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LisaM

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Everything posted by LisaM

  1. Hi all- So, now that I've calmed down.. I do think the PA was just spouting standard protocol mumbo jumbo and, as you said Welthy, isn't as familiar with my husband's case as he makes himself out to be. Oddly (and fortunately) George was more upset by the fact that he wasn't a doctor and making those statements than by what he actually said. He thinks like you do Randy! The word "incurable" never even came out of the onc's mouth when he told us the diagnosis. It was just a little disconcerting because I know this is bad but there is a lot of good mixed in and we are choosing to focus on that part. Thank you all for your support and advice- this site has been a godsend during this ordeal... Lisa
  2. So, George had his second dose of chemo today. Our dotor is out on a family emergency so we saw a PA. I have finally convinced George, in large part because of the posts on this and other sites, that this can be fought. Well, the PA says something about the fatigue being worse by the 5th and 6th rounds of chemo and George says he is only getting 3 and than having the PET scan redone to evaluate for surgery. The PA than proceeds to tell us that the cancer is "incurable" (he obviously doesn't know about this site)and his chances of having surgery are less than 50%! All this is completely new to us! It's not even close to what the doctor has said! Now what?? I was shocked to say the least and now I am just pissed. Thankfully George didn't buy what he was saying either. They tried to schedule us with him again in 2 weeks but I said "no". Our doctor is booked so we're seeing another PA prior to his next chemo round. Do I even bother broaching the subject with her or should I hust wait until we see the oncologist the following week? Sorry to vent but I can't believe the guy and how non-chalant he was! Lisa
  3. LisaM

    Hello

    Thank you all for the encouragement and the warm welcome! It's nice to have someplace to go- our friends and family are great but , thankfully, they haven't had to deal with this directly. We actually have gotten a second opinion and everyone is agreement that it's best to treat with chemo first and then proceed with surgery ( provided the repeat PET scan doesn't show any new spots). The onc thinks that given his age and good health ( no meds or other health issues) that he is a good canidate for surgery. I'm not really sure if George is in denial or just overwhelmed by it all. I work in the medical field so I understand a lot of what is being said but they may as well be speaking Greek to George. He has always relied on me to be the translator and take care of this kind of stuff. He is optimistic and feels much better knowing he doesn't have any mets in the brain. I think he finally realizing he can fight and win. Thank you all for your support!! Lisa
  4. Hi. My name is Lisa and my husband George has just been diagnosed with Stage IV NSCLC after it was discovered by accident (large mass in RT upper lobe). The have found a met in his adrenal gland. He has been completely asymptomatic. He had his first dose of chemo on Friday 3/28/08 of carboplatin and gemzar. It went well, just a little tired now. He's scheduled for a second dose 4/4/08 of just the gemzar. Is the chemo cumulative? Is he going to feel bad after Friday's dose because right now he's okay. The plan is to try 3 rounds of chemo , repeat the PET scan and if all is well, do surgery. We're both struggling to process everything as it has happened so fast (good?). I'm looking for all kinds of info and help- he doesn't want to know anything. Is this normal?? It's a nightmare.
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