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MrsB

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  1. MrsB

    Size of tumor

    My husband's was 2.6, shrank 10% after 3 rounds of chemo. However, still producing cells (which were found in spinal fluid) and met in brain. Tumor was located high up in the right lobe. Caused pleural effusion initially, which is how the diagnosis was made. MrsB
  2. Just read about Omaya port / reservoir being the way to get chemotherapy through spinal fluid without going through the back like a spinal tap. Has anyone had this procedure? Looking for solutions. MrsB
  3. This morning the case manager called to tell me that the team of specialists want to meet with me. I had talked to the neurologist yesterday and he told me treatment would be radiation / chemotherapy. My husband was disoriented yesterday and this morning's call from the case manager (her first to me) was pretty doom and gloom. I am asking for copies of reports WITH CONCLUSIONS, not just lab figures. They want to TALK. I would like to see recommendations and assessments in writing as well. I want to give my husband every chance to fight this, yet I feel that when I go down to see them they will paint a very bleak picture. Called my sister-in-law to accompany me for moral support. Called my husband this morning and he was not disoriented. Treatment will involve being near the hospital where he is right now because there is no radiation facility right here near us. So, this sounds like a skilled nursing home. Being with so many strangers, and short term memory problems leads to lots of disorientation for him. I want him to get the treatments and not give up. Please pray for us as we make these critical decisions. I think he deserves the best opportunity to fight. I think they will advise me otherwise, but I will not agree to that. It has been 6 weeks since any chemo while we waited for an appointment and then test results. I think that's long enough to wait for sosme kind of positive action. Think it's time to resume treatment, time is of the essence. Has anyone out there come across similar circumstances? Are cancer cells in the spinal fluid more serious than tumors / lesions? My husband's vital signs continue excellent. MrsB
  4. I hope things continue to go well for you. You are always so positive. I read many of your posts before actually signing on myself. Personally, I think you show such great leadership and example. Continued progress MrsB
  5. I'm new to this group. Very worried, as all of this is happening very fast. Cancer cells were found in my husband's spinal fluid during testing. Looks like radiation / chemo will be next plan of action. Should I be asking about particular procedures over others? Has anyone there experienced these ministrokes as well? Am getting overwhelmed. Any advice, or words of wisdom from this caring and knowledgeable group would be appreciated. Thank you. MrsB
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