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lilyjohn

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Posts posted by lilyjohn

  1. Is got 508 of those pesky little devils in 10 minutes. I was swatting those suckers three at a time. Too bad the real ones aren't that easy. Just one gets in the house and goes into hiding when I get the swatter. Only come out at night to torment me and get even for the swatter. I like these much better.

  2. I just read this post and the responding posts for the first time. Something caught my eye right away. You say that very few deaths are listed on the death certificate as lung cancer. I was upset when I got Johnny's death certificate for just the oposite reason. His cause of death is listed as lung cancer. I know for a fact that he died of acute respiratory acidosis. They also listed his time of death after diagnisis wrong. Instead of 5 months they put seven.

    Now I have a question about death certificates that maybe someone here can answer. How is a doctor allowed to put the time of death and diagnosis on a death certificate if they do not see the person die or see them after they die? Johnny's is signed by his doctor stating time of death (which they listed as twenty minutes later than it was) and it says clearly to the best of his knowledge. I was with him for 3 hours after he died and a doctor NEVER came into that room with us and there was none there when he died. Just me and a nurse and all she did was stand and watch nothing else!!!!

    I know this does not go along with what you are talking about and I do understand the importance of have lung cancer deaths listed properly but too I think that everything on a death certificate should be honest not listed improperly for the purposes of the doctors.

  3. I have about ten different people who send them to me by email. I pick out the ones that I like best and post them here. Glad you like this one. Thought it would get a rise out of someone. Wonder where snowflake is this sounds right up her alley.

  4. Great letter Dave. If you find any more asses like him that need to be put in their place please post it for us. Maybe enough people will get the word eventually. If there is anything I can do to help please let me know. I have enough time to do something if it can be done from home. One step and on idiot at a time maybe the ultimate answer

  5. Pompass *ss and idiot combined. I wonder how quick his story would change if he got lung cancer? With that kind of attitude in the medical field along with the gloom and doom that they preach when will lung cancer ever stand a chance of being cured?

    Maybe someone needs to stand outside his office with a sign stating his ideas and do an on the spot poll of how many of his patients and others there have smoked before getting lung cancer. Maybe too a copy of his answer should be posted somewhere public so all of his patients can see exactly what a real *ss he is!

    Anyone interested in doing a toilet paper routine on him? I can't think of many who deseve it more. A good way to let him know what a piece of sh** we know that he is.

  6. The man of the house stormed into his home and walked

    up to his wife... Pointing a finger in her face, he said, "From now

    on, I want you toknow that I AM the man of this house, and my word is law!

    I want you to prepareme a gourmet meal tonight, and when I'm finished

    eating my meal, I expect a scrumptious dessert afterward.

    Then, after dinner, you're going to draw me my bath so I can relax. And when I'm finished with my bath, guess who's going to dress me and comb my hair?

    His wife said, "The funeral director?"

  7. I sure see something here that makes no sense. They were afraid to give you Tylenol 3 because you might get addicted but I bet you they gave you Vicodin which is the most addictive medication there is. Then Morphine? Everyone knows that Morphine is not addictive. Yea Right!!!!!!!!

    Anyway glad they finally listened to you and got the meds that you need to get you thorough this. I know about that pain for a muscle spasm. I have suffered more than once with pain from that big muscle that encircles your body. Never dreamed a person could hurt so much and remain concience. Live and learn.

    Best of luck to you sounds like great news that the lymph nodes showed cancer free. Heres to a quick recovery and I pray that you remain cancer free.

  8. For all you football fans.

    > >

    > > A guy took his blonde girlfriend to her first football game. They had

    > > great

    > > seats right behind their team's bench. After the game, he asked her how

    > > she

    > > liked the experience.

    > >

    > > "Oh, I really liked it," she replied. "especially the tight pants and

    all

    > > the big muscles, but I just couldn't understand why they were killing

    > > each

    > > other over 25 cents."

    > >

    > > Dumbfounded, her date asked, "What do you mean?"

    > >

    > > "Well, I saw them flip a coin and one team got it and then the rest of

    > > the

    > > game, all they kept screaming was, 'Get the quarterback! Get the

    > > quarterback, Get the quarterback' Hel-lllo! It's only 25 cents. I hate

    > > to

    > > think what they'd do to each other if it was a whole dollar!"

    > >

  9. How to stop a gossip

    Mildred, the church gossip and self-appointed arbiter of the church's

    morals, kept sticking her nose into other people's business. Several

    members were unappreciative of her activities, but feared her enough

    to maintain their silence. She made a mistake, however, when she accused

    George, a new member, of being an alcoholic after she saw his pickup

    truck parked in front of the town's only bar one afternoon. She

    commented to George and others that everyone seeing it there would know

    what he was doing. George, a man of few words, stared at her for a

    moment and just walked away. He didn't explain, defend, or deny, he said

    nothing. Later that evening, George quietly parked his pickup in front

    of Mildred's house and left it there all night. :)

  10. Well Dean I guess it is time you move up to sunny Northern California and leave rainy Southern California behind. We were supposed to have rain all week but thank God it lasted for only 3 days. Seems like the rest of it moved south to you.

    Now there is always the malls or WalMart where you can go, of coarse getting on and off of the bus in the rain is not the greatest thing either. Just make sure if you do to let the bus driver handle it. I think you may have done your share of that when you were the driver. We don't want to hear about any more injuries.

    Here's hoping that the rain ends soon and you can go putt putting everyday. Take care and remember it can't rain forever this is California not the deep south.

    Lillian

  11. Okay I guess I will have to chime in here on Dave G's side. I have had all kinds of dogs big and small. The shepard was the best ever but would sure be hard for me to have in the house right now. Misty was Johnny's little dog. I say little because she is little in body (between 6&7 lbs.) but big in spirit. She thinks she is a husky and will challenge any big dog to prove differently. I have to watch or she will get me in trouble with one.

    Now my niece is a cat lover. She has cats everywhere and that many cats like to fight. Misty has taken on the role of cat police. Let them dare start to fight or just run too fast and she is in the middle of them barking and nipping at them. They are afraid of her!!!!!!! My niece wanted a picture of her to paste is one place so when they try to go there they will see her and run away.

    So Dave you are right it is not the size of the dog but the size of it's heart and the way it sees itself. Now if anyone can tell me a way to get rid of that white hair that is like wire without hand picking it off everything she will really be the winner along with all other small dogs with big hearts.

    I would post her picture but if she had her mouth open when I took it it might embarrase her. She is half wire terrier and half miniture pug. The only thing pug is her mouth not even her nose. Johnny said she has a face only a mother could love. Well maybe so but he loved her and I am learning more everyday.

  12. Also have them check your mom's oxygen saturation. Unbalanced blood gases do strange things. Sometimes too much oxygen can cause that unbalance. Also some Bensodapines are the culpret. If she is taking Ativan make sure to mention it to her doctor and ask about that. Maybe something not as strong will work better. Ativan is well known for causing the oposite effect that it is supposed to in some cases. Just worth checking out these things with her doctor. Good luck I hope you find the answers you need soon. Those mental and emotional problems can be debilitating and frustrating especially for the caregiver.

  13. Thank you Becky, Betty and Shirley. I'm doing much better now that Valentines Day is in the past. Johnny's brother's condition has improved for now so that is a blessing. I also went to church and dinner with my landloard and his wife yesterday. It was nice to have some face to face human company for a while.

    The weather is cold and rainy but somehow that seems to almost be a relief for now. I'm spending more time on my reading and sewing. I think for now I am getting out of this slump on my own. I will keep your suggestions in mind for the next time. For now I am coming here less and less. I tend to get too envolved emotionally and need a break. Once again thank you for your concern. I may not be posting much or reading as much here as I was but you are all in my thoughts and prayers. Love to you always. Lillian

  14. I feel so selfish coming here like this when there is so much pain here already today. It makes my problems seem small but my pain is so sharp and I have nowhere else to turn.

    It just seems that lately evey up of this ride for a day or so is only setting me up for a longer and steeper fall. My heart was already heavy when I came here this morning and learning about both Buddy and Shelly's dad have made the plunge into depression faster and more frightening.

    About fourteen years ago Johnny's younger brother suffered a major heart attack. He was dead for six minutes when the paramedics brought him back. As a consequence he suffered major brain damage. It has also been an up and down ride for many years getting much worse in this past year and a half. Recently he has seemed so much better. He has been living with his daughter and she has been caring for him. Not only had his physical conditon improved buy his mental capasity seemed to improve daily. On Tuesday she had to rush him to the hospital because of a high temperature. He has a bladder infection and had started to go into kidney failure. They determined that one of his medications may be causing the problem. It is for siesures and the dose may be too high. He had a seisure that day and his family were told that too much can cause siesures too. Yesterday the doctor told them that they need to have a family meeting. I'm sure that will not bring good news. My heart breaks for them and I just can't face losing him too. She has been both mine and Johnny's rock when we had no one else. I want to stay positive for her but I am just so afraid. Please tho he doesn't have cancer add him to your prayers. What really frightens us is that a couple of weeks ago he told her that they would be coming for him soon. They have his place almost ready. He often talks to Johnny and his mother. I know what that means.

    I just don't know what is wrong with me. I just can't seem to shake myself out of this feeling of being lost with no direction. I know that I really need to find work both because I could be in serious trouble financially before long if I don't and to get me into some kind of routine. I know this in my mind but I just can't seem to give it the importance that it deserves and that really is what frightens me the most. Nothing can hold my attention any more except this board and talking with the people who knew and loved my Johnny too. I was going to put in an application today then remembered that I was told that the job requires teaching fourth grade math. I'm not qualified for that and the trip to town just seemed a waste of time. So I didn't go. I can't help but wonder if I will ever again find anything that is important enough to keep me on track.

    I read about Norme and saw her pain. I know so much what she is going through. Your very soul feels paralized. You give everything that you have for so long. Taking care of and being with your love takes everything that you have then all of a sudden they don't need you any more. It doesn't matter if you know that their time is short or if it comes as a sudden shock. I've been in both places and it never gets any easier. The pain is there and it is hard to look around and realize that you are not bleeding. How can such pain exist without blood? Where do you run to? That is the first thing that you want to do. You want to run from the pain but there is no where to go except into yourself. In my case I wanted to forget but at the same time I was terrified that I would forget and then lose what I had left of my life with my Johnny. I prayed everyday that I would wake up from my nightmare. It took me months to realize that would never happen. This nightmare is one that I will have to live with for the rest of my life. There is no waking up from it.

    As I said at the beginning I feel so selfish for having to come here and put this on all of you when there is so much pain here already. I just have nowhere else to turn. If it hadn't been for you and this beautiful place that I moved to I doubt that I would have survived much longer. You and this place seem to give me the only real peace that I can find for a short time. I pray to find work and a way to stay here. I don't think I could stand to move again even if I could afford to.

    So I selfishly ask for you to pray that I find some direction and something that I can do to fill part of the void inside of me. I want so much to make a difference so at least I know that there is some purpose for the pain that Johnny and I suffered for so many years. Some purpose for the pain that eats at me now. Above all please pray that his brother doesn't suffer and for his family. That I will have the strength to be here for his daughter and help as much as she has helped me. God Bless you all and bring us peace. Lillian

  15. It seems there is always a song that says what we find hard to put into our own words. This is an old Hank Williams song. It has been on my mind a lot lately so I put it here for Norme and for the rest of us who now travel this road alone. I hope too that it may help Shelly in her time of deep sorrow.

    --HERE IS A HANK WILLIAMS RESCITATION SONG HE DID AS LUKE THE

    DRIFTER

    BEYOND THE SUNSET--HANK WILLIAMS

    SHOULD YOU GO FIRST AND I REMAIN, TO WALK THE ROAD ALONE

    ILL LIVE IN MEMORY'S GARDEN DEAR, WITH HAPPY DAYS WE'VE KNOWN

    IN SPRING I'LL WAIT FOR ROSES RED, WHEN FAITH THE LILACS BLOOM

    AND IN EARLY FALL WHEN BROWN LEAVES FALL,

    I'LL CATCH A GLIMPSE OF YOU

    SHOULD YOU GO FIRST AND I REMAIN, FOR BATTLES TO BE FOUGHT

    EACH THING YOU'VE TOUCHED ALONG THE WAY, WILL BE A HALLOWED SPOT

    I'LL HEAR YOUR VOICE ILL SEE YOUR SMILE

    THOUGH BLINDLY I MAY GROPE

    THE MEMORY OF YOUR HELPING HAND, WILL BUOY ME ON WITH HOPE

    )BEYOND THE SUNSET OH BLISSFUL MORNING

    WHEN WITH OUR SAVIOUR, HEAVEN IS BEGUN

    EARTHS TOILING ENDED, OH GLORIOUS DAWNING

    BEYOND THE SUNSET WHEN DAY IS DONE

    SHOULD YOU GO FIRST AND I REMAIN, TO FINISH WITH THE SCROLL

    NO LESSENING SHADOWS SHALL EVER CREEP IN

    TO MAKE THIS LIFE SEEM DROLL

    WE'VE KNOWN SO MUCH OF HAPPINESS, WE'VE HAD OUR CUP OF JOY

    AND MEMORY IS ONE GIFT OF GOD, THAT DEATH CANNOT DESTROY

    I WANT TO KNOW EACH STEP YOU TAKE, THAT I MAY WALK THE SAME

    FOR SOMEDAY DOWN THAT LONELY ROAD, YOU'LL HEAR ME CALL YOUR NAME

    SHOULD YOU GO FIRST AND I REMAIN, ONE THING ILL HAVE YOU DO

    WALK SLOWLY DOWN THAT LONG LONG PATH, FOR SOON ILL FOLLOW YOU

    IN THAT FAIR HOMELAND WE'LL KNOW NO PARTING

    BEYOND THE SUNSET FOR EVERMORE

  16. Norme

    My heart aches for you. No words can help you now. I know that and I know too that you will always cherish the special love that you had with your Buddy. I know that he waits for you. Until then I pray that you find peace. Lillian

  17. That's great news Dean. Maybe in that nice weather you will get rid of some of those new aches and pains. No more walking pains!!!!!!! Just don't pop too many wheelies those folks in Southern Cal might now understand. Seriously enjoy it every minute you can. Weather up here has been great too. Lillian

  18. If they can't find it how do they explain saying that it is unoperable? Doesn't make much sense. If you read across this board you will see that three months is a very long time if it is cancer. Seems like by waiting it could become inoperable even if it isn't now. Maybe they need to do some other kind of tests. Just doesn't seem to add up right to me. Lillian

  19. Johnny had carbo/taxol no real problems at all. A little more fatiqued on the secnd day after treatment and lost about half of his hair. He took it once a week too. When they started him on the same thing for a second cycle he had a reaction to the caboplantin. It seems that it builds up in the system and eventually nearly everyone has a reaction. His just happened to be earlier than most. No one told us about that until it happened. I hope this helps. Best of luck Lillian

  20. The Circle Of Love

    Many of the recent posts have led to some very open discusions as well as showing a difference of opinion. It is because of that that I have decided to share a story with you that will explain not only why my personal beliefs are so strong but where they came from.

    After Johnny died I was lost and alone. I wanted to have people in my life yet at the same time I shied away from them. I would not let myself become emotionally envolved. In some ways that extended to my own family. I knew that there were issues about his death that needed answers and I set out to find those answers with little success. That too left me feeling alone and seemed to rob me of the purpose I thought I had found to justify the suffering that both Johnny and I had lived through.

    We had been seperated for over forty years because of someone elses interference. That seperation as well as the seperate lives that we led left us both with a lot of emotional scars. I saw too with Johnny the harm that neglect and indifference could cause a person. I started calling the indifference emotional neglect. Johnny had suffered both physical and emotional neglect. I set out to make a difference in the lives of others. I never wanted to see anyone else suffer from that kind of neglect.

    Just six short months after his death I went to work in an assisted living facility as a caregiver. I made sure that I did all of the things that were required of my job and went one step further to give a little extra time. I saw that those people had their physical needs well taken care of. I saw too that many of them suffered from emotional neglect. I did all that I could at the time to make a difference in their lives but still I held myself back. I would not let myself become emotionally envolved with them. Many of them were in their ninties and had severe health problems. I often wondered why those people who were so much worse off than Johnny had been were still alive and he wasn't.

    One day I was to learn the answer to that question. In doing so I would again see why Johnny being denied the right to fight for his life had been so wrong.

    I had trained myself to turn off everything when I entered the room of one of my residents. No matter how much pain I was in I could not let it show. They had enough problems of their own. They didn't need to see or know about my pain. I was feeling especially down one day. The same question that had haunted me sense Johnny's death had been tearing me apart all day. I knew how afriad he had been of dying. I knew too how much he had wanted to live. The thought that the last thing he would ever have known was fear was tearing me apart. I had had many signs that pointed to him still being with me but I questioned those things constantly. I needed to believe that he still existed and was always near me. Yet something held me back from believing.

    There was one private little man with a ready smile who I would often have on my assignment. It was well known that he would only allow one caregiver to assist with his shower. He was due a shower that day and I was scheduled to assist him. I entered his room prepared for his refusal of my help. My emotions had been raw all day but as ususal I turned them off when I entered his room..

    To my surprise he agreed to let me assist with his shower. After he was finished I was helping him dry off when we started a conversation that would change not only my relationship with those residents but my life as well. He was diabetic and I asked how long he had had that disease. He told me that he had only had it sense his stroke. Because he showed no outward signs of having had a stoke I was surprised and told him that I would never have known that he had had one. That is when he opened up to me.

    He said "I am alive through the love of Christ. I died when I had the stroke and went to this beautiful place. Was it heaven? I don't know but I saw Christ and he told me to go back that it was not my time yet. I had to go back and live because my job was not finished."

    As I listened to his words the tears ran down my face. I had been wondering where Johnny was and how he was all morning. The words that man told me restored my hope. He gave me exactly what I needed at that time.. I told him thank you and explained how I had been feeling and why. He told me not to worry that Johnny is in a wonderful place. He knew because he had seen that place. After that day whenever I saw him he would smile and touch my hand and ask how I was doing.

    The words that man said to me that day opened my heart. No longer was I able to not become emotionally envolved. He had restored my hope and helped me find my faith again. He also gave me what I needed to reach out to the others with love and compassion.

    I grew to love many of the people that I cared for. I would not only talk to them but I would listen to what they had to say. I learned that they had so much to give if only people would listen. I gave them all a part of myself and my love. They gave the same back to me. Many would hug me good night and often I would get a special little smile from them. It caused me great emotional pain when some of them died but what they gave me sustains me in my bad times. Hearing them talking among themselves about me was something so very special. I heard them say over and over how much I did for them and that I listened to them.

    I have heard the view expressed that when a person reaches a certain age or has a certain disease or disability that they should not have had anything done to prolong their life. I can not and will not ever agree with that. Every person who lives touches many lives. If they live but minutes or many years they still touch someone in some way. When a person is left to die when there is a means to save them not only are they robbed but the people whose lives they would have touched are robbed as well.

    From the point of view of many people those people who gave so much to me should not have been alive. Money had been spent to save them that could have been used somewhere else. Their quality of life did not seem worth saving. If that point of view had prevailed I would have never gotten the gift that a private little man with a ready smile had given to me. My faith and my beliefs would not have been restored. The circle of love would have been broken. Isn't that what life is all about? We form a circle of love with humanity. If one person in that circle is not there when needed the circle is broken and all who would have been touched by that love suffer.

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