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Bruce u

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Posts posted by Bruce u

  1. I was diagnosed with COPD maybe 6 months after my Lobectomy so over 11 years ago. I think you will certainly find it better by taking the inhalers on a regular basis. I get lots of exercise with owning a hobby farm so I don't go to a gym. Just had a stress test for my heart and the Doctor told me to keep doing what I am doing because everything looks good.

    For sure would be great to exchange email/phone numbers with you. Been friends on here for a long time. It tried messaging you the information but I got a reply saying that you cannot receive messages. Maybe Kate or one of the other moderators can assist.

  2. I was diagnosed with COPD maybe 6 months after my Lobectomy so over 11 years ago. I think you will certainly find it better by taking the inhalers on a regular basis. I get lots of exercise with owning a hobby farm so I don't go to a gym. Just had a stress test for my heart and the Doctor told me to keep doing what I am doing because everything looks good.

    For sure would be great to exchange email/phone numbers with you. Been friends on here for a long time

  3. Hey Eric

    I am not sure if you posted this elsewhere but I will reply here and a Moderator can move it.

    I was very active and played alot of sports until I had a Lobectomy and my Upper left lobe removed. Shortly after that I was diagnosed with COPD. I certainly cannot play sports anymore but do remain quite active. I am my own worst enemy by not taking the inhalers on a regular basis but do the take as required approach. I find that if it is a prolonged physical activity I get out of breath very quickly. If I was a racehorse they would say that I am good out of the gate but not much for stamina. So hang in there old friend but take your inhalers regularly and they tell me it makes a big difference. 

  4. Hi Vanitha

    I was fortunate that my lung cancer was found early by accident as well. I had an upper left lobectomy and was staged 1B. I followed that with 4 rounds of a Vinerolbine/Cisplatin combination. Be careful of the Cisplatin that has a side effect of ringing in the ears. No one told me about it and after 3 rounds I mentioned it to the Oncologist who told me of the side effect and they switched it to Carboplatin. By that time it was too late and the hearing damage is permanent. The good news is that was 11 1/2 years ago so hang in there even though and you can get through the chemo.

  5. Hi Louise

    You have received alot of good advice and I am sure you will receive alot more.

    i just wanted to comment on chemo afterward.  I was diagnosed in 2007 with stage 1B and I had my upper left lobe removed by VATS surgery. I became a member of this site shortly after and met alot of great people with good advice. At that time they did not recommend chemo for stage 1. Because of advice i received here I pushed for adjuvant chemo and even had to get a second opinion. I was not looking forward to chemo but I felt I wanted to throw everything at it in hopes of preventing a recurrence. I was concerned of stray cells that got away before the surgery. I also thought if it got too bad to have all 4 rounds then whatever I had was a benefit. I did complete all 4 rounds and found it was not as bad as I expected. 

    I just got my annual results this week and I am still all clear 11 years out. i would certainly discuss adjuvant chemo with your Oncologist.

  6. Lexiecat

    I had a lobectomy by VATS on my upper left lobe. I had surgery on a Friday, most everything was unhooked on Saturday and the rest on Sunday. Monday morning I was released from hospital and took a 1 1/2 hour flight home Monday evening. It sounds like you have been doing your preparation and research. Rest when you need to and eat as much or as little as you like. It was not near as bad as I had expected but don't push it even if you do feel ok.

  7. Hi buzzy

    Great advice from everyone. I had my upper left lobe removed in 2007 and have been all clear since. On a ct scan in march, ground glass opacity showed up in my right lung. The radiologist thought it may have been an infection and suggested a follow up ct in 4 months. On the July ct scan every thing was all clear. They think it was just an infection from the flu I had in February. 

  8. I think you have been given great suggestions by Tom and Bridget. I had VATS surgery and my upper left lobe removed in 2007. I think for everyone the recovery will be different but mine was a lot easier than I expected. I had my surgery on Friday, was released from hospital on Monday morning, and took a 1 1/2 hour flight home that night. The next morning I had someone drive me into the office for a 20 minute visit. Now I still needed plenty of help and rest and certainly could not run a marathon. I think you should prepare to not go up stairs for the first few days. Even a couple weeks later I had to go for a Doctor's appointment and had to park a little farther away. I had a difficult time walking the distance. Just take it easy and let your body heal.

  9. Hi Yovana

    Like you I had VATS surgery but on my upper left lobe. Lymp nodes and margins were clear. I followed that with 4 rounds of adjuvant chemo. That was in 2007 and I have been NED ever since. Vats surgery was not recommended for Stage 1B but I really pushed to have it and glad I did. The lower left lobe is 30% while the upper lobe is 70% so that should help you as well. You can do this and as Tom said, be vigilant with the testing. You have to be your own advocate on this journey.

  10. Hi KS

    I had my upper left lobe removed in 2007 and have been NED since. In March i had a CT scan and Ground Glass Opacities sowed up in 2 lobes of my right lung. I had Pneumonia before that and the Radiologist said it may be infection and recommended another CT in 4 months for comparison. I had it last Friday and got my results Monday and it was resolved so must have been infection. I was finding the lymph nodes on both sides of my chest but that has gone as well. So hopefully it is just from an infection.

  11. I had an upper left lobe lobectomy followed by 4 rounds of adjuvant chemo in 2007. Been NED since until a march ct showed ground glass opacity in two lobes of right lung. I had just gotten over pneumonia so was hoping it was infection but my gp and surgeon were very concerned. Had a follow up ct and results today said previous opacities were resolved and no metastis seen. Sounds good to me.

  12. HiDebi

    I had a Cisplatin/Vinerolbine combination. Cisplatin is a difficult chemo drug. I know one of the side effects is "ringing in the ears" and the damage is permanent. My fourth treatment, the Cisplatin was changed to Carboplatin and I found it much easier.

  13. Thanks Tom I appreciate your reply.

    I have done alot of research over the last 8 years on cancer but never had any reason to research GGO.

    So if it is just infection from the Pneumonia, they will just disappear? I know was still feeling congested the day I had the CT scan but it is a 7 week wait so I went not knowing about GGO's. I had a chest x ray the end of November and that was all clear. The Ct scan was for something else but i asked my GP to add the chest.

    Two weeks after my CT scan I went for a PFT. The results were the same as last year with the exception of the diffuser test. That one was just a few percent lower and the Respitory Technologist attributed it to lasting effects of the Pneumonia. She also said it is common for that test to fluctuate.

  14. I had a lobectomy on my left lung in 2007 and have been NED since. On a CT scan last month, there was what the Radiologist termed Opacities in the middle and lower lobe of the right lung. I think this is referred to as Ground Glass Opacity. Seven days before my CT scan, I was diagnosed with Bronchitis/Pneumonia. The Radiologist had in his report that the opacity may be from infection/inflammation and recommended to do another CT scan in 4 months. My GP set up an appointment with the original surgeon who did the lobectomy. She wanted his opinion on if he should do a scope to get a biopsy instead of waiting. He didn't mention that but referred me for a PET scan. He did say that Pneumonia may have been the cause of the opacity. I spoke with his secretary yesterday and she said that she understood it was now being changed to a CT scan. I am certainly hoping it is just infection from the Pneumonia. Just wondering if any other members have any experience with this Ground Glass Opacity ?

  15. Hi Elaine

    I had a lobectomy in 2007 with my upper left lobe removed. I had the surgery on Friday and was released from hospital Monday morning and took a 1 1/2 flight home Monday night. Now when I got home i was pretty wiped out but still I got a ride and dropped into my office the next morning for a few minutes. Then I did very little for the next week or so but was going around the house. So I did not find the surgery too bad. I do find that side a little every now and then but nothing serious. For me it was nothing like I had imagined it would be. I think everyone will recovery differently but they have also made alot of improvements for surgery recovery. Are you having VATS surgery?

  16. Hi John

    I think most people find that after you start treatment it helps with the stress level. You start to feel more positive and moving forward. I was diagnosed in 2007 and like you I read anything and everything about lung cancer I could find. It is good to do some research because I do think you have to be your own advocate on this journey. But like Tom has said, those stats do not take alot of things into account. Everyone reacts differently to different treatments. Alot of those stats are older and do not reflect the progress in treatments over the last few years. I was told I had a 12% chance to still be alive in 5 years. Even Oncologist and Doctors lump you into a category. Everyone will be telling you to stay positive but that is easier said then done. No that you have started tratment try to focus on that and read all the good news stories you can. There are lots of those out there too. take care

  17. I too was very scared when I started chemo. I think for me it was because I had heard so many horror stories of others who had chemo. Those stories are in the past and now they have meds that can help with the side effects.

    After my first treatment I felt great and didn't think I needed to take the meds I was given. Big mistake!! Take the meds and keep your chemo team updated on how you are doing. They will be able to help and maybe change your meds if they know what is going on. I found that a side effect of the steroid I was taking can make you very agitated. I had a cisplatin/vinerolbine combination which was switched to carboplatin for the last treatment. I found that alot easier than the cisplatin. Along with ringing in the ears, pay attention to any pain in the lower back when you are getting the chemo IV. It is not a common concern but a new nurse tried doing it too fast and kidneys began hurting.

    The chemo was not near as bad as I was expecting and I'm sure you will be the same. Take care

  18. I learned early in this journey that you have to be your own advocate. If I had just accepted what I was told in the beginning my story may have been different.

    That journey may be frightening Christine but there are alot of good news stories like mine as well.

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