Dear Dr. West,
I can't tell you how happy I was to recieve your response. I do appreciate it SO very much. We feel very alone with all of this.
I will tell you the details of my dad's illness and medical history and I would like an honest opinion from you as if he were your dad.
Dad has a mitral valve leak, diffuse small vessel disease, only 20% kidney function, and now, the mesothelioma at almost 83.
He has been very active and has seemed to be much younger than his age... dancing on weekends, going to the casino, etc.
The mesothelioma covers a good portion of his pleura, I think has started to grow somewhat into his chest wall and possibly is on his pericardium. Right now, he's pretty much asymptomatic. His right lung is picture perfect at this time and as far as we know, the cancer has not spread anywhere else. There was evidence of a pleural effusion in April of 06, so the oncologist told me that he probably started with this around May 06.
I haven't been able to talk to the doctor in private, but have been wanting to ask her about how long she thought maybe Dad has. I don't want Dad to lose hope and depress him with gloom news, but my siblings and I would kind of like to have an idea.
The onlcologist plans on using only Gemzar on Dad and says that the side effects are very minimal and that she could possibly prolong his life a year (which I thought was VERY optimistic and maybe even realistic) but she knows more than me for sure.
She said that if he feels badly after the first or second treatment, he would stop it. I wonder if damage will already be done, though. ??????
ANY input at all regarding my information and questions would be so very much appreciated. We are so afraid and I wake up every morning so depressed and worried knowing that I am slowly losing my dad and I don't know how to help him and don't know what to expect. I worry about the pain that he will maybe be in and if they will be able to control it and I worry about him not being able to breath, etc. The doctor said that some people actually feel better on chemo. ????
Thank you so very much for your input on this. I respect so much what you are doing to help others.
I will be waiting for your response.