raneyf
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Posts posted by raneyf
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Hi Yirol,
Stage IV's can fly, but I'm not sure if your dad can fly. It is dependent on their overall health I believe. I've been flying all over the country, but my performance status and lungs are very good. Good luck to your family.
Raney
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Hi Kim,
I'd been wondering about you guys. Glad Mike is doing well.
Raney
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Congratulations on getting your surgery! I don't have any advice, but I'll be thinking of you on the 29th and will say a prayer for a fast recovery.
Raney
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It is absolutely unbelievable to me the things people have to go through to have a slim chance to live. I'm ashamed that I never realized it until living through it. Now I wonder what happens to people that don't have knowledge or resources to get lawyers and media attention. I'm convinced my insurance company just wants me to hurry up and die. Too bad for them, I'm a little bit contrary!
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Hi Bucky,
I don't know anything about WBR, but I'm happy to hear you sound so much better after your meeting with the docs. Good luck that this will be a great success. Have fun with your family in town.
Raney
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Prayers for babies - Good due date, by the way. I'll be turning 31 and celebrating like I've never celebrated a birthday before
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Hope this chemo works for Karen. Can someone help give you a break with anything? I can still care for the kids and my house and myself, but sometimes my mom will stop by and get the kids breakfast, or my grandma will come over and help with laundry. Maybe someone just needs to be asked? I'm sorry you have such a large load. I'm sorry if there's no one to help you. My family is so great - I don't know what we'd do without them.
As far as ice cream for all meals, my son would drive me nuts because of the sugar! He'd be bouncing off the walls!
Prayers for this to turn Karen around.
Raney
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Hi Wendy,
Thank you for the info. I'll double check the Prilosec at the next appt. Seems like there's always something!
Raney
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Wendy,
What's the story with antacids and Avastin? I've been on Prilosec throughout treatment and hadn't heard of this. Thanks for your help.
Raney
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Glad to hear you've been feeling well. If you have to change your treatment, you'll be fit, otherwise healthy, and ready to go. Praying you'll get a good surprise though.
Raney
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Great News! Have fun at the party.
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I had palliative radiation to my hip over a two week time period. It made me exhausted. I fell asleep sitting on a couch at my husband's grandmother's house - a place where I don't feel entirely comfortable and would never have done that if I wasn't so tired. I also had to force myself to eat. Had no appetite at all. This was during a period where I was relatively stable cancer-wise. So, I guess some of her appetite and fatigue could be radiation related. I don't know about the other symptoms - my radiation was nowhere near my chest, so that may be different. Best wishes for your MIL to get some pain relief and sleep and for your whole family.
Raney
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Hi Heather,
I don't know where you're going, but doesn't Baylor have a major cancer center in Dallas? Also, I wouldn't worry about the surgeon's words. He's calling the "mass" a "tumor" still, and it sounds like "something" is still there maybe. He can't know if it's tumor or scar tissue or whatever, without a PET at least to help guide him. Praying there's nothing left of it for you.
Take care,
Raney
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I think it's called something like "Interstitial Lung Disease." Hope that helps.
Raney
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Hi Everyone,
I have a question about a shoulder pain I'm having. It began 2 months ago and has not gotten any worse. I've had a CT since the pain began - The CT showed my thorax clear except for my primary, which is smaller than when chemo started. I talked to my doctor about it, and we decided to wait and see how it does. I should be having a PET in 4 weeks.
The shoulder that hurts is the same side as my primary. It doesn't hurt at rest, doesn't wake me up from pain, doesn't really feel like my bone mets felt. It hurts to raise my arm, and it hurts to lay on that shoulder initially, then it will feel like it stretches and it's o.k. I don't need painkillers for it. The pain when it does hurt is on the top and front of my shoulder. The only theory I've got other than cancer is that I carry the baby with that arm only, because my port is on the other side. Or maybe Avastin joint pain, that some people report having?
Does anyone else have any ideas?
I appreciate your help,
Raney
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Hi,
I responded well to Taxol/Carbo/Avastin. Switched from taxol to Abraxane because of an allergic reaction during my 2nd infusion, but it's pretty much the same drug. I could tell it was working after my first infusion, I just felt better. I never had a problem with my appetite except for a couple days following treatment. I had some constipation and general nausea that made me not want to eat a whole lot, but that didn't last long. I got a little bit more tired as treatment went on, and after my 4th-6th cycle had to have someone help me with the kids the day after chemo. Other than that, I still was up early in the am and to bed at around 10pm. Hope your dad does well.
Raney
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I think the book is a great idea and would be happy to help with the project, but not sure how to get started either.
As far as what to include, maybe we could look at the Breast Cancer book and see how it was handled in there. Not saying we should just copy that, but maybe there was a good way it was handled. Divided into two sections, somehow otherwise combined, not combined at all? It would give us some ideas at least.
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Yes, thank you Don. I hadn't heard of that, and it made my week at least. Sometimes I feel like I just need to know I have a chance, and today I feel like that.
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Hi,
I'm fairly sure Gemzar and Gemcitabine are the same. Carboplatin and Cisplatin are different. I believe Cisplatin has more side effects but slightly better survival in earlier stage LC. I think the survival benefit of Cisplatin over Carboplatin at Stage 4 is negligible. I think I read that somewhere on Dr. West's onctalk.com site. You might want to look there. Hope that helped a little.
Raney
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You probably know the B.R.A.T. diet? Bananas, Rice, Applesauce, Toast? That's what I feed my kids when they've got stomach issues. Hope to help.
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Good news - Hope mom's there for many more milestones!
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At Stage 4, they wouldn't usually be doing radiation for curative intent. It would be to alleviate a problem of some sort, I believe. Is he concerned about the location of the tumor obstructing her airway, or interfering with something else? It would be my guess that is the case, and maybe that information would help you make the decision.
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I would call the finance offices of the centers you'd be interested in going to. Explain the Canadian insurance thing and ask them what others in your situation do. Sorry, I don't have any answers, but that would probably tell you what you're looking at the fastest.
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My doctor suggested Metamucil, multiple times per day, to bulk up stools - Same as Becky. I was also taking imodium as often as needed and managed to control it with 1/2 to 1 pill a day. I'm not sure if that is the same as the medicine he's already taking? Sorry not more help.
Raney
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6 Weeks After Chemo and the Results Are...
in HOPE
Posted
Good! I'm slightly shrunken or stable via CT on Avastin only! Praying for lots more of these reports because this drug is so easy. I just feel normal. My one problem is feeling short of breath and trying to yawn - Anxiety probably. Just started 2 days ago. I'm trying to calm myself down. My doctor's positive there's no medical reason for it. Praying for us all...
Raney