karenlaureti

Dar, Listen to me. I just went through the exact same thing with my Dad. He was taking the Irinotecan same as your mom and had another spot grow on his liver. I now have him back at John Hopkins where he will begin a clinical trial on Monday. Don't give up hope, there is always something else. Find out about the really good cancer treatment centers like Sloan Memorial or John Hopkins and get her there. They are all doing some very amazing things. In the meantime, I will let you know how my Dad does on this clinical. Many prayers to you and your mom!

Hi Jon, My Dad has SCLC and was diagnosed back in November 2006. His has also come back and he is now at John Hopkins in Baltimore to begin a clinical trial. He tried the CPT11 but it is not working. We are hoping from the best for this. There are always alternatives. Stay positive.

My prayers go out to you! I am so sorry for your loss!!!!!!!!!!!

Well, First let me thank you all so much for your prayers! We begin again, another hurdle. My Dad's scans came back and the chemo is not working (Irinotecan). He has two more spots on his liver and the nodes have grown a centimeter. So, My parents leave for Baltimore this week where he will begin a clinical trial at Hopkins. The Oncologist there is so wonderful! Pray for us again! I am fortunate that Baltimore is only 2 hours away from me, so I will be there a lot. Best to all!!!!! Hi All, My Dad is having a full body scan done on Monday. He has received 3 treaments of Irinotecan and we are hoping that The two glands up by the lungs, the two spots on the liver, the spot on the spine, and spot on hip are all gone! Or at least smaller! Can you all please say a prayer on Monday for my Dad, Ron Smith. Dad: Diagnosed Limited stage SCLC in December 2006 Did aggressive chemo and radiation to chest. PCI done in April 2007. Remission! Then the Cancer came back in June 2007. Taking Irinotecan every 3 weeks. Thank you all sooooo much! _________________ Karen Laureti Praying for my Dad (my hero) every day. Dad: Diagnosed Limited stage SCLC in December 2006 Did aggressive chemo and radiation to chest. PCI done in April 2007. Remission! Then the Cancer came back in June 2007. Taking Irinotecan every 3 weeks. Last edited by karenlaureti on Wed Aug 29, 2007 9:30 am; edited 1 time in total

Many prayers for your sister!!!!!!!!!1

I am so sorry! I'll pray for you and your family!

Hey, We are here for you, and I know exactly how you are feeling and what you are going through. It is really great that it is limited! Best of luck!

Well, First let me thank you all so much for your prayers! We begin again, another hurdle. My Dad's scans came back and the chemo is not working. He has two more spots on his liver and the nodes have grown a centimeter. So, My parents leave for Baltimore this week where he will begin a clinical trial at Hopkins. The Oncologist there is so wonderful! Pray for us again! I am fortunate that Baltimore is only 2 hours away from me, so I will be there a lot. Hi All, My Dad is having a full body scan done on Monday. He has received 3 treaments of Irinotecan and we are hoping that The two glands up by the lungs, the two spots on the liver, the spot on the spine, and spot on hip are all gone! Or at least smaller! Can you all please say a prayer on Monday for my Dad, Ron Smith. Dad: Diagnosed Limited stage SCLC in December 2006 Did aggressive chemo and radiation to chest. PCI done in April 2007. Remission! Then the Cancer came back in June 2007. Taking Irinotecan every 3 weeks. Thank you all sooooo much!

What a beautiful tribute to your Dad. He will be very close to your heart!

I am so sorry you are going through this! It is so hard on all involved, my dad has extensive small cell lung cancer also. I don't know about the questions you have asked, but I do know that topetecan is very good. My prayers are with you!

Hi. My Dad also has SCLC. He went through all the radiation and chemo as he was limited stage. He then went through the PCI. I am not a dr., but since she has gone through all that, I would focus now on the PCI. It never hurts to get a second opinion though, which we did with my Dad. It gives you piece of mind and helps to know that you are making the right decisions. Everyone is different with this, some people stay in remission, some get it back. I hope and pray for your mom that it stays in remission! I know what you are going through. Have hope! Ask tons of questions with the Dr. No question is stupid.

My Dad had PCI back in April of this year. So far, so good! I am so glad he did it!

I was feeling just like this the other day, and you are not a BAD mom. You are a great mom, and you are normal and have feelings and no mom is perfect. We all have reactions to certain things at different times during our lives and sometimes life is just more difficult. I am trying to do the one day at a time thing and to live for the moment, instead of getting ahead of myself now. Try that. And, go out with some friends to have girl talk one night. I am sure your husband would be supportive for you to get some down time! Prayers go out to you for your family and Dad!

Just so scared out out of sorts lately. My Dad now has extensive sclc. two spots on lung, two lymp nodes, spot on spine. I had gotten him into John Hopkins and he was there a month but unfortunately was unable to do the clinical trial and is now taking CPT11 every 3 weeks. My Dad's oncologist is stating that he has at the most 6 months, no more than a year (I have hope most of the time and don't go by this). It is so wierd though, I feel like thisis all happening around me but yet, I don't want to believe it. I put it in the back of my mind and never ever would cry in front of my parents. It is so hard too because they are 15 hours away from me. Sometimes it is so hard to just work during the day and think straight. I guess I just feel so helpless. He has another scan done at the end of August. I am praying that the chemo is doing its job. I hate this disease!

Hi, I am unsure of this type. My Dad has SCLC and has now become extensive with small mets to the liver and lymph gland. He is taking CPT11, only every 3 weeks. Good luck. I know how hard this can be!

I just had the chills run through me! How beautifully put about his life. Oh, I pray for him in heaven! God Bless

Oh Terri, I have been out for about a month dealing with my Dad. I am so sorry! He was truly an inspiration to all of us, and his life lives on within you! I thought he was an absoultely incredible person. Many prayers and hugs your way!

Hi all, I haven't posted in such a while, and wanted to update everyone. I am so sorry, there is so much you miss in two months with everyone and I give all many prayers! So, 2 months ago my Dad's cancer came back, found a spot on liver, spot on spin, spot on hip, and also two lymph glands in his bronchial tubes. The worst part is that the sodium level really screwed him up. He has gone from 220 lbs down to now 170 lbs. One of the struggles was getting him out of Hilton Head Hospital and into better care. So, I perservered and with the help of someone I know on the board for John Hopkins, I got him to Baltimore! Now for the last month he has been in Baltimore. Was going to start the clinical trial, but then he became dehydrated with high white blood cell counts, so he is not taking Camptosar. Has anyone else taken that? Any input. I am praying that when he goes into Hopkins today for evaluations, he will show good blood stats and can go home. The moving around has been so stressful on him and "there is no place like home" especially if we know the kind of treatment hopkins is giving him, he can get back home. Please say some prayers for me. What a roller coaster. Dad diagnosed with limited SCLC in November 2006. In remission in April, cancer came back beginnning of June.

Hi all, O.K., so My Dad is in the hospital since fRiday. Low sodium started again (this is how we found out in Dec. about his SCLC). So of course we are scared, he gets admitted, sodium is going up very low. Took off IV today and now using a special pill for this. They have found a .5 centimeter spot on Liver and two glands near heart. So, we are going to begin new treatment plan shortly but first, need him to build up his sodium level again. So, he is in Hilton Head Hospital for this treatment of the sodium, and his radiologist and oncologist met with him last night to explain where the cancer is. I am scared, but really feel he can fight this too! I have read so incredible stories here and although I am so sad that he has to start again, I know there is hope! Anyway, my sister is freaking saying we need to move him out of this hospital, and my husband and I are thinking that we really should keep him where he is until the sodium level is up and he is not as weak, then start to treat the cancers. I know it is not a cancer hospital, but an endocronologist is working with the sodium and in touch with the radiologist and oncologist. In other words they are working together. This is hard as I am not out there. Any words of wisdom?

O.k., anyone here that has had low sodium for SCLC? How was it treated. We are dealing with this with my Dad and it seems to move up very slowly!

My Dad has SCLC and was diagnosed in December of 2006. I am not aware of the Brain Mets, but I know people here who have had this and you can speak with them. Look around at the messages, there is so much support. I know how hard this is sometimes and it can be like a roller coaster, but you couldn't find a better place for support!

O.K., so I just spoke with my Mom and Dad as my Dad had a hernia surgery just recently done. On top of everything else. And while the surgery was being performed they found two polyps in his throat. Not usre exactly where and now he is going for testing on that next Tuesday. Anyone here of this? Any insight would be greatly appreciated. Boy, this can be a roller coaster sometimes, just when I think things are going so much better for him. Thanks everyone!

Oh Rochelle, I am so sorry! May God give you and your family peace in this time.

Hi Aubree! My Dad also has SCLC Limited. Are you sure they staged his cancer? Because Small Cell Lung Cancer is either limited or extensive. Anyway, I just wanted to tell you that My Parents live 14 hours away from me too. It has been difficult, but I believe that you will be amazed at the strength you will get for your Dad. I am a super sensitive person and my Dad is everything to me, yet, somehow when I speak with him, or am around him, I become a stronger person, like god knows I need to be. Try if you can to visit every couple months as this helps a lot. When I see my Dad and go visit, it puts me at ease. I know what you are feeling and will pray for you and your family. E-mail me anytime if you want.

Hi Joann, Welcome. There is so much you can learn and so much positiveness here. I wish you all the best. E-mail me any time.