Jump to content

hawkeye

Members
 View Profile  See their activity

  • Posts

    52

  • Joined

  • Last visited

 Content Type 

Posts posted by hawkeye

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    Well Mary started her round on the 15th so we'll see how it goes. She has alot of pain now. ONC gave her stronger meds.Doesnt help as much as i would hope :( she was told a year and its been 18 months so we can all make it further than we ever thought and the fights not over yet!!! I feel so alone though. her sons don't ever come over. Unless they need something.They never talk to me about anything and I don't feel like I can talk to them. My side of the family is far from here. So it's just me.

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    Thanks wendyr. Mary and I have been looking at the clinicaltrials.org site and MD Anderson is where the onc was checking sice that's where we went for 2nd opinion. We have received a list of possibilities and are checking them out. Thanks so much for the help. May God walk with all of us.

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    Mary and I saw the onc yesterday. Her tumors are growing again. He said he was looking into trials so if anyone knows of any please let us know. She has also been in alot more pain lately so he prescribed a slow release pain killer in addition to what she has been taking. She has alot more trouble walking any distance now. Our 5th anniversary is next friday and we were talking about going back to Branson if she feels good enough (I really hope she does). She is scared although she won't say so but I can see it.

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    I apologise to all my friends here that I have not posted in a while. My Mary and I have been dealing with insurance issues sincce my last post. Mary has gone on disability pension since my last post and we have been trying to figure out the best way to handle things. Thanks for your support.

    My new diagnosis

    in INTRODUCE YOURSELF!

    Posted

    Hi Patty sorry you need to be here but glad you found this site. It is a wonderful place with great people. I grew up in Massapequa on the Island and now live in Kansas of all places for a nyorker to be!! Our prayers are with you.

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    My wife's name is Mary. I'm sure I put it in posts somewhere but I'm not sure. Thanks for asking Jackie. And you are right about seeing things in a different light. And I have to say that the tour guides at Graceland were wondeful accommidating Mary's needs during our tour. Also I have to commend the people at Bristol Motor Speedway. When we got our tickets I wasn't sure about wheelchair access. So I called the track and spoke to a lady in the ticket office. I explained my situation to he and she informed me that our seats were 8 rows from an entrance and she would have no problem. Then I asked her about parking and she refered me to the customer relations person who I called. She said that the deadline for handicap permits expiredin mid June but that if I would fax her Mary's info she would make sure we got hdcp parking. 2 weeks later Mary's permit arrived in the mail. Thanks to these 2 people Mary was able to have a wonderful time.I have sent them both thank you letters. Well enough ramblin for now.

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    My wife and I just got back from a little getaway. She has been felling ok so we went to Graceland and then to Nashville.We then went to Bristol, Tn so see saw her 1st NASCAR race. We drove down the Blue Ridge Parkway in N.C and then went to see our daughter in Atlanta (she is due with our 1st grandchild in Dec.) We finished it off by going to Branson, Mo. for a show. It was a great trip and we had a very relaxing time.

    New

    in INTRODUCE YOURSELF!

    Posted

    Sorry that you have to be here but glad you found us. When you go to the appointments if you can take someone with you. Also something that was a great deal of help even though there were 2 of us there was we took a small tape recorder. With everything that is going on even with 2 people there you can miss something so having the tape to refer to was a big help. You want to know what the treatment plan is and what drugs will be administered. If he does chemo he might consider having a port a cath put in. Its a simple outpatient surgery and will help with the treatments. There are many others on here who will give you more info. Our prayers are with you and your dad.

    hawkeye

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    pammie

    Thank you for your post. I so much appreciate all the folks who have taken time to remind me of some important things. So far I am having a pretty good weekend. Last night I just relaxed at home and watched a movie. Today I went to a BBQ that was for the local radio station. The guy who bought it and his fiance put together a BBQ and concert with 3 bands in the town park. It was alot of fun. The food was great and all the money went to local charities. Well good nite all.

    NEW HERE

    in INTRODUCE YOURSELF!

    Posted

    Sorry you had to find us but glad you did. There is alot of information and help on this site. I know this from personal expierence. Remember that you are not alone at anytime cause we are always here.Prayers for you and your husband.

    My Wife

    in CAREGIVER RESOURCE CENTER

    Posted

    Well my wife is back on her chemo regim and that's a good thing. She gets freaked out when she can't do her chemo and that's understandable. I guess what I really need to do is ramble a bit. I kinda feel guilty. My wife and her sister are going to visit their sister in Texas and I am actually looking forward to a little time alone. Is that a bad thing? I know we all have alot going on and sometimes as caregivers we get lost in the shuffle so to speak. I am NOT complaining. I have done and will do anything for my wife as I know she would do for me. She is a wonderful person and I love her in sickness and in health as I said the day I married her. However sometimes I think we need a break also. It's so emotional and stressful. I can't talk to her sons because they don't want to deal with things. As one of my favorite people said "Life's what happens when you're making other plans"-John Lennon

    It's late (as usual for me nowadays). Thanks for letting me ramble. God bless all of you.

    hawkeye

    Motivation/Depression?

    in CAREGIVER RESOURCE CENTER

    Posted

    I too am a caregiver. My wife has sclc, COPD and a couple of months ago she suffered a compression fracture of the 2nd and 3rd vertabre. She has always been an active person. She has done 15 rounds of chemo and 30 rounds of radiation. She has spells where she doesn't do much of anything.but there are also times when she over does herself. I try to give her enough care but also try to have her do things for herself. And I do agree that MY life has certainly changed and will never be the same. But that is OK because she IS the love of my life and I will do anything for her. Our 1st grandchild is on the way and I pray to God that Mary can see and feel and hold her(him), we'll know in acouple of weeks if boy or girl. I just try to do for her what I know she would do for me. This isn't really advice as much as it is me ramblin.

    My wife

    in INTRODUCE YOURSELF!

    Posted

    My wife wanted me to ask you folks this and these are her words "we are on our 2nd line of chemo for sclc (oat cell). Next step will be clinical trials. We are looking for suggestions as to how to screen all the trials available. Can anyone give us some suggestions?"

    Thanks

    Hawkeye

    unbelievable!

    in CAREGIVER RESOURCE CENTER

    Posted

    We are so sorry for your loss. No one should have to go through what you and your husband have with hospice. I have no expierence with hospice but have learned alot from you and your husband about it. Our prayers are with you and will be with you.

    hawkeye

    Introducing myself . .

    in INTRODUCE YOURSELF!

    Posted

    Wecome Sue

    Agree with Ry on taking notes. My wife and I found that a mini taperecorder worked great since there was so much info and things going on we found it was much easier to review from the tape. It was amazing how much we DIDN'T hear.

    My wife

    in INTRODUCE YOURSELF!

    Posted

    Thank you for the relpies. She was doing carboplatin and VP-16.She also had 30 days of radition therapy to allow her to breath better which was effective. Now she is on topotican. We in fact did go to M.D. ANderson last October for a 2nd opinion when the tumors started growing again. Her ONC wanted to go right to the topotican but the Dr. at M.D. Anderson suggested that we stick with the carbopatin and VP-16 since we had good results with them until we got no further results from them or the tumors started growing again. Three months ago she fell and recieved a compression fracture of the 2nd and 3rd vertabre.She has trouble standing for any lenght of time and she can't walk more than 50' without stopping to catch her breath. She is on oxygen and it helps.She is now doing chemo 5 days a week with topotican. That is where we are now. I will get the profile do ASAP.

×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.

  I accept