Hi Carol and Wendy,
Thank you for your quick reply. My sister Kim is sitting next to me and has read your replies.I have signed her up to this site so she can vent when necessary. We think the tube is causing a lot of the problem but she has had seven abdominal surgeries and says the pain is much worse and it's not being controlled by pain meds or xanax. Her surgeon doesn't seem interested in addressing the concerns and has her waiting 8 days after her discharge before seeing her to ascertain whether tube can be removed.
Did you have muscle spasms and burning sensations on the lobectomy side? She has a constricted feeling in the center of her chest periodically that happens with a "spell" for lack of a better word. She says everything on the inside constricts and she shakes and the pain level goes way up. She has constant discomfort under her breast. If any of this sounds familiar and/or normal we would appreciate your advice/thoughts. Thank you.
Sharon
also have cancer - Adnoid Cystic Carcinoma