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bbear

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  1. bbear

    DCA

    I'm sure that a lot of you have read about this in the last week--if one were interested in getting dichloroacetate--where do you go (yes, I think we all know where I am going here)--If I am understanding correctly this is already out there and accessible--is it under some other name? We cannot wait.......
  2. Curious question, Has anyone hear been diagnosed after getting an early lc detection scan? If so, did they do the watch and wait or biopsy?
  3. Yes, he has started chemo--they are doing it every three weeks and he gets his second round of "juice"-his words (he's really funny) this Thursday--they tried him on a clinical drug but he was not able to tolerate it--I am hoping that we do chemo get it under control and maybe surgery.....Not sure. Anyone else know about this chemo every three weeks business...aggressive enough?
  4. I am not really sure how to start this..Today, I finally get the courage up and put 2 posts up--one about my 2 tiny little nodules and 1 about hereditary lung cancer--I have gotten replies back from the most wonderful people going through so much more than myself. My brother, who was just dx w/stage III lc 6 weeks ago calls me tonight and he ends up making me feel better. There are miracles and they happen every day...Just Believe!
  5. I know, my mom said she didn't think four different drs would tell me not to worry about them if there was something to worry about--thanks for your help fred
  6. Ernie, grandma and dad lc? thanks for your time all....
  7. I did have an appt with a pulmonary dr but cancelled it after I talked to my brother's oncologist that specializes in lc...He knew the family history and wasn't concerned about them but can't help but worry....thanks so much for everyone's time...
  8. Hi all--so little information is out there about this but I was wanting to know if anyone had any thoughts on it--my father (age 57) had it and my brother was just diagnosed with Stage III (42). Is this more prevalant passed from female to female or male to male? Or does it even matter?
  9. Hi Fred-- I've been reading your posts for a couple of weeks--nice to meet you! Not sure on the calcification--indeterminate was the only thing that I read (honestly, I was too stinking scared to look at the report because I like to self diagnose.....)--I did feel better after my brother's oncologist looked at the report and wasn't concerned but...... Ps--Is this on the right board or should I be elsewhere?
  10. curious, why do they biopsy or remove some 7mm nodules and others they watch and wait? Thank you for the thoughts on my brother....I have to tell you after losing my father, we never saw that one coming with my brother.....
  11. Hi all--I have been "lurking" for a couple of weeks and thought I'd come out! (thanks nikkala for telling me how to post!) Long story short, somewhat--my father died from lc in 1986, my brother, 42, was diagnosed with Stage III lung cancer 6 weeks ago. (I am 37 mom of 2) I since then have gone to my dr, expressed my concern about family hx, smoking, etc--she sends me for x ray--it comes up clean. I get on internet and it says x ray no good--do spiral ct scan--which I do (pay for out of pocket, since ins won't cover, no symptoms, don't tell my doc cuz I don't have to can do it all on my own) Diagnostic imaging center says nothing about how common nodules are, guess who has nodules??? Me and I freak out. My dr gets report and says that I have two nodules, one on each lung upper lobe and she is not concerned at all, radiologist was not concerned either said come back in 4-6 mos and just check them. I continue to freak out and another dr in my gp's same office looks at report and said she doesn't feel that I have anything to worry about, still I am a mess and she sends me to go get another CT scan this time with contrast--radiologist did not do it--said they were small (less than 1 cm)and he was not worried about them either--per radiologist tech (yeah, I know)--if a radiologist saw something alarming they would send me straight to pulmonary dr--they would cover their a## beings how I was there for early lung cancer detection--ok here's where the neurotic part comes in--a few of us nodule watchers on here may be able to relate....I called my brother's oncologist to get his opinion--First for this cancer center I'm sure that I want to make an appt with an oncologist and I don't even know if I have cancer...Well, this dr looks at the report and says he is not worried about it (fyi cool guy) Even if the report from the tech says indeterminate is there characteristics of nodules that make them lean more towards the benign side (besides age of patient)and make them wait and watch--Also--my doc said that it was almost better that there was two of them--we know that it has not metastisized from anywhere--so guess what guys--I am looking for peace of mind--I feel like I already know some of you from reading your posts and I have told my brother about it--lots of help and support here......
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