lhudak

Carole, thank you so much for all your help and feedback. This has been encouraging for my sister. I hope you are doing well. Best, Laurie

Carol, were you tired on TArceva? My sister would like to work but is the rash unsightly? My sister is worried. thank you

Hi Ned, I thought of one other questions in relation to the rash...where was yours and is itchy? Does medicine control it?

HI, my sister wants to know when it comes to the rash, where does it come out? Body, Face etc? Is there topicals to control it? I also heard it causes coarse hair? Any problems with hair growth?

HI, I think we went to a surgeon with not enough experience. Unfortuantely now she has to pay for it....it would be easier to live iwth the illness she said than not to walk. My sister too experiences headaches all the time...must be the nature of so much going on in the brain. Did Colleen go on Tarceva immediately after first tumor? My sister has had 3 tumors since and gamma knife has killed them but they want her on Tarceva for more quality of life since they keep creeping up. Is the rash on the face or body? I know my sister is scared. I'm gladTarceva is working. I just don't understand these young ages this is happening too. Any Diareahea? Thank you for your response. Best, Laurie

Thank you for your reply...so glad I found a support system...I felt so loss out there. Do you take the Tarceva every day or take a break? I was under the impression my sisters oncologist wants her on this indefinitely. Any diarehea? You mentioned some problems any to share? Is this drug keeping everything stable it sounds like? I thought it was for brain only? But you mentioned your brain was clear...guess I'm confused if it works on the whole body??

Patti, a huge thank you for taking the time to welcome me. I am sure glad I found this support system. You certainly have been through a lot and I'm so glad you are doing well. Keep up the good work! I have learned to take one day at a time with my sister and with the grace of god we can get through it. Wishing you well. Laurie

Hi Linda, not sure I responded as this is new to me but wanted to thank you for taking the time to welcome me. You are doing great...keep up the good work. I look forward to making new friends on this site.

Dear Sandra, I am amazed at all the young people. I am your age....I live fearful of what I'm going to get but I know I should not. But I am so happy for this support system and happy to hear that your treatment is working. Keep up the good work. Thank yoiu again for your time.....I am glad I found everyone! ]

Linda, thank you for your reply....this is a great website for support. You are doing great keep up the good work!!! I am happy I discovered this great support system. Best to you. Laurie [ quote]"LovesLife"]Laurie - welcome, although I am so sorry that your sister's diagnosis brings you here. This is a great bunch of caring people and I am sure you will get the support and guidance you need here. Linda

Carole, thank you for responding and making my day. It is good to hear that you only had the rash. You mentioned you were only on for several months? Are you not taking it now and why? I had the impression from my sisters oncologist that she wants her on this daily indefinitely? Thank you again for responding and I hope you are doing well.

Hi, I am new on this site and still navigating. I am a caregiver for my sister who had lunger cancer stage one at 49 years old non smoker and thought they got it all and went to the brain last year. It is so hard coping with a loved one with this disease. Looking for support and people with same experience. I hope to get her on this email for a way of support. She has had 2 brain surgeires, first surgery left her left side paralized (anyone have this?) supposedly shouldn't have happened. She gained some mobility back. Second surgery showed all scar tissue. Two gamma knifes since then and they now want her to go on Tarceva and she is very scared because of the side effects. Anyone on this drug and how are the side effects and how do you feel? Any help and support is greatly appreciated. Laurie