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simplyklb

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Posts posted by simplyklb

  1. Denise,

    You have your hands full!

    May I suggest you contact your local social services office to get parenting classes for Christy? Jayla has a life-threatening condition called epilepsy. People can die from seizures. If you need help getting in touch with local social service folks, let me know. I can try to help from my end.

    Kristi

  2. I am sooo happy about the wedding last night. I am still uploading pics. :) Normally I would not share a private link but I will make an exception for this.

    I am happy that my dad is getting some help. They will help me out too. The best birthday gifts I could get are: My dad going to the wedding and enjoying himself and the palliative nurse coming out today to do the intake. (Today's my bday.)

    Kristi

  3. My dad is very demanding so he does not get it. My mom sometimes she gets itm sometimes she doesn't. Pallative care is coming in tomorrow. Thank goodness! Medicare will cover it since my dad is pretty much housebound. He doesn't go anywhere except to medical appts. I seriously doubt he makes it to my niece's wedding later today. I will be damned if I am stucj at home with him. I feel like a freaking prisoner in my own home.

    Kristi

  4. Real nice... I can't even get someone to go get a case of free nutrition for my folks and they work a mile down the road from the organization. I am sooo sick of all of this. If it were not for outsiders, I would walk away and never look back. If it were not for my best friend, I don't know what I would do. She has gone way beyond the call of duty and she is not part of my family.

    Kristi

  5. I made a call today for nutritional services for folks. They are eligible for a case of carnation breakfast thru Cancer Action Inc., here in KC. I have three family members who work in the vicinity of the office.. One of them will have the responsibility of picking up the case or cases each month while my parents are in treatment. I also asked about a cane for my dad. They will provide one for him at no charge. I will donate it back when he done with it.

    Kristi

  6. Hi Carole,

    I was not a happy camper when I wrote that post. LOL

    Mom can give them info but they need to know that I am handling things as best as I can. If they don't like how I handle things, they are more than welcome to handle them themselves. :) I would be more than happy to do that at this point.

    I really want to meet with a counselor.. I really need guidance in handing out responsibilities to my brothers and to make them understand that I cannot do it all.

    Kristi

  7. Hi Carole,

    I want them to have more. I just don't know how to make them understand that I can't do it all even tho I am not working. I made the first move on getting all of us some help even it is limited as far as free counseling sessions go. Maybe they will take pity on us and offer more. :) I call my limited free time with friends my therapy.

    Kristi

  8. My sibs truly just do not get it at all... My middle brother just gave me the argument that "I work." when I asked him to handle the disability tag while I got my ID renewed. Well if he is going to be a baby about it, I will ask a friend to help. None of my brothers really respected me when I work (used to complain about my jobs all the time) and now they really don't. Nice. I am going to ask my mom not to give my brothers any info anymore since they just want to sit back and judge. I guess going to nearly every dr's appt. and deciphering all the medical stuff and keep tracking of things here at home all day long are not enough for them. They don't see that their sister is totally overwhelmed. Well anyway I am glad that there are people on the outside that are looking in after me. There's a lot of you here and my friends and extended family members. I appreciate it!

    Thanks,

    Kristi

  9. I got a response from the coordinator of adult Services at Turning Point here in KC. She's going to send me some information. We are eligible for five free counseling sessions. of counseling since my dad has metatastic cancer. I can do the support for supporters since I am a primary caregiver. I told Kathy I couldn't get over to the office for a bit due to my niece's wedding this weekend and chemo for both Mom and Dad next week.

    Kristi

  10. "RandyW"]
    The Big Three television networks — NBC, CBS and ABC — have never done anything like it before. On Friday, Sept. 5, their news anchors — Brian Williams, Katie Couric and Charles Gibson, respectively — will sit on one set for a commercial-free, prime-time simulcast entitled “Stand Up to Cancer.”

    I am guessing around 8 still several months off so.....

    I am thinking 8 to 11 PM ET.

    Kristi

  11. I actually got some good news that will help me out a lot. My aunt and uncle are going to pay for someone to come in once every two weeks to help clean. That just lift a burden off of my shoulders. It's one less thing I have to worry about. Now it is just a matter of finding a reputable company.

    Kristi

  12. My dad is mad at me because I am going to say something to the onc today about my brother and his sore throat being in the house. Too bad! I do not want my dad to get a life-threatening infection because someone does not get it. I hope none of us get it. If I get it, I have to leave the house. I think that a family meeting with a social worker is a must at this point.

    Kristi

  13. Thank you for the advice in the Issues with Siblings thread. I went out and talked to a very close friend who is like a sister to me. She basically said the same things.

    There's even more (That;s why the new thread.)

    Hi All,

    I had a couple of issues yesterday.

    First of all, there were too many family members here yesterday. One of them who feels the need to come over every weekend and the other needs a cookout every weekend. My dad does not want people over here partying. He's fed up with it. I don't blame him. My friends are sensitive to that and refuse to come in now. (I can't have friends over and can't leave the house. GESH.)

    My second issues is my family does not understand about the low counts. My youngest brother came over with a sore throat. I told him that he could NOT come in. My mom told him that he could not come in. I went out for a bit because I had to talk to someone. I come back in and my brother comes in uses the bathroom and sits at the computer. I was fit to be tied!! My family looked at me like "What?"

    Kristi

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