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khawk

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Everything posted by khawk

  1. Thank you all for responding! Rudy had another fall last night about 11:30 - no injuries this time. He actually doesn't remember it today. Someone mentioned that he may be having seizures and we are going to ask the onc about that on Monday. I'm also going to ask about inner ear or if they can refer him to a neurologist. The hospice nurse came out today to meet him and I told her what has been going on. She's baffled too. My husband said that last night Rudy was sitting in the chair watching TV and his head was leaning to one side and he was drooling. Didn't look like he was sleeping. Prior to this he was getting around pretty well. After, when he went to bed, he had trouble walking again. So I wonder if it is some kind of seizure? Nova - his blood counts are all normal now. His oxygen is still at 99%, which is amazing! Hopefully we will get some answers Monday when we see the onc team. Thanks everyone!
  2. We will sit down with him and try to have him explain what he feels. He has trouble explaining it when the doctor asks. He has a walker but he won't use it half the time. Right now he can't because of the wrist injury. There are times where he fell and I'll get the walker for him. He can hardly move his legs sometimes and the walker doesn't help.
  3. Hi - My husband and I need some advice. His father was diagnosed with extensive stage SCLC in May. He went through 10 doses of radiation to the brain for a brain mets and 4 rounds of chemo. He never recovered from the 3rd and 4th chemo rounds so they stopped treatment. We have taken him to the ER 9 times since the 3rd treatment because he kept falling down. They always said it was dehydration, gave him fluids and sent him home. A few days later he falls again and he is drinking a ton. About a week ago he fell 3 times in one night and we took him to the ER and told them to admit him and figure out what is going on (this ER dr said it wasn't dehydration). The chemo dr says that it's not the brain tumor because it is 1/3 the size it was when he was diagnosed and had no trouble walking. So they kept him for 4 days and told us they would figure out what was going on. Never found anything and sent him home again. Right when he got home he fell and hurt his wrist (bone bruise). He fell 2 more times that night. We took him back to the ER yesterday and they told us we need to deal with it or put him in a home. He had 5 tumors when diagnosed and all of them are significantly reduced. He has his wits; he just can't walk well. He leans to one side a lot and we tell him to straighten up. He has no idea he is leaning. My husband thinks his core muscles are just shot because he isn't doing anything but sitting around or sleeping. We asked the hospital (VA) to put him in rehab for a few weeks and they won't. He won't accept going into a home right now because the only thing that seems to be wrong is his strength. We are doing what we can to try to strengthen his muscles but I don't think it is working. Has anyone else had this problem after treatment : where you just can't walk and lose your balance a lot. I don't know if it could be some long term effect from chemo or radiation (he's been out of chemo for 5 weeks now and he is only getting worse). The strange thing is that some days he seems perfectly fine. He'll have one good day and then a bunch of bad ones. If anyone has any advice or has experienced this, please let me know. We are trying to get his chemo dr's to admit him into a rehab facility but it's the VA hospital and they aren't helping much. Thank you Kim
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