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leslieb

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Everything posted by leslieb

  1. Thank you all for the support and advice. I really appreciate it. I have had a 2nd and 3rd opinion - (from UCLA and USC)all in agreement with the course of treatment to date. We are thinking of going for another opion to City of Hope or Mayo Clinic in Phoenix. We live midway between Los Angeles and San Diego - but are willing to go where the cure is. If anyone knows of a good Oncologist in the South Orange County area, it would be great. I have one more chemo in my series left and then I will make a decision. Another question - the oncologist is pushing for whole brain radiation at the end of the chemo. But my brain surgeion says that since I have reacted to the chemo so well, I don't need it. I have read terrible things about the radiation - that 10 months from now it could cause anything from minor loss of memory (which I am already having) to dimentia!! It is so frightening. I know some of you have experience this - what do you think? I love being able to ask these questions and get your thoughts - it means so much Leslie
  2. On 10/16/07 I was diagnosed with SCLC in my lung with two mestastices to my brain. Never in a million years did I think that I might become a statistic. One of the brain tumors was removed surgically on 10/18 and the rest has been treated with chemo, cyber knife, etc. Treatment is going well, the tumors are almost gone and I only have two more chemo sessions to go. I thought I was doing GREAT and was on my way to recovery until yesterday when I had an appointment with my oncologist. Over the last 3 months he has been very reluctant to talk about future treatments etc and suggested we just take everything one day at a time. Yesterday in answer to some questions he could not sluff off, he cut the hope and positive attitude right out of me by telling me that an 8-10 month life span was average and that I could hope for a litte more, but not alot. He acutally laughed when my husband say could she survive 10 years and he said he had never known anyone to live that long. I felt so numb when I left I didn't know what to do. I am hoping that I can find some inspiring stories here. I know now that I cannot listen to doctors - it is not in anyone's best interest- I suppose they are afraid of being sued, but it is sad what they can do to you. Please - tell me some good resutls. Also if anyone has any input on whole brain radiation, let me know. The doctor wants to do it, but I am not sure. Leslie
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