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s_meksvanh

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  1. Bucky, hi. That is an excellent question and a valid concern for anyone diagnosed with lung cancer. First, let me welcome you to the board. Wish we had met a different way nevertheless you are here and that is all that matters. Second, being scared is perfectly understandable - you and others on thsi board are faced with a very serious and potentially fatal disease - I have found that the more I know about the disease, the less fearful I became - it did not however lessen the gravity of the situation. As to your question, there is unfortunately not a simple answer. A person can be diagnos
  2. Rick, I am a dad - just like you. I have lung cancer - just like you. I have felt like crap physically, emotionally and spiritually - just like you. I was told by my doctors that I had weeks to live - just like you. I wanted to scream, to shout, to cry, to beg, to deny - just like you. But, just like me, you can choose to live. Just like me, you can discover that it is how you have lived and not how you died that matters. And in the end, just like me, you will come to realize that only God decides who lives and who dies and whether your work in this world was faithfully accomplished.
  3. Eddie, Eddie, Eddie... Every time I cross a street in the Washington metropolitan area, I have a 1 in 10 chance of being hit by a car. During rush hour traffic - my odds increase to 1 in 5. On a Friday and/or a Saturday night at just a little after midnight, the odds are 1 in 2 that I'll be hit by a drunk driver. Do you suppose that I should stop crossing streets? As a cancer survivor myself I'd urge you to stop looking at statistics (sadistics) and focus on living life. I also think that if all these years you've allowed your wife to do your laundry (and presumably your undies), tha
  4. Dear BLT - our circumstances are similar yet very different. First let me say that I am sorry that you have to go through this. I was diagnosed with non-small cell lung cancer in 1997 at age 38 - some 30 years earlier than your first diagnosis at age 68. 4.5 years into remission, I too was diagnosed with a second primary - metachronous bronchoalveolar adenocarcinoma. I lived through 2 thoracotomies, 2 lobectomies, a tracheostomy and plenty of complications - including Acute Respiratory Distress Syndrome that landed me in the ICU on a respirator for 38 days. I know how frightening this all
  5. Dean - as a veteran myself, permit me to remind you of a couple of things: Pay close attention to the highlighted parts The Code of Conduct I I am an American fighting man. I serve in the forces which guard my country and our way of life. I am prepared to give my life in their defense. II I will never surrender of my own free will. If in command I will never surrender my men while they still have the means to resist. III If I am captured I will continue to resist by all means available. I will make every effort to escape and aid others to escape. I will accept neither parole no
  6. There are in fact a number of initiatives that are beginning to address the funding, the stigma and the need for treatment alternatives. ALCASE ( http://www.alcase.org ) and the Global Lung Cancer Coalition ( http://www.lungcancercoalition.org ) are example of advocacy groups working to change the manner in which we are treated. The 10th world conference on lung cancer addressed these issues to some length. 11th August 2003 - GLCC reports: "Organisers of the 10th World Congress on Lung Cancer have taken the unprecedented step of inviting representatives from lung cancer patient organisati
  7. WHOA!!! DIDN'T MEAN TO START A FIRE STORM OR A DEBATE ON THE FINER POINTS OF THE TOBACCO CONTROVERSY. MY ONLY INTEREST IS TO GET MORE PEOPLE AFFLICTED WITH LUNG CANCER TO PARTICIPATE IN THE LEGISLATIVE PROCESS SO THAT FUNDING IS MADE AVAILABLE FOR EDUCATION, PREVENTION, TREATMENT AND RESEARCH TO COMBAT THE DREADFUL DISEASE KNOWN AS LUNG CANCER - IRRESPECTIVE OF THE CAUSE(S). MY FIGHT IS NOT WITH THE TOBACCO COMPANIES, STATE'S TOBACCO REVENUES, TOBACCO SETTLEMENT OR ANY ONE ELSE FOR THAT MATTER!!! I AM ONLY SUGGESTING THAT WE DILIGENTLY WORK TO GAIN THE ATTENTION OF THE ELECTED OFFICIALS WH
  8. Interesting how these things work... I too was fired within 3 months of returning to work - and for performance or lack thereof - or so they said. Interesting twist to my story was that they had given me a $15,000 bonus for performance and a $25,000 retention bonus if I stayed on after the acquisition (by a larger company) - all of it, one month prior to my diagnosis. Not one to lay down and cry - I filed a complaint with the EEOC and after the investigation was permitted to sue the company - I won - they paid - I laughed all the way to the bank. The suit had zero impact on my career n
  9. Overcoming the stigma is priority 1 on every advocacy groups' agenda. Lung cancer is a disease - plain and simple. Though tobacco contributes a disproportionate amount to the overall incidence rate and mortality, it is not the only cause of lung cancer. It does however make sense to impress upon the general population the importance of preventing the disease in the first place. If you never smoked, don't start. If you are smoking now, seek assistance to quit. If you are quit, stay quit and have routine annual chest x-rays as a precaution - lung cancer is potentially curable if caught ear
  10. Interesting turn of events... Having lots of time on my hands, decided to offer my services as a volunteer. Contacted the local American Cancer Society chapter and spoke to the Sr. VP for volunteerism (Mid-Atlantic Region). Told her that I was a 2 times lung cancer survivor and was interested in helping in any way that I could. She placed a few calls and got back to me within 2 weeks. I was called by the American Cancer Society's Government Relations Manager for Maryland and invited to join the Public Policy Committee. I was asked to testify on matters of local interest at the next l
  11. 13 lbs!?!?!? Wow!!!! I feel so inadequate I know I'll sprout another tumor in my ear so there!!!! All jokes aside - glad you're here. We're practically neighbors.
  12. Yes - there is - go to http://www.lungcanceronline.org - and look for the section on BAC. Karen Parles, the executive director for Lung Cancer Online is herself a lung cancer survivor (2 bouts). She is/was a librarian and has done an incredible job of categorizing the information. It's not only informative but also potentially life saving. Take the time to inform yourself because BAC - though Non Small Cell Lung Cancer - behaves very differently than other lung cancers in terms of cause (exposure to turberculosis, radon or other radioactive substances), diagnotic results (particularly PET
  13. Welcome to the web site. Can't answer your question but sure glad you're here.
  14. Hate to have to meet you this way - but welcome nevertheless. Being given a cancer diagnosis is just about the worse thing that can happen to anyone - especially if the person handing down the diagnosis lacks the wherewithal, the compassion and the bed side manner required in these particular circumstances. What you felt and are feeling is a perfectly normal reaction to an extraordinary and catastrophic event. I am sorry that you had to hear it the way you did and that you have to wait until you see your oncologist - I know all too well what that feels like... an eternity. It's not much co
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