trina

I had my PET scan and i am excited to say I think the steroids are working as I am breathing a lot better.. I have a appointment on Tuesday and will update when I can with what info I find out.

Hi. I hope everyone is doing ok and I wanted to let you know i pray for you all everyday. I also wanted to post that I had my Bronchoscopy today. I did ok until the last 5 minutes where I coughed up a lot and felt as I was going to die. It hurt so bad and was horriable.The dr says it took longer then expected and that some of the numbing stuff may of wore off. I was given something to calm my nerves before we started but it didnt work to good. I watched it on the Tv the whole time. But I did ok until last 5 minutes when I could start feeling everything. My dr says I was a trooper and did good. He was unable to get to the one mass that worries him but was able to get a whole lot of fluid ( which was brown he says this concerns him but were hoping it is just a really bad infection) and able to get cells with the brush thing. Also he got a lot of good pictures. I had red and white blotches and he was able to get a lot of good pictures of this. he says this is not normal at all. It looked pretty nasty! He gave me a picture of it but my scanner is broken and the picture i took of it with my camera didnt turn out to good. He said it will take 8 weeks to get the full result but were get some results as early as the 12th.( but not all of them) I've lost 10 pounds in the last 2 weeks ( i neeeeeeed to lose weight but not from being sick!) now i am 35 pounds from my weight goal but wish i was not losing weight because i am losing it for the wrong reasson. he wants me to start drinking some shakes in the morning. Although the Bronchoscopy hurt (the last 5 minutes) I really do like my Dr I know it just didnt go as fastly as planned and he had to spend a lot more time in there then he thought he would of. On a personal note.. my dh is away at Police acadamy right now (unfortunally he is gone all week and home on weekends so was unable to be here) He was taking his shooting test as I was having the Bronchoscopy dont and he passed with flying colors! My dr did this he was very worried as I am young *28* and we are going to find out right away what all this is , what is making me sick and get it taken care of as soon as we can. I also have to go to a kidney Dr for the 20x28 mass on my kidney. Were not sure if i'll beable to have surgery on the 18th ( depends on if the brown fluid is infection) if it is were have to push surgery back. this would be very bad as I am in a great deal of pain from the masses in my belly Ok i am sorry. I am going on and on I will continue to keep you all in my prayers. I hope to find something out very soon.. My PET Scan is friday

Hi randy! i responded to your pm! your a doll! today went bad and good. I guess on the 2nd catscan they found 5 masses. one with a hole in one and that worries him. he is being very aggressive trying to find info out right now. I go in for a A Bronchoscopy tuesday I go in for a pet scan before the 18th ( my sugery date for my belly) My lungs are not fully working and i got a shot in my hip and will take more next week. I'll take steroids at home until they get stronger. We talked about him surgerically removing part of the mass and we decided against it right now. we want to see what the results show first. they are small masses so if its cancer we got it early he said. I can go and have my surgery on 18th as long as my lungs get stronger as he understands my surgery on the 18th is a very serious one as well. He also mentioned Endometriosis of the lungs but said this would be extremely rare expecially since I had my cervix removed in my early 20's( Im 28 now) but like I told him. I AM a rare person and I have HAD endo since i had my cervix removed ( less then two years ago and at same time cancer cells in my belly) like i told him id reather Endometriosis of the lungs although he said thats not a good thing! He does not think its Endometriosis but did mention it. My lung test showed that my lungs go to callapse when i inhail in( sorry i know im spelling really badly im not a good speller) but like I mentioned steroids should help with this. they took TEN tubes of blood at the hospital! OMGOSH!! thats a LOT!! he said if the test dont show anything were still stay on top of this and catscan once a month as he said it may be to small to tell exactly yet but knows it did grow since first catscan. so i guess thats it for now. Im scared about tuesday! can anyone share their experiances with this test?

website not working i'll go to the forum and ask

ty going there now.

do all nodulars have densities?

I am going to have my friend go with me this thursday. The first catscan I had they said they was concerned but would let the lung Dr get back to me. The lung Dr got back to me and said it was urgent to go and get a full chest catscan and then I went and got the full chest scan. after lookign at the 2nd scan the lung dr said I needed to come in right away. ( the problem was I was sleeping when he called so missed going in that morning) they called back again and said they needed my surgeons, my family dr's numbers right away.and that I must come in thursday and to make sure no matter what I dont miss that appointment. They told me we need to talk about treatment options (whatever that means) I then got a call from my surgeon telling me they had spoke to the lung dr and we may need to push my surgery back because they dont know if my lungs can handle the surgery right now and when I asked her what they meant by treatment options she said chemo , radation and maybe something elese.she said she was not 100% sure but thats what she got from the lung dr i guess. so really I dont know what the heck is going on except that Ive been to dr's almost daily for last few weeks and or had them calling me daily and was told i may have lung cancer. I do have a throat infection so I am sure thats one reasson I am so wore down. they are not worried about the masses in my lower belly because I had this less then two years ago also and they dont think it is cancer they think it is endo ( last time it was a mix of endo and precancer cells) but they are sure its just endo and I was told you can get cyst on your kidney so that is normal. all I do know is I want to stop hurting( from masses in belly) I want to not be so tired and wore out. My dh is away at police acadamy and home only on weekends so it kinds sucks doing this alone. We also have two small children so its just been kinda hard right now. I honestly dont think its cancer i think my drs are just worried it is for whatever reasson. but i dont think it is. and if it is God will take care of me. I just want to feel not sick no more. Not so tired and get all this crap ( pardon my lang)over with

but I mean I am concerned and a little scared but not overly scared ( i personally dont think its cancer ) I mean i am wore out but i mean wouldnt i feel sicker? I do have a lot of pain under my LEFT lung( but its the right lung that they found the stuff on) I just came here to research and was hoping to be told my Dr's was being overly worried but i guess I came off as a basket case and Im sorry for that. the Dr's are the ones having me scared. i dont have understand why they would even mention chemo or radation because from what ive researched you cant even tell if its cancer from a catscan alone. ( ive had two in two weeks) and now they are talking about pushing my surgery back on my belly because of my lungs. just dont make a lot of sense to me. ty for the messages but like one poster said I am in the wrong place.I thought i was in the right place as I was told by 3 drs it may be lung cancer but Im sorry for being in the wrong place. i wish you all love and health and you will all be in my prayers I have been reading here and really do each and everyone of you the best in life can offer.

the only reasson I came here because the Surgeon and lung dr mentioned it may be cancer. but i am not understanding why they would even think that since its just 2 subcentimeter nodulars densities ( btw can anyone tell me what densities means) they didnt even find this until they did the catscan on my belly and then the lung dr looked at it and made me go in for another catscan right away and then after looking at that catscan I was told my surgery on my belly may have to be pushed back because of my lungs. ill find another site to read on im sure im on the wrong site thanks for the messages

I have not been told it is cancer Ive been told there is a great chance it is cancer? but i thought from reading on here that since there is only two subcentimeter nodular densities then there is nothing to worry about. so I am confused as of why my dr's are talking about cancer. I think they are not worried about the masses in my belly because they think it is Endo and they said you can get them on your kidney and they be normal. they are putting surgery on hold because of my lung issues ? i dont know but the Drs have me scared. I mean subcentimeter nodular densities are normal right? and since they are so small they cant be tested right? One is in my lower right lobe and one middle right lobe. I guess the stuff I am reading makes me confused.. because I keep reading you cant tell by a catscan if its cancer( or can they tell if it looks like cancer?) Ive already did two catscans and go in thursday to talk to the dr more.

thats what i was thinking.. its nothing serious because of the size.. and the surgeon ( general surgeon) mentioned chemo and radation after getting my 2nd ctscan from the lung dr ( both ct scans was done within 2 weeks of each other... ) i would not think it would grow in that period of time. i am kinda annoyed with my surgeons and my family dr and the lung dr right now.. because when they talk to me they scare the crap out of me keep telling me it is very serious but will tell me more thursday . but from what I am reading how serious can it be since its that small? they are more worried abhout the things that showed up on my lungs then anything elese right now.. can they tell if it looks like cancer by a ct scan? i am just so confused.. I am in chat now but i understand if noone wants to come in as its late. ty so much for your message trina

I went in 5/7/07 for my first catscan as I have masses in my lower belly. My catscan showed 2 masses on my lower belly ( which we are not concerned this is cancer but it does have to be removed as we can feel it on the outside of my belly and I am in a great deal of pain) Also a 20 x 28 mass on my kidney ( were not concerned about this one either.) But It also showed 2 subcentimeter nodular densities on my right lung. One is right middle lobe and one is the right lower lobe. I had surgery set for june 18th to remove the mass in my belly and my overies. but surgeon called and said they may have to cancel because of the reports they got from my 2nd catscan( could it change in litterly 2 weeks or so?) she said she didnt know if i woud need chemo or radation( not sure WHY she said that) but anyways the lung Dr called me wants to see me asap. I am concerned because of some of the things they have said. now 2 subcentimeter nodular densities thats not serious right? because dont subcentimeter mean small? and besides they cant tell if its cancer by a catscan can they? i mean can they even tell if it looks like cancer by a catscan? I know I have been feeling awful sick and wore down and I am sleeping a lot.Im in a lot of pain from the masses in my belly as well. the Drs have kinda worried and scared me. i mean this cant be that serious right? its only small ones right? what does densities mean? they keep telling me it is serious. I have spoke to 5 drs and I am told the same but subcentimeter nodular densities aint that SMALL? how can they even tell if they think its cancer without a biopsy? I have read here all week and keep reading that normally they just rescan in 3 months but they have already sent me for more then one test. they also said I have to have pulmonary function test. Im just concerned because I think the dr's are making more of this then it is. I mean CANCEL my majior surgery??? can someone help and tell me what 2 subcentimeter nodular densities means? i mean that dont sound to serious to me. that is small right so no serious? I was in chat but noone was there.. i really could use some pep talk if anyone wants to join