lorbethm

We are doing similar things! I had a lobectomy in October and start chemo next week (also four rounds!). My oncologist recommends a CT scan and chest x-ray every 3 months for the first three years, then every six months for the next two years, then once a year. I will also be having octreotide scans in there, too, to make sure the carcinoid isn't back. I would push your docs to be more proactive. Maybe they think it hadn't spread at all? What did they stage you? Lorie

I am starting Cisplatin and Etoposide for neuroendocrine carcinoma in a little over a week. I know the Cisplatin is nasty for the nausea is causes. Any help on getting through this? I have one day of Cisplatin and three days of Etoposide, then a three week rest. I am to do four rounds. The oncologist has already mentioned antinausea drugs, but he's warned me that it's worse on people my age and my size (I'm currently underweight). Thanks for any help you can provide. Lorie

Lorie here -- newbie. I'm in New Mexico where I'm an instructional technologist at a community college and part-time college instructor. Mom of two wonderful kids: Alex, age 8, and Aleice, age 4 Married to Larry for 14 years

That is so wonderful! We've been blessed that way, too. I haven't had an income since my first issue back in August (ruptured appendix) and our church family and my coworkers have come to our aid. Hugs! Lorie

I don't have an answer for you, but I want to encourage you to make each day a special memory with him so you don't have any regrets. Don't wait for the big moments like the wedding...make today a special day. My prayers are with you. I've never been in your shoes and my heart is breaking for you. Hugs! Lorie

Welcome, Paul. It sounds like you are already receiving lots of encouragement and hope from others here. I'm new at this, too. My prayers are with your partner that he can beat this. Hugs! Lorie

Good afternoon, Christine! I'm just a year older than you and a non-smoker, so I understand your shock at having lung cancer! My prayers are with you that the chemo will kick it in the bum! Welcome. Lorie

Welcome, Maggi. I will be praying for your husband. I think you are wise to get a 2nd opinion immediately. Warm welcome! Lorie

Thank you so much for the warm welcome, everyone! I am looking forward to getting to know all of you. Lorie

Cloudcroft is our favorite get-away place. That's going to be my reward when I get the all-clear...we are spending a weekend in Cloudcroft! Thanks for the warm welcome. Lorie

Hi, everyone. I'm a newbie to this board, but not to the world of Internet communities. Thanks to Ken for introducing me to this board. I am a 37 year old non-smoker who has been rudely introduced to the world of lung cancer with the diagnosis of neuroendocrine carcinoma in October. I had a lung resection on October 11th where my lower right lobe was removed along with a tumor that had two lobes. I also had 11 lympnodes removed at the same time. All the lymphnodes came back clear, as did the margins. My pathology report states, though, that lymphvascular invasion was identified, so I'm assuming that I will start learning about the wonderful world of chemo beginning next week. I am a patient at MD Anderson, and I thank God for the doctors there every day. I am stage IB. My cancer was found by "accident" (I say by God-cident) when my appendix ruptured in August. They were doing CT scans at our local hospital trying to figure out what was wrong with me when they found the two masses in my lungs. After I recuperated from that surgery and a 13 day hospital stay, I went down to Scott & White for a bronchoscopy and biopsy. They initially diagnosed me with SCLC but then two days later decided it was a hamartoma. I then made the smart decision to head on down to MD Anderson for a 2nd opinion. It was after my lung resection that the final diagnosis was made. In my "normal" life, I work as an instructional technologist for a community college, and also teach part-time for that college. I am the mom to two wonderful kids, Alex who is 8 and in the 3rd grade, and Aleice who is 4 and in preschool. I've been married for 14 years to the same incredible man who has been by my side through the past four months supporting me and encouraging me. We are active members of the church of Christ in our hometown and are trying to stay active even through the recuperation after two major surgeries. I am hoping that I can start back to work on December 3rd after not working since August 1st. My employer has been incredibly supportive through this whole process and have even provided monetary support through donations. I am still trying to learn about my particular kind of cancer. It doesn't seem to have a lot of information "out there" but it appears mine is a slow growing cancer as there were no changes in the size of the tumors from August to October. If anyone has any further information about this cancer, I'd love to read it. Thank you in advance for the encouragement I will receive. I never thought I would walk this cancer path and it's been very scary, but I see God put people in my path constantly who can encourage me. Hugs and thanks. Lorie