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Lambypie

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    knitting, kayaking, camping
  1. Boy,I agree! The chemo and radiation were hard, but the PCI effects have been longer lasting and scarier. And the ear effects were a total surprise to me too. There's nothing in the list of side effects regarding ears. I've been able to handle it by myself, but might I suggest contacting the radiation oncology nurse for some suggestions and remedies. Mine are clearing up and going back to normal. I'm sure your Mom's will too. Good luck with everything!
  2. Hi Connie-- I was diagnosed with sclc/limited back in June of 2007. I had the usual chemo/radiation over the summer. I finished my PCI treatments the first of February/2008. I still have the ear discomfort, but only in 1 ear. A friend from another list was told to put her ear under the shower and let the warm water wash in and around it every day (do it to both ears), then tip to let the water run out, and that would help keep the wax supple. After 2-1/2 months, I'm starting to feel little tiny stubbles on my head. Your Mom's hair will probably grow back, but I hear it can take a while. I know, I get impatient too. I've had trouble with dizziness, concentration, and finding words, but it's gradually getting better. PCI offers great hope for a cure, so all the side effects are going to be worth it in the end. Stay hopeful and know it'll get better, it's just slow.
  3. GREAT NEWS! I'm looking forward to my first "anniversary. I was diagnosed June 1, 2007. Being NED is the best feeling in the world!
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