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Beachmama

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  1. Thanks again you all. My mom was admitted to the hospital last night. She has a bacteria on her lung that caused a fever and she has low oxygen levels. (This is her second time in the hospital for this in the past month!) Katie, I feel like you are right when you say that tthe doctor may not be offering more options for my mom because she is not doing her part but living a healthier lifestyle. We all feel that way, really.(my family) And maybe my mother is too weak to handle the harsh chemos, and that is why she didn't offer it. Now that we know it is a bacteria on her lung, how can we safe
  2. Thank you all so much for your replies. I am so grateful for this board. I feel so comforted by your words. Mom has Small cell LC, limited, on one lung. It is the size of a tangerine, and growing. The biggest problem with her is that she still smokes and surrounds herself with second hand smoke as well. Helping her seems impossible. And she is resistant to changing doctors. But I feel like we have no other choice. If there are more choices, why doesn't the doc recommend them? It's mind boggling. She did mention a possible clinical trail in Miami. But she didn't seem hopeful or confident when
  3. Hi everyone. I am at a loss here. My mom has been receiving chemo (second line) for the past year and it has not been working. Her first line was Cystplatin and Vp 16 and her second line consisted of Topecatan then when that caused a blood clot, and the cancer grew more, they switched her to Taxotere. And her most recent scan showed the tumor had grown even more. The doctor really had nothing to offer. She said THIS was the standard treatments and were effective on others. I suggested more Cystplatin, since it worked the first time. (She was cancer "free" for 9mos) My questions to you are-
  4. Hi there! My mom had 6 months of topecatan and did not have any itching. She had mild symptoms, the worst of which was nausea and fatigue. I hope you get some feedback from the onc this week. Good luck to you and your mom. You are in my prayers.
  5. Well, just wanted to update everyone on my mom. She just finished her last round of topecatan last week. (for now) She has had almost 20 treatments and the latest scan showed no marked improvement. But it hasn't grown either. Just stayed the same. Her hair is starting to thin again and she is very depressed. We are confused as to why the chemo isn't working. And she continues to smoke. So we don't know what to do or say to her. She is becoming very weak as well (gaining weight, fell down 4 times last week, losing her balance). I think the doc wants her to take a break over the holidays, but d
  6. Well, mom just had her third round of Topecetan. And so far so good. She feels mostly tired and sick to her stomach. But her WBC is high! And no hair loss yet. She is really strong and seems almost "energized" by the chemo. It's weird, but she is fighting it. I pray we can put it back into remission. She took a chest xray (waiting for results) and in 3 weeks will do another ct scan to see where we are. 6-9 rounds has been ordered, so she might be half way done. She said this drug is MUCH better than Cysplatin and Carboplatin. 100 times better. Thanks for all your prayers.
  7. My mom had a bad time with the first round of chemo. She was so sick, I came to this board and started screaming that I couldn't allow her to go on anymore....it was pretty emotional and painful for her and for US to see. But, I have to say, it got rid of the cancer for a while. It's almost two years since diagnosis. Unfortunately, it did come back and she's started chemo again. She seems to be tolerating it well for now. But, your question is funny to me. I think your friend could get some relief from hash or pot. I actually told my mom to try it, if she thought it would help with the nausea.
  8. Hi everyone, I wanted to ask you for any advice you have about the chemo Topotecan. My moms small cell has returned and this will be her new chemo. The doc actually told her that her hair will not fall out. However this is not what the paperwork shows. Mom's hair just grew back and now, aside from having cancer again, she's upset about losing her hair again. Well, anyway, we are just now processing the news. Disappointed of course, but I just want to give mom some advice from you all and maybe some good news. Thanks. Connie
  9. Thank you all for your wise words and support. Just to update, mom continues to smoke daily. But I do not mention it. I have NOT told the rest of the family about it either. It is not my wish to upset her. I am just so disgusted that she started smoking again after being free for a year!!! NOW, her cough is back with a vengeance, and she of course smells like the smoke and it ends up all over the baby when she is here, (which is daily). I AM happy that she she is ALIVE and HERE to be with us. But the thing about my mom is that RIGHT NOW she is CANCER-FREE!!! and she is just TEMPTING FATE. SHe
  10. Thank you all for your support, except Ellen in PA. Who pointed out so rudely that I am the one with the problem, not my mother. Unfortunately, accepting her smoking is like forgiving an abusive spouse over and over again, making excuses for him. I know it must be sooooo hard to quit, I understand that. But I KNOW she did quit for a while. Maybe a year... But now she started back up. It's just crazy. I have always hated my mother smoking. I will never be okay with it. And luckily, I am the only one in the family who knows this info for sure. My sisters would REALLY give her a hard time. I will
  11. Thanks everyone for your insightful responses. I know where I stand on this topic, but I don't have to like it. I told mom I knew that she was smoking.(she didn't deny it) I told her that I hate the way it makes her smell. (she smokes indoors and in her car). She reeks! And that is the worst part of it. We smell after she hugs us (and my kids). It's just gross. But I do love her. I do. Just not the smoke. Oh well. Thanks again.
  12. I just found out that mom is still smoking. Someone close to me saw her puffing away in her car at a red light!!! I had a feeling she was smoking, but she would always deny it when I asked her. My questions to you all is what do I do??? I KNOW I cannot make her stop. Is she really making it worse by smoking, or is the 40 years worth of smoking just too hard to undue and it really won't matter if she quits or lites up? I am so angry right now. I want to say something to her, but what? She just got a clean bill of health and this is how she celebrates! What would you do? Connie
  13. Just wanted to let you all know the good news. Mom had a broncoscopsy last Thursday and we got the results back yesterday. NEGATIVE!!! The doctor could tell the minute he looked down there that it was not small cell. He said the lung is slightly inflamed and probably scarred from all the radiation. And that was what kept showing up on the scans. What a blessing! Thanks for all your prayers and support. I feel like we can all breathe a little now. And mom can get a nice hair cut and dye finally!!! Thought you all would like to know.
  14. Thanks Katie, I checked out that website, it's really great. SO, here is the UPDATE. Mom's latest scan (CT) showed the same shadow, or spot. It apparently "lit up". It's the size of a lima bean. The good news is that it could be anything, says the doc. It is located directly on the spot that was radiated. It needs to be biopsied to know for sure. The bad news is that it has doubled in size since May. (it has apparently been there that long). Mom was given antibiotics to clear up any infection and has referred her back to the lung specialist for the biopsy. If it is an infection or infla
  15. Your attitude is awesome Rob! You are an inspiration. I will keep you in my prayers. Cancer sucks. Keep yourself strong and just take one day at a time. You can do this.
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