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tpmaudio

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Everything posted by tpmaudio

  1. Am I correct in thinking that the doctors most important priority should be the really bad symptoms (i.e. productive cough, breathing, etc) and not necessarily the cancer. Or is that not the normal approach? My father is constantly gagging up mucous when he coughs. Anyone seen this. Somewhat normal in advanced lung cancer?
  2. We have a doctors appointment this afternoon, so hopefully we can ask the right questions, express our concerns, and move in a positive direction. Again, I appreciate everyones response.
  3. Thank you all very much for the quick posts. This is a wonderful site and you are all such great people to dedicate your time to help others. This is how I feel as well. I feel al ittle like nothing much is eing done. I feel as f the doctors have forggten about it as soon as we walk out the door. During the visits, I feel like we ask the correct and important questions, but feel as if we are getting blown off. I would like to see another doctor but I am not sure how to go about it. This group has the best reputation in the area and is affiliaed with a major cancer center. My father does not have the strenght to travel right now, nor do we have the time to get in with someone like Sloan Kettering, etc. When we called them to setup a second opinion, it could not be scheduled until early next year. Would not consult and we had to travel to NY to even see a doctor. We are a little lost and unsure what to do next. We know how we feel, but options seem very limited.
  4. My father was diagnosed with Non-Small Cell Lung cancer a few weeks ago. It is in fairly advanced stage (Stage 4). However, I am just amazed at how quickly the symptons came on and his health went south. 3 months ago, he was running 2.5 miles everyday (which he has done for over 30 years). The he got what he thought was a sinus infection. A week later it moved to his chest. A week later he developed a really bas cough and went to the doctor. He was given antibiotics anddiagnosed with Pneumonia. After 10 days of that...with condistions getting worse, I took him to the ER. Withing 2 hours, he was diagnosed with lung cancer. Since then he has lost all energy, always coughing, not sleeping, struggling to eat, cannot breath very well, and the list goes on. We are at a well known cancer center now and just begun treatment last week. He is on a clinical trial (combining chemo with Avastin and one otehr drug). He seems to be continually getting worse and the family is very scared and confused. Is this normal? does it get worse before it gets better? I understand that it is not curable at this point. Hoever I am concerned with qualit of life. He is miserable. He apparently has a great deal of fluid that is bulding up around the lung and the doctors seem a little confused about what to do. He is not in a state that we could take him for a second opinion, so that is out. The fluid was there when diagnosed but started build rapidly after first chemo treatment. Could this be a side effect of chemo? we have yet to get answers from the doctors. Just today, he was lying on his side, his throat closed up and he passed out. My mother found him a minute later and was able to sit him up to here he could breath. It just all came on so fast. The family has had the conversations together and with him and we are ready to fight this thing...but we feel like we cannot even get to that stage yet. It seems like 1 step forward and 3 steps back. I want to get on the phone with the doctors and demand info and ...what I feel...better attention. However, I am concerned I migh be over-reacting. Maybe this is normal and they are not concerned. I also need these doctors on out side. I am mainly venting here and I appreciate anyone who has taken the time to read this. We all want my father to be able to live again, even if that is for a shorter amount of time than was the original plan. Any feedback, insight, or support would be greatly appreciated. We feel very lost in this entire process and cannot seem to find the what to fight first or how.
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