Jump to content

palves

Members
  • Posts

    174
  • Joined

  • Last visited

Everything posted by palves

  1. Gay My condolences to you and your family. Dean will surely be missed here by all of his friends. Paula
  2. Thanks for all the input. I think we got through to him, especially after I hit him with "I think you better write a letter that I can give to the family you might kill". Plus the Dr said that he could start driving after another week. So I think he feels the reprive. I saw him tonight and he looks and sounds much better. Not wobbly really at all. I will reinforce that to my mom before she gives him the yay or nay (Dr said she should also judge him - which blew my dads mind way out of here). So we will see where we go from here. I think borrowing the car is the best solution overall, especially if I see or hear that he is about to drive but is not ready. (But honestly I don't feel like I should have to judge that). Paula
  3. I'm considering (well I already considered it once before) switching to teach HS Math starting next fall. My biggest fear right now is learning all the kids names and trying to make sure I control the class. I'll have to bug you guys some on that as I move my consideration further. And I'm in NJ too...
  4. Oh what a cutie. Give her a big hug from her cyber family. Hope you all are doing ok. Paula
  5. I love carbs - any kind. However I have to limit them as I have a problem w/ breaking them down. Right now I'm on a plan w/ only 2 carbs per day - 1 is either an English Muffin or Eggo Low Fat Waffles (2). But I'm doing well. So far down about 25 lbs in the last 4-5 months. Only 25 (yeah right) more to go so they say. Paula
  6. Thanks so much everyone for your input. Maybe he has heard me. I've pointed it all out, my brother has pointed it all out, so we will see. My brother has threatened to go over and let the air out of his tires. I've read all your responses to my mother. I know she is stressing about this as well. The good news is that he told my mom last night that he is feeling better than he has in a while. So hopefully something positive is happening there. He must have been really thinking about what I said as he told my brother he talked with me. I'll keep you all updated. If anyone has any other suggestions, please let me know. Thanks Paula
  7. He just had his 12th round of WBR treatment today. They told him last week that he still should not drive. But he told me that on Thurs (last treatment is Wed) he is going to drive. He feels like they aren't treating and looking at his capabilities. Well, they did - thats why they tested his reflexes and gave him the drunk driving test. But he thinks they should look at the fact that he drove for almost 50 years even under bad conditions (not able to see well, little sleep, etc) and take that into account. Does anyone have any suggestions on how I can enforce not drviing w/ him. He is stubborn and is basically "yessing" me to death. Or as he said providing me with the answers I want to hear. I'm dealing w/ another toddler it seems (BTW he is always like this). Thanks in advance. Paula
  8. My dad is undergoing WBR as they found a met in the center of the cerebellum as well as one on the skull. The basic symptom he has been having is ongoing naseau and unsteadiness. He is very frustrated right now and as he has put it to both my mom and I "sitting here waiting to die". I'm trying to work on his attitude with suggestions of planning some immediate fun things as well as a vacation to look forward to. [he is also frustrated that he cannot drive as that was his livelihood and even though he doesn't have any seizures, the Dr feels that he reflexes are poor and he basicaly didn't pass the drunk driving test} He also is very frustrated that the Dr. is not doing anything to make him feel better. He is on an anti-naseau med and sometimes he feels a bit better, but generally not (even w/ the steroids his appetite is pretty weak). I've tried to explain that the radiation will take some time to shrink / break down the tumor and he has to try to be patient. Does anyone have any other suggestions on what he can try? Any home remedies for the naseausness? Has anybody experienced the same symptoms. Thanks in advance Paula Dad 63 dx Stage IIIb adenocarcinoma 9/03. Chemo / Radiation Now 2 mets to brain /skull WBR 14 treatments underway
  9. 2 spots - 1 in the brain and 1 on the skull. Endoscopy tomorrow. Have to talk w/ oncologist / gastro after that regarding MRCP/ERCP. Thanks for that suggestion. Will have to also read up now on brain options. Thanks for your words of wisdom Will update as new news comes. Paula
  10. Dad was admitted last night to the Telemetry unit but only as a preventive since he mentioned chest pains he had but no longer had. He continues to dry heave and did throw up this morning. They are giving him anti naseau meds by IV. Still don't know whats wrong, but he is going to have a scope tomorrow to check for reflux, etc. They say it might be 1 of 3 things 1. Diabetes related 2. Cancer related 3. Blockage So the wait continues
  11. Glad to hear you had a good day and that Suki is doing better. It was a beautiful day yesterday so I'm glad you got a chance to enjoy the sunshine a bit. But prey tell . where did you get a $6 manicure - out here in the burbs of NJ it ranges $12-$15. Paula
  12. Question - my dad is currently NOT undergoing any treatment for his Stage IIIb treatment - last year he had chemo (trial) and radiation. Its a year later and he is feeling very nauseaous. Last scan it looked like there might be a spot or it could have been "scarring" from his latest bought w/ infection. But now I'm wondering if the cancer has spread further and causing this. Anyone have any similar experience? He went to a gastro dr and he prescribed an anti-nauseau med, but it hasn't been helping. He has thrown up a couple of times and is not really eating anything. He has a catscan on Tuesday and an appt the following Mon for the results. Anythng to ease our minds or suggest something to help would be a big help. Thanks in advance. Paula dad 62, dx 9/03 stage 3b NSCLC adenocarcinoma
  13. palves

    Mom

    {{{Val}}} I'm so sorry to hear this news. I'm glad that Andy can be there for you to lean on. Remember we are here for you. Paula
  14. palves

    Chicago

    What they probably will have you do is let you get on, get seated and then gate check it. On arrival you will be able to remain seated, they will get the walker for you and then you can get off. If you can get on/off w/o the walker they will have you take it to the plane doors, check it for you, and then you reverse when you get off, walk to the plane doors and wait for it (same process as strollers). Paula Dad - 63 - dx 9/03 - Stage IIIB - adeno - right lung and now creeping maybe into left (small spot) mm in size - chemo / radiation Currently no treatment
  15. Ry Thanks for posting this. I discussed how to broach this with my son. I was having a hard time figuring out exactly how much to share and how to handle this discussion with my son. My Rabbi suggested just to tell him the truth (which I had been doing), but more or less wait for my son to ask me questions. This way I could judge best. Last week we found out that there is a nodule in my dads other lung. I haven't shared that with Ryan yet. I'm waiting until we know what course we are taking and then I will talk with Ryan so he understands what the possible outcomes might be (like Grandpa can't sit when he is compromsed and my kids are sick, or Grandpa has a rash, etc.). Thanks again. Paula
  16. is 10 and in 4th grade. I guess the fear of smoking has been put into him by my dad's LC. This week my son's class is running mock elections. He is running for General Assembly. Anyhow he has to have a platofrm and some associated issues. Here is the header he choose If you don't want to choke Help stop the smoke. He is going to talk to his class about the statistics about smoking. I hope that this really helps put stuff in perspective for these young kids. I'm proud of him for choosing such a subject and taking all of this so seriously. Just wanted to share. Paula Dad - 63 dx 9/03 NSCLC - adenocarcinoma, Stage 3 B - 11 cm in right lung, reduced to a bit more than 3 cm. Nodule in left lung - 7 mm - discussing Tarceva.
  17. to my dad last June. He thought he was dying. Couldn't take a shower w/o having to rest afterwards. Walking from teh recliner to the bathroom took a lot of effort and he was out of breath. He was also coughing non stop non productive. Turns out we believe it was a bronchial infection and radiation pneumonitis. Finally got an appt w/ the pulminologist and he really helped him out. Antibiotics helped clear him up and now he is on an inhaler 2x/day. A world of difference. Paula Dad, Stage IIIB, nonoperable, chemo trial, radiation. Tumor stil there, but not sure what else is going on . Waiting for next appt w oncologist - maybe bronchoscopy to figure what else is going on .. Difference of opiniion - pulmonologist says bronchoscopy, onc says not yet ..
  18. Dad saw an general onc this week as well as the pulminologist. The pulminologist suggested another bronchoscopy to try to determine what is lighting on the PET scan. Is it effects still from the radiation pneumonitis? Is it still the tumor? Is it scar tissue? Many questions, doesn't seem like any answers. The pulminologist conferred with the Onc who seemed to agree. However this Onc. talked w/ another Onc. who disagrees. My parents seemed to trust Onc 2 more than Onc 1. But I have to give them some guidance as to whether to go ahead or wait (Onc 2 suggested 6 months). I think 6 more months is toooo long in the scope on LC. What would you all do in this case? Thanks Paula
  19. Thank you and best wishes to you and your family too .. May this be the beginning of a happy and hopefully healthy New Year. (Can't wait for my dinner tomorrow night, as my son says Challah here I come ....) Paula Dad 62, NSCLC Stage IIIB - chemo, radiation, now waiting for drs appt next week. Latest PET scan showed no spread .. Yeah !!!!
  20. Ginny I'm so sorry to hear about Duke's passing ... Our sincere condolences are with you and your family at this time. Paula
  21. seem to still be missing (unless I missed something)
  22. palves

    TBone has died.

    Our condolences to you at this very sad time. We wish you and your family peace in knowing he was loved and inspired by all of us here. Paula
  23. Tbone and family Our prayers and thoughts are with you during this terrible time. We wish that there was somethng more we can do to help you. Our hearts ache. Thoughts for finding some inner peace during this time Paula and family Dad dx w/ Stage IIIB NSCLC 9/03 - 11 cm tumor - right lung. Chemo shrunk to 3 cm Radiation Radiation Pneumonitis, Bronchial infection? Waiting for new PET scan
  24. palves

    my birthday

    Curtis Ashleigh and I want to wish you a very happy birthday. I know that tomorrow will be a very bittersweet day for you, but I do hope that you can find a bit of time for yourself. To remember the good times with Becky and Katie on this special day. Maybe have you and Katie release a balloon so that Becky can celebrate with you. Maybe you can try to go one more step and do something special for yourself. You need to take care of yourself and pamper yourself a bit. It will make you stronger ... Tomorrow happens to be a special day in our house too. Princess Ashleigh turns *4* ..... So from the NJ Princess to the Prince - Happy Birthday. Paula (and Ashleigh)
  25. Thats what I'm trying to acheive here. My dad has been having a lot of problems with his breathing. Finally got in to see the radiation oncologist who did say yes see a pulminologist. Also go see the general oncologist. So off they are going. Saw the pulminologist today. Gave him an antibiotic (I'm figuring infection thats why or bronchial swelling, sounds congested, etc.), a pill (mom doesn't know what its for) and an inhaler 2x/day. Hopefully that will help clear him up. Probably has radiation pneumonitis as well. Can't see the general onc until mid-Aug. Thats whats so frustrating to me. I continually asked them to make an appt, but because of the change in Drs at the center now its not until Aug. What I'm having trouble balancing is just how much I'm involved and how much I'm not involved. My parents want me involved, or so it seems, and for the most part take my suggestions, but then there are times that they just don't seem to push forward and are almost like in a standstill mode. Then of course is the depression that they are both going through. Just how do I handle this, work full time, care for my family and put up the brave front? Last week has been incredibly difficult as I have had to not show emotion to them and try to hide it from my children. Paula
×
×
  • Create New...

Important Information

By using this site, you agree to our Terms of Use.