been wondering how you've been. Wedding is right around the corner. Exciting times. I was a mess befor our wedding, so I imagine Julia is stressing. Keep helping her out and have a great time.
Raney
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I feel like Debi. I need to help them hurry up and grow up and function without me. I try to write letters and stuff but it's so hard and feels like I'm giving up. It's also weird in my head - like everyone I love is dying, not me - so I'm grieving for them everyday and my heart is breaking everyday. I'm not withdrawn like you describe - I still talk and communicate, but maybe that's a female thing. I just thought I'd give you some perspective from a patient also. I'm sorry it's so hard. I'm so sorry for all my loved ones and caregivers too.
Raney
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I had a bad reaction too. They switched me to Abraxane which had no problems. You might ask about it. I know the reaction is scary. Sorry you had to go through that.
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I'm so sorry Jill.
John
in GRIEF
Posted
I'm so sorry for you and your children. I never expected to read this today. Praying for peace and comfort for your family.
Raney