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Posts posted by Ry
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Happy Birthday!
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I am glad he will be home. You should be eligible for some in home care to help with bathing him etc. so make sure you ask about what services he can get. It will be a big help to you.
Keep us posted on how he does.
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Hope you get rid of that extra fluid and feel better soon.
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I am so sorry for your loss.
Rochelle
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Snowflake behind the wheel of a flying beer truck...
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I am torn on this. I almost said practical and then i realized most of my favorite presents have been frivolous--
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Happy 40th Jamie!
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Michelle-
It isn't easy and it wont' be for awhile. Grieving is hard. I couldn't bring myself to go through John's things for a long time. I immediately got rid of all the stuff that was tied to his illness and reminded me of his illness, but the rest was too hard. One day I decided I could start on his dresser and I opened the top drawer to find all the kids baby teeth and cards they had made him-- I shut it and didn't go back to it for a year.
There's no time line, just do what you can do when you can do it. The best advice I received was from Ginny who kept saying over and over - keep busy, just keep busy. I changed furniture, I shopped, I made plans for projects, I remodeled, I just kept moving. Rearrange your furniture, paint, do whatever-- just keep planning and one day you'll be on the other side.
Rochelle
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I am so sorry to tell you that Rich passed away in his sleep Wednesday evening. His wife Kathy wanted Geri and all his friends here to know. He had been having many issues with pain and trying to get his pain under control.
He would often tease me about what I would post about him when he died. I told him of course I would write something nice. I lost a wonderful friend, a wonderful sounding board, and supporter. Throughout John's illness he helped me immensely and I hope I helped him at least half as much as he did me.
His obituary will be in the Boston papers once they have the arrangements. made. Kathy is ordering an autopsy to determine what exactly happened.
Rest in peace big guy,
Rochelle
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Cheesecake
Chocolate No Bake Cookies
Peanut Butter Cookies
Lemon bars or lemon pie
Cinnamon Rolls
Ann-
I would make the no bake cookies if there will be kids at the sale-- kids love those.
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The hardest part for me was being at home. I would be fine when I went out of the house and I accepted almost every invitation I was offered. It was hard to be where John wasn't and that was at home. I think I played a game in my mind when I was out of the house that he was at home. It was always hard to go home and not have him there. So accept the invitations and get out.
Don't make the mistake I did. I also avoided counseling because I thought I could deal with things and it was a sign of weakness. It was a mistake and if I had it to do all over again I would have started earlier. It wasn't until I had a real wake up call with my older daughter that I knew we needed some help. Don't think of it as seeing a shrink-- ask for a grief counselor-- someone with experience getting people through loss.
Whatever you do - get out of the house.
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I am so sorry about your husband's diagnosis. I am not clear from your post if you are in the U.S. now or still in Mexico. You may want to consider getting a second opinion as to what your treatment options are. Please keep us posted on how he's doing.
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Gail~
I am so sorry for your loss. My sympathy to you and your family.
Rochelle
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Sheri-
I am sorry for your loss. I hope the meeting went well.
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Heck with my house I am taking everyone to Ginny's.
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One thing that helped me was to start a different bedtime ritual. It was strange to be sleeping alone so I started to read in bed prior to going to sleep. I had never done that before and it helped shut off my mind until I was tired enough to fall asleep. Now when I wake up in the night I grab my book and read until I am sleepy.
The other thing I did was to start a journal. I started writing in a journal and told John what I had done that day, vented about things and just got it out on paper.
Xanax worked for me also -
I posted a book in the sticky area and that book really helped me.
I know it's hard. It will get easier.
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Frank Lamb
in GRIEF
Frank was just a great guy. He and John talked on the phone several times before Frank passed away. I think it helped them both to talk things out. The chat room has never been the same since the loss of David A, Frank, Bob mac, Judy B, and others. So many losses-- too many losses.
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It's a good idea for your son to go also. I had my daughter go for awhile. She had a lot of anger and didn't know how to cope -- it helped her a great deal.
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Heck I'm way late to the party Patti -- I am facing Ohio and toasting your survivorship. Here's to seeing Nick married!
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I think it's good to be able to talk to someone. Even though I made my appointment for grief counseling we touched on many things. Ask around and see if anyone has a recommendation of a good therapist and go. It's not too late and if you don't go you will always wonder if you should have.
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Seven Choices: Finding Daylight After Loss Shatters Your World.
Elizabeth Harper Neeld.
I am not a self help book person at all but this book is amazing. It helped me a lot.
Here's the amazon link so you can look at it.
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Looking back I wish I would have gone to counseling much sooner. I didn't go until after the first year. For some reason our family just fell apart as the anniversary got closer and both my middle daughter and I went. It really helps to talk and vent-- I did a lot of that here.
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I had a hard time getting through all the things that have to be done following a death. There is a sticky post I put on after John passed away which might help you. I think the title is something like "can we talk about all the other stuff?" Rich put a link to a list - hopefully it still works.
I started out getting through a lot of things and then I just couldn't do it anymore. I still have things that should be done. Social Security went well I thought until the paperwork arrived and it had my daughter Jillian as deceased instead of John. It was a nightmare trying to get it corrected. At one point they said I might have to bring her to the office to prove she was alive! I couldn't believe it.
So I hope it goes well for you and you get through it better than I did.
Rochelle
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Joe B was in a vaccine trial at NIH. You can PM him for details or search his posts about it.
The elephant is back in the room
in MEMBER UPDATES
Posted
Sorry I am late Geri but glad to hear you're past the scan. I hear that elephants like peanuts so next time maybe you could entice him outside with those.
John also suffered heart damage from one of his drugs. I remember reading a pamphlet in the cardiologists office and chemo was listed as one of the things that could cause heart damage.