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Susan_Xu

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Everything posted by Susan_Xu

  1. Ernie: I know you can beat it.
  2. My dad developed rash all over his body and swollen in his feet and hands. After a month, they were gone.
  3. After 8 rounds of chemo therapy, my dad is now on Tacerva. Last week (the 3rd week) he had a CT and blood test. The CT showed the tumor in his lung is stable, however, the blood test of CEA is not good. It is higher than before. Now it is almost 76. The normal level should be less than 5. He is very upset. My dad has whole body rash after taking tacerva and swollen of his fingers and legs. His doctor does not sure Tacerva is working. Want to do another test in another 2 weeks. If still not good, will do PET. Unlike here in the states, Tacerva and PET are covered by insurance, in China patients have to pay them from their own packet. It is very hard. Susan
  4. Thanks. Dr West for your view. I will keep you guys updated if any impressive stories about taking DCA.
  5. Thanks for your replies. The reason I asked because in China a lot of LC patients and family memembers are trying this new treatment or whatever it is. And I did some research and found it is not FDA apporved. I want to warn them about taking this drug, but on the other hand, for most of us, there is not much to lose after all of available treatments run out. We are trying desperately to save lives of our beloved.
  6. Anyone have heard about this new treatment? http://thedcasite.com/
  7. I am so so sorry for your loss. Susan
  8. Susan_Xu

    A Great Week

    happy birthday and have fun.
  9. I am so sorry for your loss. I hate lung cancer!!!!
  10. Thanks for your reply. I hope in the near future, this new technology will be applied to advanced lung cancer.
  11. Anyone has any experience about Proton therapy? I was told that proton therapy is only applied to Lung cancer without Mets. But I was also told by my cousin who has some knowledge of medical equipments that proton therapy might be good to bone tumors. Thanks.
  12. My dad is doing good so far with all the chemo and the endostar. He is still strong and energetic. So based on his condition, his doctor wants to do two more rounds of chemo in the next two months. And then he will receive it every three months. We do not know how Endostar is working on my dad's cancer since he just started the new treatment 2 months ago. But my dad's doctor told me that most of cases Endostar is not working, but if it works, it works very good. I will keep you guys updated.
  13. Thanks for your advice. We will seek more consultation. At the same time my dad is receiving a new drug called ENDOSTATIN every month with chemo.
  14. My dad had six rounds of chemo(taxol) and is doing fine. The tumor is under control. His oncologist told us that my dad needs two more rounds of chemo and then chemo every three months. Anyone has any advice on what the next step would be after six rounds of chemo? Thanks.
  15. Frank, I miss you....... Susan
  16. Thank you very much for your update. I am always wondering how you are doing. You are the toughtest guy I have ever met. I am praying for you. susan
  17. It happened to my dad's case too. He was told by a doctor in the CT office that the tumor is gone totally. We were so excited although a little bit doubt at the result. However the next day when we met the oncologist and was told the tumor is still there, but much small than before. If time could go back, I would devote all my life and efforts on the cancer treatment. Susan
  18. I am in, I will fill the form this weekend. Good luck to you.
  19. I am so sorry for your loss although it took me few minutes in opening your message. I know I would cry when I read your message. Please take care. Susan
  20. Yes, we will consult with my dad's phycian. But I just wonder if the chemo works for the main tumor, why it does not help the secondary tumors. Should he take Iressa to stop this monster?
  21. Thanks. He is on Zometa once a month. He had one radiation on his spine. But nothing slows the tumor. What else?
  22. This board has been so much help during this difficult time of my life. I do not remember one single day that I do not check this board. My dad was diagonsed with NSCLC last Septmeber with mets to rib and spine. He has gone through 4 rounds of chemo(toxel and Cisplate?). The latest CT scan shows the primary tumor has shrinked almost 80% which is good news for us, however, it looks like the chemo does not do any good to his rib and spine. They are getting worse. One of the doctors said we should stop the chemo since it does not work for the tumors on bones. And it seems there is nothing we can do to the bones although my dad does not feel any pain at all. What should we do? I am so scared that I might lose my dad to this horrible monster. Any advice? Thanks. Susan
  23. Thank all for your reply. It looks like this new treatment is only available in China and it is a very very new and very expensive drug. I will keep you guys posted. I could not reach my family in China due to the earthquake in Asia last week. I will go back to China for a visit in Febuary. If any of you are interested in any herbal medicine, I might be able to get some there. By the way, today I order a one-year-supply of AHCC. Susan
  24. My dad who was diagonsed with NSLC 4th stage last septmeber has started a new treatment with Endostatin in China. He has gone through 4 rounds of chemo. The recent CT shows the main tumor has been in remission. Anyone has any experience with Endostain? Susan
  25. It sounds weird. Peanut coats will help increase platelets. 1. take peanut coats (the red thin coats)out from peanuts. 2. mix with water and boil it for minutes until the water becomes red. 3. taking out the peanut coats out of water and drink the water. You should drink one or twice a day. The taste is not good, but it helps. It is a way to increase your platelets in Chinese traditional medicine. Susan
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