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luluc

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  1. I can relate to all of your experiences. I had an experience that I was wondering if anyone else that has lost someone has experienced. I was shopping,not thinking of him,at that time,and saw a man and woman shopping together. The man looked so much like my brother before the cancer. I was drawn to look closer, just out of curiousity. I knew it was not him,just wondered what other characterisitcs he had that were similiar. And then he said to his wife,"we are out of chocolate". I know that lots of people love chocolate. My daughter jokingly said,yeah that is strange,hardly anyone else likes chocolate! I know that I was only looking for similarities. I realize why this happened. I simply miss him. I joked that maybe I have a half brother we didn't know about.
  2. luluc

    Iressa poll

    My brother continued taking Iressa as long as he could get prescriptions from his onc. One day his onc said,it is not working any longer. He had no test to support this. The test actually were done after this comment,and were found to have stabilized the tumors. As long as he took it every day,they did not grow. When told that he could not get another refill,he decided to take them every other day, so they would last longer. That is when the tumors started to grow again. And spread to other areas. He did have side effects,but felt it was worth it. There was shrinkage and stabilization when taken properly. When answering the poll,there was not the option to answer as follows: oncologist make more money when giving chemo as treatment. There is no profit in writing a prescription every few months. Doctor took patient off Iressa while stabilized.
  3. Does anyone have any information on where a person can donate unused meds? Can't seem to find anyone willing to accept them. Something about the laws,everywhere we ask.
  4. luluc

    need advise

    Can anyone tell me how to get the info from the hospice unit,concerning his meds that were administered the last few hours. Does the family have the right to the records at a inpatient hospice unit.......only there for 6.5 hours.
  5. luluc

    My Big Brother

    My brother flew to Jesus on Friday,June 4 at 6:05pm He was ready to go to his new home,he told our Dad several weeks earlier. He was diagnosed Oct.2002. The medical doctors told us he will live three months at the most. He always had to do things "his own way" and proved them wrong more than once. He lived and fought this for 19 months,and two weeks. Please if anyone prays,add his daughter,whom was his only caretaker throughout the past 19 months. Hospice started three weeks before,and never controlled his pain. Prayers for his two children who hurt so much,and for his Dad who is elderly and having a great deal to handle at 84 years old. Thank you Don Wood for sharing with us. We appreciate you,once again. Cheri
  6. http://www.msnbc.msn.com/id/5128204/?GT1=3584
  7. Has anyone any experience with hospice that was not a positive one?
  8. The Today Show had a segment on Iressa. http://msnbc.msn.com/id/4864233/ http://msnbc.msn.com/id/4864060/
  9. Has anyone any experiences with Methadone for cancer pain?
  10. Has anyone experienced the patient being extremely thirsty? Drinking lots more water than normally? Strange cravings? Anyone want to share anything about this subject?
  11. luluc

    OFF IRESSA

    I don't feel like it didn't work. I am thankful for it. It did for awhile. Then at one of the appointments his onc said that he wouldn't refill his Rx. With this info,he decided to "experiment" with what he had left. He started taking it every other day. The Ct scans did not support the dr's decision at that time. But, he wasn't the one to come up with the idea to begin the Iressa originally. My brother's daughter and I had read about it. His dr. did not know anything about the "new experimental drug" at this point. He told him he had a couple of weeks at best, and suggested a chest tube procedure, if he wanted to stay around an extra couple of weeks. We asked for the Iressa, and with much hesitation on his part agreed to it. He also had to go off of it a couple of others times when in the hospital having some procedures done. That was also a few days. The side effects are not the reason for stopping, the tumor growth is the reason. Everyone who's taking Iressa and doing well, keep doing it until reports or side effects are worse than you can manage with. I believe there is hope still for many. I am glad that it gave us a lot more time. That, and the grace of God.
  12. luluc

    OFF IRESSA

    My brother has been told to stop the Iressa. It isn't working any longer they said. He has had several side effects to leave since stopping. The swelling has gone down in his face and feet. The other painful and bothersome side effects have stopped. But, the tumors are growing, and have spread. Hospice is being called. If it were I, I would have tried it,too. It can still be a very good answer to many people.
  13. Has anyone had experience with muscle weakness,is this part of the symptoms to expect? Trouble using hands,etc...? No answers from dr. about this.
  14. The Purpose Driven Life is written by Rick Warren,and is a wonderful book to learn about yourself. Our church is having a 40 day event using this as our study guide. We had a satellite viewing of Rick speaking,and every week we have another video of him,before our short study on the book. It makes you really think about what is important in life. I have noticed that you can also purchase this on audio tape(much higher price) Our little group reads a chapter a day. We also have memory verse key rings that are on the subject that particular week. The pastor's sermons are on this subject as well. There were 3000 churches watching the satellite at the same time. Seems more than a coincidence that the Passion of the Christ movie came out, near the same time as this 40 days of purpose campaign. We are preparing to find out what our purpose really is. The book is available at Walmart and Sam's in the $10.00 range. Great book! Rick Warren is a pastor at Saddleback church in California. http://www.purposedrivenlife.com
  15. ONCE A BAPTIST, ALWAYS THINK LIKE A BAPTIST John Smith was the only Protestant to move into a large Catholic neighborhood. On the first Friday of Lent, John was outside grilling a big juicy steak on his grill. Meanwhile, all of his neighbors were eating cold tuna fish for supper. This went on each Friday of Lent. On the last Friday of Lent, the neighborhood men got together and decided that something had to be done about John, he was tempting them to eat meat each Friday of Lent, and they couldn't take it anymore. They decided to try and convert John to be a Catholic. They went over and talked to him and were so happy that he decided to join all of his neighbors and become a Catholic. They took him to Church, and the Priest sprinkled some water over him,and said, "You were born a Baptist, you were raised a Baptist, and now you are a Catholic." The men were so relieved, now their biggest Lenten temptation was resolved. The next year's Lenten season rolled around. The first Friday of Lentcame, and just at supper time, when the neighborhood was setting down to their tuna fish dinner, came the wafting smell of steak cooking on a grill. The neighborhood men could not believe their noses! WHAT WAS GOING ON? They called each other up and decided to meet over in John's yard to see if he had forgotten it was the first Friday of Lent? The group arrived just in time to see John standing over his grill with a small pitcher of water. He was sprinkling some water over his steak on the grill, saying, "You were born a cow, you were raised a cow, and now you are a fish."
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