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Bruce u

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  1. Like
    Bruce u got a reaction from Vanitha in Stage 2B Adenocarcinoma   
    Hi Vanitha
    I was fortunate that my lung cancer was found early by accident as well. I had an upper left lobectomy and was staged 1B. I followed that with 4 rounds of a Vinerolbine/Cisplatin combination. Be careful of the Cisplatin that has a side effect of ringing in the ears. No one told me about it and after 3 rounds I mentioned it to the Oncologist who told me of the side effect and they switched it to Carboplatin. By that time it was too late and the hearing damage is permanent. The good news is that was 11 1/2 years ago so hang in there even though and you can get through the chemo.
  2. Like
    Bruce u got a reaction from Road bum in Question on Lobectomy Recovery   
    Hi Elaine
    I had a lobectomy in 2007 with my upper left lobe removed. I had the surgery on Friday and was released from hospital Monday morning and took a 1 1/2 flight home Monday night. Now when I got home i was pretty wiped out but still I got a ride and dropped into my office the next morning for a few minutes. Then I did very little for the next week or so but was going around the house. So I did not find the surgery too bad. I do find that side a little every now and then but nothing serious. For me it was nothing like I had imagined it would be. I think everyone will recovery differently but they have also made alot of improvements for surgery recovery. Are you having VATS surgery?
  3. Like
    Bruce u got a reaction from hope16 in Stage 2B Adenocarcinoma   
    Hi Vanitha
    I was fortunate that my lung cancer was found early by accident as well. I had an upper left lobectomy and was staged 1B. I followed that with 4 rounds of a Vinerolbine/Cisplatin combination. Be careful of the Cisplatin that has a side effect of ringing in the ears. No one told me about it and after 3 rounds I mentioned it to the Oncologist who told me of the side effect and they switched it to Carboplatin. By that time it was too late and the hearing damage is permanent. The good news is that was 11 1/2 years ago so hang in there even though and you can get through the chemo.
  4. Like
    Bruce u got a reaction from Tom Galli in Newbie - Husband has NSCLC adenocarcinoma, Stage I   
    Hi Louise
    You have received alot of good advice and I am sure you will receive alot more.
    i just wanted to comment on chemo afterward.  I was diagnosed in 2007 with stage 1B and I had my upper left lobe removed by VATS surgery. I became a member of this site shortly after and met alot of great people with good advice. At that time they did not recommend chemo for stage 1. Because of advice i received here I pushed for adjuvant chemo and even had to get a second opinion. I was not looking forward to chemo but I felt I wanted to throw everything at it in hopes of preventing a recurrence. I was concerned of stray cells that got away before the surgery. I also thought if it got too bad to have all 4 rounds then whatever I had was a benefit. I did complete all 4 rounds and found it was not as bad as I expected. 
    I just got my annual results this week and I am still all clear 11 years out. i would certainly discuss adjuvant chemo with your Oncologist.
  5. Like
    Bruce u got a reaction from BridgetO in Newbie - Husband has NSCLC adenocarcinoma, Stage I   
    Hi Louise
    You have received alot of good advice and I am sure you will receive alot more.
    i just wanted to comment on chemo afterward.  I was diagnosed in 2007 with stage 1B and I had my upper left lobe removed by VATS surgery. I became a member of this site shortly after and met alot of great people with good advice. At that time they did not recommend chemo for stage 1. Because of advice i received here I pushed for adjuvant chemo and even had to get a second opinion. I was not looking forward to chemo but I felt I wanted to throw everything at it in hopes of preventing a recurrence. I was concerned of stray cells that got away before the surgery. I also thought if it got too bad to have all 4 rounds then whatever I had was a benefit. I did complete all 4 rounds and found it was not as bad as I expected. 
    I just got my annual results this week and I am still all clear 11 years out. i would certainly discuss adjuvant chemo with your Oncologist.
  6. Like
    Bruce u got a reaction from Susan Cornett in Newbie - Husband has NSCLC adenocarcinoma, Stage I   
    Hi Louise
    You have received alot of good advice and I am sure you will receive alot more.
    i just wanted to comment on chemo afterward.  I was diagnosed in 2007 with stage 1B and I had my upper left lobe removed by VATS surgery. I became a member of this site shortly after and met alot of great people with good advice. At that time they did not recommend chemo for stage 1. Because of advice i received here I pushed for adjuvant chemo and even had to get a second opinion. I was not looking forward to chemo but I felt I wanted to throw everything at it in hopes of preventing a recurrence. I was concerned of stray cells that got away before the surgery. I also thought if it got too bad to have all 4 rounds then whatever I had was a benefit. I did complete all 4 rounds and found it was not as bad as I expected. 
    I just got my annual results this week and I am still all clear 11 years out. i would certainly discuss adjuvant chemo with your Oncologist.
  7. Like
    Bruce u got a reaction from Fred G in Countdown to Monday morning surgery   
    Surgery will be over before you know it and within a couple days will be up going around.
    All the best for on your results
  8. Like
    Bruce u got a reaction from Tom Galli in Countdown to Monday morning surgery   
    Surgery will be over before you know it and within a couple days will be up going around.
    All the best for on your results
  9. Like
    Bruce u got a reaction from LexieCat in Countdown to Monday morning surgery   
    Surgery will be over before you know it and within a couple days will be up going around.
    All the best for on your results
  10. Like
    Bruce u got a reaction from LexieCat in Surgery/recovery tips   
    I had my surgery in September 2010 so getting close to the 10 year mark.
    I have chest x-rays once a year now.
    I think my nodule was 1.5cm but near a blood vessel so they staged it at 1b instead of 1a
  11. Like
    Bruce u got a reaction from LexieCat in Surgery/recovery tips   
    Lexiecat
    I had a lobectomy by VATS on my upper left lobe. I had surgery on a Friday, most everything was unhooked on Saturday and the rest on Sunday. Monday morning I was released from hospital and took a 1 1/2 hour flight home Monday evening. It sounds like you have been doing your preparation and research. Rest when you need to and eat as much or as little as you like. It was not near as bad as I had expected but don't push it even if you do feel ok.
  12. Like
    Bruce u got a reaction from MaryTD777 in One nodule in each lung   
    Hi buzzy
    Great advice from everyone. I had my upper left lobe removed in 2007 and have been all clear since. On a ct scan in march, ground glass opacity showed up in my right lung. The radiologist thought it may have been an infection and suggested a follow up ct in 4 months. On the July ct scan every thing was all clear. They think it was just an infection from the flu I had in February. 
  13. Like
    Bruce u got a reaction from Tom Galli in new to the forum about to have surgery need some advice   
    I think you have been given great suggestions by Tom and Bridget. I had VATS surgery and my upper left lobe removed in 2007. I think for everyone the recovery will be different but mine was a lot easier than I expected. I had my surgery on Friday, was released from hospital on Monday morning, and took a 1 1/2 hour flight home that night. The next morning I had someone drive me into the office for a 20 minute visit. Now I still needed plenty of help and rest and certainly could not run a marathon. I think you should prepare to not go up stairs for the first few days. Even a couple weeks later I had to go for a Doctor's appointment and had to park a little farther away. I had a difficult time walking the distance. Just take it easy and let your body heal.
  14. Like
    Bruce u got a reaction from AZhikeryogirunner in Hello from Arizona~ new member   
    Hi Yovana
    Like you I had VATS surgery but on my upper left lobe. Lymp nodes and margins were clear. I followed that with 4 rounds of adjuvant chemo. That was in 2007 and I have been NED ever since. Vats surgery was not recommended for Stage 1B but I really pushed to have it and glad I did. The lower left lobe is 30% while the upper lobe is 70% so that should help you as well. You can do this and as Tom said, be vigilant with the testing. You have to be your own advocate on this journey.
  15. Like
    Bruce u got a reaction from KSgirl in Guidance & what to expect   
    If you can put it out of your mind and enjoy life it would be great. Just after my lobectomy I had a touch of the flu and was automatically thinking the worst. I told my oncologist about it and he looked at me and asked " you never had the flu before you got cancer?"
  16. Like
    Bruce u got a reaction from Clarinet bob in Ct scan results   
    I had an upper left lobe lobectomy followed by 4 rounds of adjuvant chemo in 2007. Been NED since until a march ct showed ground glass opacity in two lobes of right lung. I had just gotten over pneumonia so was hoping it was infection but my gp and surgeon were very concerned. Had a follow up ct and results today said previous opacities were resolved and no metastis seen. Sounds good to me.
  17. Like
    Bruce u got a reaction from KatieB in Ct scan results   
    Thank you Katie and Donna. Almost 9 years and still get scanxiety !!!
  18. Like
    Bruce u got a reaction from RuthieThomas in Ct scan results   
    I had an upper left lobe lobectomy followed by 4 rounds of adjuvant chemo in 2007. Been NED since until a march ct showed ground glass opacity in two lobes of right lung. I had just gotten over pneumonia so was hoping it was infection but my gp and surgeon were very concerned. Had a follow up ct and results today said previous opacities were resolved and no metastis seen. Sounds good to me.
  19. Like
    Bruce u got a reaction from LaurenH in Ct scan results   
    I had an upper left lobe lobectomy followed by 4 rounds of adjuvant chemo in 2007. Been NED since until a march ct showed ground glass opacity in two lobes of right lung. I had just gotten over pneumonia so was hoping it was infection but my gp and surgeon were very concerned. Had a follow up ct and results today said previous opacities were resolved and no metastis seen. Sounds good to me.
  20. Like
    Bruce u got a reaction from CindyA in NED   
    I just got my latest chest x-ray results and still NED since September 2007 Lobectomy. I give credit to members on this website encouraging me to push for adjuvant chemo.
  21. Like
    Bruce u got a reaction from RandyW in Old Friends   
    Hey Randy, Katie
    I'm doing good and just staying busy.
    I haven't seen Alex in awhile Randy and no I don't watch Ice Road Truckers. LOL There is another show similar to that being filmed in Yellowknife as well. That one is living on a houseboat. Are you still working hard in the food industry?
    Katie I read a little about you every now and then on here. Still doing alot of public speaking and traveling? How are the kids ?
  22. Like
    Bruce u got a reaction from KatieB in Old Friends   
    Missed you as well Ms Texas
  23. Like
    Bruce u got a reaction from Tom Galli in Old Friends   
    I haven't posted for awhile but still drop in every week. i joined here in 2007 shortly after I had VATS surgery and my upper left lobe removed. LCSC was my lifeline when I had alot more questions than answers. i know there was a lady named muriel who convinced me to push for adjuvant chemo and that has worked out good so far.
    just wondering if any of the old gang is like me just reading and not posting these days.
  24. Like
    Bruce u got a reaction from lginther in Seven Years   
    Morning everyone
    I know it has been quiet here but thought I would post this because it may be encouragement and hope for others.
    In September 2007 I had my upper left lobe removed and was staged 1B. My surgeon and Oncologist said I was good to go and required no further treatment. From reading on this site and talking to other members, I found out about adjuvant chemo. I asked my Oncologist about it and he said it was not given for lower than stage 2. I pushed for it and he checked with his Oncologist team. They were divided on it. I requested the chemo and did 4 rounds. They even wrote on my chart that research did not support my decision. Go ahead seven years, yesterday I got another NED result. If I had not been a member of this site or gotten suggestions from members here, who knows if the result would be the same. I give credit for my NED result to having adjuvant chemo. I give credit to this site for me finding out about adjuvant chemo. I know one member, Muriel, really pushed me to get it and I can never thank her enough.
    This site is important especially for people just beginning this journey. Take a minute to not only read but to post as well.
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