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Karyn111

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Everything posted by Karyn111

  1. Good morning everyone I hope you are all doing well and THANK YOU again for all of your information, kindness & support! I saw the Oncologist and she wants to do a Bronchoscopy next. She thought they didn't appear to be cancer or that cancer was less than likely and that she needed to rule out infection. (They have already ruled out pneumonia & TB and I have not traveled out of the country 30 years, so no exotic disease risk factors.) Part of me felt great, but the other part of me felt uncomfortable since "what does cancer look like in a report"? I had densities and now have new ones in different lobes and the other lung. Has anyone had a bronchoscopy? I will admit to being afraid of that particular procedure. If you have had it.....what was it like? Any suggestions? I hope each of you is doing well and has a good day. Fondly, Karyn
  2. Good morning What a fantastic group of people you are! Thank you for taking the time to write me and for the kindness & support that you all have offered. I felt bad even being on the forum since I don't have a CA diagnosis and you are all going through "it". I keep you in my prayers each day and hope that your path will be easy as 'possible'. I see the Oncologist on Monday (if our ice storm stays calm) and have my CT scans and PET scans to show him. I will let the group know what he says, as I'm sure I'll have some questions. Take care of yourselves and again..........thank you for your support! Karyn
  3. I just want to tell each and everyone of you how very much I appreciate your time, support, advice and best wishes! It's very comforting to have a support group. As you will understand....it's the waiting and what if that's so hard. I'm an RN and usually very active. For me to be off work for 9 weeks is just not normal........nor are the bouts of wheezing (poor pulmonary function tests...Dr. thinks asthma, but I had a methycholine challenge test a few years ago that was totally normal and excluded asthma) and daily coughing & fatigue with normal activities. I see the Pulmonologist today, but am awaiting the appointment with Oncology. I wish each of you the very best and you are in my thoughts & prayers! God bless. Karyn
  4. Hi all:) I have an elevating CEA level and am a non-smoker (normal values 0-2.5 and mine have gone from 5 to 11) and now shortness of breath, wheezing, rales and a daily persistent cough. My Mom died of lung cancer (mets to bone and then brain) and both of my parents smoked. (I'm 45) Several years ago they found 2 densities at the base of my right lung (no breathing symptoms). I've had the above symptoms for over 9 weeks. Recent CT scan showed lobulated nodulated densities not only in the right lower lobe (11 mm), but now also in the right upper lobe and in the other lung (left lower lobe). Repeat CT scan confirmed these new densities. Here is the ironic part.....lung cancer needs to be discovered early from all accounts, but I'm being told the new densities are too small (2 to 3 or 5mm) to be visualized by PET scan and are too small to biopsy, so we have to wait for a repeat CT scan in 3 months. Given my mother's death from lung cancer and the fact that I'm symptomatic, I am concerned that this is an early lung CA, but want to know if anyone else has gone down this road & have hints about what I should do next. Also of note....during these 9 weeks of having breathing problems, I've also had off & on hip pain. When I asked the radiologist about this, he said there was a mild uptake of the PET scan medium, but he feels it's a bursitis. The radiologist said that since there has not been major growth of the first densities that he would consider these benign. I want to find the middle road of being diligent, but not obsessive. I'm concerned that these densities (however small) are now in another area of one lung and also in the other lung. Any thoughts, hints, sharing of similar experiences would be so greatly appreciated. I wish all of you the absolute very best!!! Karyn
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