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reynrona

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Everything posted by reynrona

  1. reynrona

    PET scan

    Hi Sandra I hope and pray all goes well for you. I just got back from a Cancer Fair in Hamilton and met some other Lung Cancer survivors, wish you could have been there for me to comfort you and let you know I expect great thing on your next PET. As my daughter in England always say's "Keep a stiff upper lip"! Take care Ron
  2. reynrona

    Anniversary

    Hi All My good news, yesterday the boss (the one with the skirt, Sandy) and I have not had a cigarette for 20 months now. Was a tough go but we are making it work. Wish we had done this many years ago and we may not have been in this condition today. Have a great day everyone and take it one day at a time and as my daughter in England always say's "Keep a stiff upper lip". Hugs all around (Ya even the guy's).
  3. I had a good scan results apparently, and was given my trial vaccine. Dr. said that the original tumour shrunk a little bit more, and was only half an inch last time, and the 4mm nodule in the lower left lung is unchanged and could be just scar tissue. They said as well that my blood work was good as well, and everything in normal range accept my ALT is a little higher but the Doctor is not worried about that. All is stable and won't require another chest x-ray for three months, and a CT scan in six months. I get next vaccine Oct 20 and see Dr. on Dec 2 and also my next vaccine and blood work. The pericardial effusion is a little less this time and my blood work is good. No noticeable trouble areas in my abdomen other than a fatty liver and they are very pleased with how well I am doing overall. It has been a long but great day, as everything was running behind and we were in an hour and half later than planned. Life is good. Hugs to all (yes even the guys) they need them also. Ron
  4. Hello Sandra, I am writing this for Ron as we found a cream that has worked wonders for his "rashes". Throughout treatment and even today if we let up vigilance for very long, Ron has had more trouble with his skin and constantly evolving rashes than from the lung cancer and treatments combined. I routinely used Life brand hypo-alergenic cream yea so many times a day and Hydrocortisone cream (small tubes) but other than keeping his skin moist, the rash continued and sometimes he would just want to crawl out of his own skin. Then the Doctor tried Benadryl but he hated the way it dried his mouth out. Then they tried Hyderm 1% Hydrocortisone Acetate but that really didn't make all that much of a difference as the rash kept mutating. Then they tried Hydrocortisone 1% in Clotrinaderm and it helped a bit better. The "magic" potion came later and we say that because it nails the rash no matter what face it puts on. Blotches, acne type, raised shingles type, welts and on and on I could go, and yes even psoriasis patches. Our new Family Physician prescribed Diprolene Cream 0.05% Betameth Dip (GlYC),(DIN 00688622) and you have to use it very very sparingly but once the rash starts to come under control, it is a matter of nailing the little areas that still to this day pop up, back, neck, cheeks of face, feet, legs from the knees down, upper arms, and so on. He also uses a mild tar based shampoo for his hair as the rash hits on his scalp as well. Non scented dove baby soap, non scented vasaline intensive care lotion for super dry skin for his feet. Ron hasn't been able to wear his Saint Christopher's medal since starting treatment as where it comes into contact with his skin, he gets outbreaks. Not sure if any of this helps but for Ron, finding something that could actually keep his skin somewhat under control was what gave him finally some peace of mind in this new life of his. That was tangible relief, something that he could see and feel respond and he actually doesn't scratch so much in his sleep any more either. Everything else including the Vaccine is a Deperate Hope, or Belief, but to just be able to feel comfy in his skin again was almost like a reward and we still have to keep on top of it today. Within two weeks after every Vaccine, it seems to pick up strenth again just waiting for us to get lax in our guard. Hope this helps Ron and Sandy
  5. Hi Sandra Well had my next set of needles and have another CTScan set for the 4th of September but will not get the results until the 9th so will let everyone know. By the way, I have changes my service provider over to Rogers so new email address is r_reyn@rogers.com Have been reading some of your posts and I am praying for you and all the others I come in contact with. Hugs all around. Ron
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