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Trawna

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Posts posted by Trawna

  1. Hi Sara and wecome to the best site on the web for LC fighters/ a caregiver not a survivor, but I can assure you that the people here are absolutely supportive and I am glad that you got up the courage to tell your story. I know there are many people here who can support you as you go through this fight. It's great that you have a strong support system at home, too. I gather you are a Royals fan: baseball is my favourite sport (being from the Toronto area I have to cheer for the Blue Jays!). In your honour I will make the Royals my second-favorite team for the year.

    Glad you have a plan in place to fight this beast, and wishing you the best. Will watch for your future posts, and do keep posting and checking on this site and on cancergrace.org which are the best sites on the net that I have found for helpful advice and neverending support.

    Regards from Toronto,

    Jane

  2. Great picture, Ronnie, and I am sure you must be happy that she is now back free and living a wonderful jackal life! I'm so glad you will continuie to visit the sanctuary, I'm sure it will be a

    healing place for you. Wish I had one here to visit!

    Kind regards from Canada,

    Jane

  3. Hi CathieAnn,

    To borrow from Ned (since you are from Hawaii) his usual greeting ... "Aloha".

    I am indeed sorry that you have to be here, but I have found this site very comforting and supportive, and I am sure you will too. We've all been there, either as a patient or a caregiver or a close family member, so feel free to share your thoughts and feelings as you go through this tough period. I gather that you have a very supportive family, and they will help you, too.

    May you be continue to be positive and upbeat, but also realistic (which is just how your post came through to me, I may be wrong). The waiting for treatment is always the hardest part in that you know the cancer is there and nobody seems to be doing anything about it. Once you get the schedule for the chemo and radiation I think you will feel a bit more settled.

    My best to you and your family: as everyone says this is a rollercoaster ride and you will have good days and not-so-good ones. Do post and let us know how your Dad is doing. (((hugs))) to you all.

    Jane

  4. Hi Katy, you have mine for sure.

    I lost my husband of 50+years a bit more than 20 months ago, so this was my second holiday season without him. It doesn't make it easier (tears still well up any time anyone mentions him and I still cry myself to sleep many nights) but it does become more bearable in the sense that the immediate tends to take precedence over the past. For example, I found it impossible to shop for people for Christmas last year, as every time I did I would think of the two of us doing it together, mulling over what we thought each person would like, and so on). So last year everyone got gift certificates. This year I was able to shop without him (although all things I bought were filtered through his eyes via my brain). So I send you my heartfelt wishes for a better year in 2011, and to the researchers and doctors working for LC patients, and please know that many of us have been or are going through your experiences, and that the grief is awful but survivable. I know exactly what you mean re those New Years shows they are the ones that I switch off the TV immediately!

    ((((hugs)))to you and condolences to both you and your friend's family.

    Jane

  5. Hi Eric,

    I'm about 40 minutes outside (NW) of Toronto (Trawna as the locals call it) so try and work that into your schedule. I think your Scottish winter is much like ours so you shouldn't feel too out-of-place. Not as cold as at Bruce's, but possibly more snow so bring your mittens and your toque (warm head covering) and you should be fine!

  6. Hello Tony and welcome to the site you wish you didn't have to be at. But there are lots of folks here, both survivors and caregivers, who may be able to help you as you navigate this new ocean of change.

    Eric, as a Canadian I totally understand and agree with your view on healthcare costs amd payment. My husband had kidney cancer in 1992, a heart attack and stroke in 2001, a triple bypass in 2001, and lung cancer for which he was treated for between 2007 and 2009, and if we had not had medicare we would have had to sell the house to pay for the treatments. Instead, it cost me for the PET scan ($3000) which was not covered, plus approximately $600 all up. In addition, in 2008 I had a hip replacement plus a week in rehab, again which cost us about $450 all included. We didn't get this for nothing, we had paid into medicare (both of us) for almost 40 years, but the bottom line was that when we needed it the costs were covered. It makes such a difference when you are very ill to know that you are not bankrupting your family in order to pay for appropriate treatment. In sddition, 80% of all prescribed drugs were paid for by my private insurance (and had we been over 65 we would have had all medications covered). And all this without any controversy or even forms to fill out.

    It is such a huge difference that my daughter (who is Canadian but at present a permanent US resident) and my son-in-law (American) have decided to move up to Canada permanently because, among other things, they simply cannot afford US health care premiums. My son-in-law broke his thumb 3 years ago, and just that alone cost them $10,000.

  7. Hello Michelle:

    I have been thinking of you this week and hoping that time has been okay for you. I do understand, I am still in grief and denial mode, but am hoping that you are dealing with it.

    Jane

  8. Hi Susan:

    My husband had first line cisplatin plus navelbine. While the cisplatin was tought, the navelbine was well-accepted and while he was on it he had shrinkage and all aeemed well; unfortunately he degenerated after this (first round) was completed and reacted poorly to the second line (Taxotere), but while he was on the navelbine he was doing well. Good luck, I hope the navelbine works well, wishing you the best possible outcome!

  9. ((((Michelle))). No one knows how long it will take anyone to get through theinitial grieving stage. I can only tell you that it was only after about 16 months that I started to even notice things that were going on around me --- before that, my whole brain was just "on hold". All I can suggest is that you just simply expose yourself to the possibilities of good thoughts. Take a walk on a beautiful day; stop off at a children's playground and listen to their laughter, sit and listen to bridsong. When you are coming out of it you will notice these things and that will give you a positive lift knowing that you can now notice, if not enjoy, the wonderful things that life surrounds you with. My heart goes out to you, Michelle!

    Jane

  10. Thinking of you for Monday, hugz, and keeping all my fingers and toes crossed for a successful surgery with NO COUGH afterwards! They do have great cough syrup they can give you after surgery, so make sure if they don't automatically give it to, ask for it asap. They won't want you to cough either, so they should be responsive. ((((hugz)))) for a great recovery.

    Jane

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