sk105

It has been over 3 years since my husband Mark died of sclc, but sometime it seem like yesterday. It has been a long time since i visted this site. Memorial day weekend it is sad, spent the weekend picking out flowers and veg. plants, today planted with my youngest daughter and worked on the yard, this is something that we enjoyed doing, will the pain ever go away, i still get so sad sometimes, birthdays are coming up the time he first went to the hospital just thinking he was sick then finding out the next day he has lung cancer, how can this be he was only 42 with 3 young kids, now i face everything on my own, I do feel him around me alot, but i want him here with me. I dont think i will ever go on with my life i have no interest in ever meeting anyone else, I dont think i can ever get over the pain. let me know how others are handling this.

Shannon I am glad you are doing so good, I can understand how you are feeling, and it been almost 5 months since Mark passed and i still get like that i will go weeks and then i will cry all weekend, or i will talk to some and start crying and others i can talk and not a tear. I think it is when was youngest daughter goes and stays with someone and i am by myself i just let go, but then i will feel better it just something you have to do. You have a lot of people around you that does help, you are in my prayers. Take care Sandy

Christina All your doctor has to do is write rx for the wheelchair, find out where you medical supply is for your insurance and it will take a couple of days, if you lived near me i could give you our old one, my brother in law gave it to us he works in a pharmacy and they had a old one in the basement and we used it once now it is a coat holder everyone just throws there jackets on it. We also got a cane by have the doctor write rx for it and we got a walker from the hospital, the insurance will also cover things like a shower chair, or extended toliet seat, we got all of these and then my husband got sick and he passed away in March we even had a bar put in at the toliet and my husband never got to use it. Hope everything works out good for you. Sandy

Tracy, My husband also lost his voice, i dont know if it is any different with sclc than with nsclc but it was a tumor on the nerve, and they did radiation, for 2 weeks, and he got his voice back, but had to deal with acid reflex, because of radiation, so maybe he will get his voice back, it is one of the things that does happen with lung cancer Sandy

Shannon, I am so sorry, I know you have been though alot, both of you are some of the first i remember when i first found this site, and i know we both have gone though things i am glad you got to spend alot more time with Mike, Mark only made it 9 months but now they are our angels looking down on us, If you need to talk please email me, it has been 3 months for me and it is confusing, just take it one hour at a time, and let me know how you are doing, i will be praying for you, Again i am so sorry you have to go though this Sandy

I am thinking of you, you are in my prayers and i hope things get better, do they have him on a pain patch i found that it worked better, but Mark also got other pain med along with the patch, they should let him have what ever he needs not to be in pain. Take Care Sandy

Sam, my husband used Taxol, and etoposide and i think one other drug in there and he did so great, he was almost back to himself, but then he changed to Gemzar and i would say do not use this, i believe this is when every thing change and he went down hill the tumors grew the whole time he was using them, then he used the cytoxin and vincristine and adriamycin and this is one of the older combo and it did give him time, but it helped a little and he lived 2 extra months on this so it helped alittle but try to go with that first combo. You are in my prayers, Take Care Sandy

have a little get together, and just get out the camera, that what we did, we never took so many pictures at christmas and at my daughters birthday, and i think my husband knew it was getting bad, that he just let us he was never in so many pictures, and we even took pictures at the hospital because we knew he wasnt going to come home and my kids wanted some pictures, just dont act like it a big deal. sandy

Good luck to you, I will be praying for you both, I hope you hear what you want to hear. hoping for great news Sandy

Just wanted to let everyone now, my husband Mark pasted away this morning, he was on the vent for 2 weeks and just had enough, this is such a hard day he was only 43 and our youngest is only 9, but i will find a way to get though this, so all have been so great. Sandy

My husband has ext. stage sclc, dx in June 02, He seems to be making a stay at the hospital every month, I had to admit his yesterday again, the chemo he is on Cytoxan, vincristine and adria seem to be causing a problem every time, He has had problem with his blood counts, and platlets he can deal with this, but now it is his legs, they are very swallon, and he can hardly walk, he is getting a wheel chair because he is having so much trouble, his blood pressure is up, and it seems that the Adria part of the chemo can cause a problem with the heart, so i dont know it getting the chemo is killing him, and not getting the chemo will kill him, i am so stressed out at this point. They are going to do a echo and an mri on the spine to rule out a tumor there, they have him or steroids, blood thinner, he has infection his white cells are real high, they think they will may a major drop in about a day. He is very depressed because he cant do anything anymore. Has anyone has this problem or know anyone having this problem, i dont know what to think anymore, I am not even sure i want to know what is going on, because i am afraid he will have heart failure, he is also having problem with breathing again. This is just very scary for me and i dont know what to think Thanks for listening Sandy

Hi Mary, my prayer are with you, i know how you feel, my husband is 43 and he has sclc, and i know how over night things can change, my husband went to the hospital which we thought was pnemonia and found out it was lung cancer his spread to his liver, lymp nodes in the chest, and in one week was on a breathing machine, i have a 18, 16 and 9 year old. My husband has his good and bad times, and i know there is times i forget he is sick because he is doing real well, then he has a bad day and i remember real fast. I aslo know how you feel about ssi, my husband had no disablity insurance and we had to apply for ssi, i know how it feels to be helpless, but i learned to take what people offer, i felt funny at first, but that is how we have made it so far, i work full time because we need the insurance, and our township and church has done so much for us the have had fundriser for us i used to hate when they would say we need financial help, but we do, and they have help at thanksgiving and christmas so now if you offer i will accept. we just got 20 inches of snow and i didnt know what i was going to do, and i look out side and a neighbor had a snow blower in our driveway and told my husband he knew he had cancer and wanted to help, so all i go though, i know someone will alway be there to help. We have been able to keep our house, because of the help we have gotten and now we get ss and that helps with that , i will be thinking of you, and you will alright. Sandy