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fight

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Posts posted by fight

    Not Great News-Officially off of Clinical Trial

    in MEMBER UPDATES

    Posted

    Lily,

    I'm sorry to hear that the trial didn't work for you. Take heart and believe that Tarceva is going to work for you. Don't even question it. I'm am also on the verge of starting Tarceva. As many times as I can repeat it to myself during the day I say "Tarceva is working for me." Even though I haven't actually started it yet! I know two older gentlemen who have been on Iressa for over 2 1/2 years. Keep up the fight!

    Take Care,

    Rachel

    PET and MRI Results - Could be better

    in MEMBER UPDATES

    Posted

    Raney,

    I'm so sorry you got some bad news. Everytime I see your picture it reminds me of me and my family. We both have little ones that need us and when we get the bad news we have to pick ourselves up and dust ourselves off and try the next thing. I'm encouraged to hear you had some good news as well. That is what you need to focus on. You are young and can withstand many chemos. I hope this next one will be the one to get the results you need!

    Take Care,

    Rachel

    Appointment w/specialist

    in MEMBER UPDATES

    Posted

    Hello All,

    I had my appointment with the lung cancer specialist today and it went well. He didn't think that the progression was significant enough to change treatments. He explained that the Avastin could be working by slowing the tumor growth and may be keeping any new tumors from forming. The progression is in the area that the cancer is already in and there aren't any new areas of concern. He gave me three choices: Continue with Avastin, start Tarceva or start Tarceva with Avastin. With the fact the fact that I have been feeling good and enjoying a somewhat normal life I decided to continue with the Avastin alone. I will have another dose of Avastin in 3 weeks and then check my CEA and CA125 numbers. Although my doctor says that he would never base treatment on the tumor markers but if they were to become significantly elevated than that might be the cause for concern. I will then have another dose of Avastin 3 weeks after that and then re-scan. Whew! The roller coaster ride continues. I am so grateful for all of you who have given me so much support in this journey. Thank you for all your words of encouragement.

    Take Care,

    Rachel

    Latest CT Scan

    in MEMBER UPDATES

    Posted

    Hello All,

    Sorry I have been away from the boards for awhile. I have been enjoying a somewhat "normal" life lately and today I had my reality check. I got the results of my most recent scan and it showed some definite progression. The bold letters on the top of the report read: Disease Progression. And then of course all the medical terms describing every gory detail. I was expecting to have some more stability and I think the news caught me off guard. I started to cry and I couldn't stop. I think I have been holding it in too long and today was the day it had to come out. I really want to get to the point that no matter what the scan or report shows I will be okay with it and just be willing to start the next thing. I wonder if that's even possible? I will be seeing the specialist from Denver on Friday and then will figure out what the next plan is?

    Take Care,

    Rachel

    Don M update

    in MEMBER UPDATES

    Posted

    Don,

    I wish you didn't have to spend a second of your time on those darn insurance companies. They make me crazy too. Keep hounding them and have your doctor hound them too. They seems to get results quicker.

    Take Care,

    Rachel

    CT scan results

    in MEMBER UPDATES

    Posted

    Hello All,

    I had a ct scan the Monday before last and the nurse called me this morning with the results. She said that there was some slight progression in two nodules otherwise everything else was stable. I have been feeling pretty good lately and have been doing well mentally too. When I heard the word progression I got really quiet and then she asked if I was okay. I said "no I just want this awful thing to go away." The tears soon followed...I hate that! When I get angry or upset it is hard to recompose myself. The nurse was so nice and started telling me a story about a man who had three failed chemos and the fourth one he was trying was working. I'm not sure if that made me feel better or not? I will meet with my local oncologist next Monday and go over the scan and then have an appointment with the lung specialist at the end of this month so he can tell me what the next step is. I feel good right now and I am going to go with that. It is a beautiful spring here in Colorado and I'm enjoying every minute of it!

    Rachel

    A Great Week

    in HOPE

    Posted

    Ernie,

    Good for you! You are such an inspiration to me and I'm happy you will have some "free" time to develop new recipes and to just enjoy life.

    Take Care,

    Rachel

    Introducing myself

    in INTRODUCE YOURSELF!

    Posted

    Terri,

    I'm am so sorry you had to seek this site out. It's a club no one wants to be a part of. I totally understand about having small children and having to deal with this horrible burden. One thing that gets me up every morning is a little word called Hope. There are so many wonderful people who post here and are beating this disease. Why not you?

    Take Care,

    Rachel

    Hi everyone--long overdue introduction

    in INTRODUCE YOURSELF!

    Posted

    Yvette,

    So sorry to hear about your dad. I was also one who was totally shocked to hear I had lung cancer. I have always been a healthy eater, never smoker and only 34 yrs. old! I think that environmentally there are more things out there that cause this than we want to know about. I hope your dad continues to do well.

    Take Care,

    Rachel

    Still Going Strong After almost 4 Years with Iressa!!!!!

    in HOPE

    Posted

    Mark,

    Wonderful to hear that you have been on Iressa for 4 years! I know of two people who have taken it for a substantial amount of time. My husbands uncle was on it for 2 1/2 years and recently had some progression so they are trying something new. A family friend of ours has been on Iressa for over 3 years now and is doing very well. In fact he just started a men's cancer support group in our area. He calls Iressa a miracle drug. When I start Tarceva I hope that I can have the same results!

    Take Care,

    Rachel

    Hello

    in INTRODUCE YOURSELF!

    Posted

    Diana,

    Welcome to this wonderful support community. It's so hard dealing with this terrible disease and having children at home makes it even more difficult. Although the children do keep the need to fight strong. I will be praying for you.

    Take Care,

    Rachel

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