Sherry

I have a consult with a thorasic surgeon mainly because the doc who delivered my boys knows him and trusts him and sent me in that direction. 4/6. I had a spiral ct as part of claudia henchke's study. I just found out my dad, who is riddled with nodules and a mass (after 50 years of smoking) was sent home after a thankfully negative pet and needle biopsy with NO orders to follow up and watch!!! I am of course relieved that so far so good, but i am furious for him. I'd love to hear about what you are taking!! it cna't hurt ... I do high dose omega three btw. And is anyone out there in NY .. if an oncologist is the consult I should be doing, I'd love some names. Thanks!

you guys are great. I know this is early for me and so many of you and your family members are going through the real thing. It will forever amaze me that anyone has the energy to step in and hold my hand too! I know from going through IVF that it is very easy to lose time to the wrong treatment and the wrong doctor. There I am the expert and I spend lots of time reaching in on my 2 favorite boards and cyber kidnapping .. making sure that women and couples get the right treatment .. in IVF at least, the state of the art is horribly uneven. When it came to my sister we were told she would never wake up from her c-section -- she threw footlong clots into her heart and lungs and was severely hypoxic for 45 minutes. We found some amazing brain researchers and she did wake up, and managed to talk a little, knew we were there. 5 months later she died, but with her humanity intact. We don't know what killed her. Her brain was so broken it may have jsut forgotten how to beat her heart. And so I am on a quest here.. to get the best information soonest. My first doctors said I'd never have kids. If I had listened, I'd never have had mine. Now I need to be a troublemaker, seeker again. Roadmaps are so very welcome! I wish none of us were here. I wish I were here as the 5 year expert. I am, however, a mess after 5 days.

I have just come from the radiologist where I had taken part in an early lung cancer screening study (Cornell). I knew something was up when the technician didn't want to look at me after the scan. There are 4 nodules, 2 tiny and calcified, but one subpleural 4 mm (upper right lobe) and one periferal 5 mm upper left lobe. The radiologist report is recommending rescanning in 3 months, and again and again for up to 2 years if I'm lucky enough for their not to be growth. There is good reason for the docs to be cautious. Their study is controversial and too many negative biopsies look bad for their stats. I am, however, the single parent of a 2 year old and a 5 year old that I have given everything to conceive (7 rounds of uninsured in-vitro). I am 46 years old. I quit smoking 6 years ago after nearly 20 years and I am the child of 2 smokers so my exposure is high. Dad and mom quit just before I did. Dad has early stage emphysemia and has had benign nodules that passed both petscan and biopsy. so far no cancer in my parents. I think I want to go straight of usgn biopsy. I had about 140 needle sticks to grab eggs making my kids and as much as I realize that sticking my lungs is more severe than my ovaries -- the consequences of waiting seem worth the risks of not. I am frustrated by teh fact that I had to fight my way into the study to being with . MY primary care physician essentially refused to support the idea a year ago. It's okay to scan me every year for breast cancer, but this where I'm high risk, he didn't agree with. Also I have fibrocystic breasts so I've had 10 needle biopsies in my life (all negative) I don't get the point of waiting. Can anyone weigh in? I am also very confused by the info out there. Is subpleural worse than any other kind of nodule? What are the odds that if they do find a malignancy they can do something? I keep tripping on reports that once diagnosed it doesn't matter how big or small, the danger is microscopic... If I do have cancer do I have any chance of raising my children? my baby sister died this year ( a catastrophe during childbirth). I have little faith left.