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debbren

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Everything posted by debbren

  1. Thank you all for your responses. I will see what Dr. West thinks as well...continued good luck to you all...I will be in touch. Debbie
  2. My mom has now had 2 tx with Carbo/Taxol, tolerated well. She is on cumadin for a pulm. emb. and being a Nurse Practitioner myself, I was very keen to have her have the option of Avastin as well (my father in law survived 6 yrs with stage 3-4 NSCLC, used Avastin in the trial phase-had ruptured intestines to put it bluntly, but he lived much longer than they expected) After reading the "Moss Report" on Avastin , it doesn't sound that rosey actually. Not the results according to many "studies" that I had been hearing,or hoping for. My sister in law has glioblastoma (brain tumor), and despite her having blood clots in her leg, on blood thinners, she is taking Avastin in combination. So...my real question is...how many of you, despite having clotting issues, where put on Avastin, and how is it going? Thank you so much.....Debbie
  3. Has anyone tried this product and what do you think (besides it tastes bad??) Hearing lots of interesting things about it. Thank you...
  4. Hi All, Just joined and greatful for the insights. Mom DX on 12/5/07 CXRAY for SOB. Noted to have 3cm tumor in Rt Lung, and adenopothy, and PE.(clot) 12/7/07 CT showed large PE- Heprinized....lung biopsy...hemithorax..resolved. 12/18/07 ..Pet Scan no Mets.. 12/26/07 Brain Scan no Mets, Plueral Effusion increasing 1 liter. 12/28/07 First Chemo with just Carbo and Taxol only, Dr. will consider Avastin because I am begging him! Tolerated well 12/31/07 CVP placed, thoracetesis (300cc only) no extra o2 needed now. Mom continues to ride her bike and walk, appetite excellent. Met with a Holistic Nutrutionist. Mom is on lots of good supplements, and greens, and maintains an excellent diet, lots of fruits and veg. Will start Haelon 951 fermented soy product as soon as it arrives this week. Hoping it will help her tap her body's own storehouse of mircles!! 1/14 CVP checked, itchy, tender but ok, no hair loss yet. Some tingling in toes, scalp, blurred vision. Would love to know more about Avastin experiences from anyone...2 loved ones got amazing results, but reports not so positive....
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