Wow I never want to go through that again.
When I last saw my Doc on Oct 15th I had been on
Tarceva for 15 days. Breaking out with acne like
symptoms was a understatement. My face, across my
nose etc had just became a collection of open sores,
swelling, and downright gross sight. Doc suggested going to 5 days a week on and two off.
Well on to
second chapter of this nervous breakdown. We had been planning a move to the Dallas Fort Worth area due to the fact the wife can no longer drive and
when I went down due to side effects of second go
around with chemo it became evident that rural
living wasn't going to get it. Plan A get a place
in new area and send wife down with daughter who lives in area. Then I would hold out in Mo until
we got the place sold. Well plan A didn't work. I
just mentioned we would be selling to the postman
and next day had offer on the place. Now all hands
on deck, find a place, box up the old place, get a
mover and get gone. OK not to belabor the point but
this also meant doing all the things required to become
a texan. That meant meeting people in public looking
like something Halloween made famous. It also meant
cutting ties with doc and onco team in KC VA. So I
went off Tarceva around the Oct 15th area. After two
weeks face began to respond.
Well now I think we are mostly settled and its time to find a new onco team. We are really about 45
miles east of Dallas so I quess checking with VA
there is next task.
Right through all of this I have been having pain
in the buttocks area so bad can't sleep. I suppose
inactivity had a lot to do with this. I wasn't a
lot of help during move due to SOB and weakness.
It seems standing and laying down are best relief
but I know that just makes the problem grow. Anyway
that is the first thing I will address with new team.
That and getting back on Tarceva. Last Cat scan showed little growth on Oct 15.
I realize this maybe just a rant on my part but
wanted to get back in the mix now that we have
INTERNET access again.
Check with you guys later.