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wendigoal

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  1. Hello Everyone, I just wanted to let you know that my web site, www.mymeso.org, just added a new feature that I really hope will help show the impact of mesothelioma and lung cancer in the U.S. We're calling it the Meso Map right now. Basically, there's a graphic on our home page of a big map, with the words "Help Raise Awareness." When you click on that image, it takes you to a Google map page, where we have markers on a map to show where people with mesothelioma or other lung cancer are, and a brief story about them (submitted by them or ok'd by them after an interview with me). Right now I have 2 stories. One is about Charlene, who is 48 and diagnosed with meso in July 2007. The other is an interview with Phil Coady, the Chairman of the Board for the Lung Cancer Alliance, who also has lung cancer. I'm really hoping that other people will be inspired to share their story, as a way of connecting with other people and of illustrating how many people in the U.S. are affected by this disease. Please check it out, and let me know if you like it, don't like it, think we ought to change something. Any feedback is welcomed. And, if you like it, please post your story. Thank you for your time. Blessings, Wendi
  2. I watched the documentary special The Truth About Cancer, which aired on PBS Wednesday in my area (Montgomery, Alabama). This was a really well-done piece. The filmmaker, Linda Garmon, began with the story of her husband's diagnosis with mesothelioma, and ended up visiting several cancer centers and talking with patients who had a variety of different cancers, talking to oncologists and researchers. It was an emotional film, as well as providing a lot of interesting information. PBS does have the DVD for sale on its web site - you can just Google PBS and the name of the film - for about $20 if you don't get a chance to see it. Alabama Public Television is running it several times this week, and possibly more this month as well. I write a blog about mesothelioma, www.mymeso.org, so I was especially interested because the filmmaker's husband had meso.
  3. Thank you so much for your kind advice! I really appreciate the feedback. I will definitely direct Charlene to this site and to the message boards. She is very interested in expanding awareness about Meso where she lives (Rochester, NY) and talking with others who are affected by it. I'll be posting more of Charlene's story this week. This is a wonderful resource you have here. Bless you for this work.
  4. I've been talking with a mesothelioma survivor who is exploring alternative medicine. She visited the ITL Clinic in the Bahamas. I was wondering inf anyone else has tried this place? The first part of her story, which talks about her diagnosis, is posted at www.myMeso.org. Part two, about her experience with traditional treatments (chemo) will be posted today. The part about her experience at ITL will probably be up on Thursday, so check back! Feel free to email me if you'd like to contact Charlene directly. She said it is ok for me to pass along email and phone numbers to her, and she will get in touch with you.
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